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AmericanaMama

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  1. Hi there, I'm about eight months out from being diagnosed with celiac disease. Happy to say that my TTG level dropped from something like 86 to 10. That's not bad. The other part is the cautionary tale bit. If you search for my topics in forums here you'll probably see where I've talked about neuropathy. I've had the problem since April 2020 (yes, the year...
  2. Have you had any luck with rheumatology?
  3. I've read about inflammation of the connective tissue due to Celiac called Enthetitis.
  4. Anyone with celiac have this condition? Just discovered this one. Can happen with psoraitic arthritis and with Crohn's.
  5. First, I want to thank this forum and all that participate. You all are invaluable resources and are definitely helping me in this journey towards health. Thank you. Last I posted about my struggles. It was mentioned a couple of times that I could be low in a couple of different vitamins or minerals. I'd like some of your suggestions, even brand names...
  6. Thank you so much for your kind insight. I appreciate your thoughts & time.
  7. Thank you. Thank you for taking the time. At least in the past, my B12 and B vitamins have been at a normal level. But what is normal? LOL!
  8. Thank you. I think I read once that the magnesium level that is preferred is a Magnesium-RBC. I will talk to my doc about this.
  9. The one descriptor on food packaging that kills me is the one that says spices. What the heck are "spices"? Isn't that a subjective term? LOL! One man's cinnamon could be another man's dryer lint, LOL. Could you tell me what vitamins and minerals I should be tested for? Is there a list here on the site? I have seen some lists and they are quite involved...
  10. Thanks for your thoughts. What is a recovery time frame for folks? Months, years? Thanks
  11. When I first went gluten free, my joint pain symptoms went down about 50%. I still have residual neuropathy and muscle stiffness. I am also basically on a gluten-free-Paleo allergy elimination type of diet. The last few days my nerve pain has kicked up. Also I feel like a joint pain wants to come back. Does this whole journey sort of wax and wane? Do you...
  12. McCormack's, does is say right on the package "gluten-free" or there aren't gluten substances within the ingredients list? I just took a look at their allergen statements and it sounds like they are diligent about cleaning protocols but aren't certified as such. Thanks. An aside, I did reach out to Costco about a few of my staples and they couldn't tell me...
  13. I have an interesting genetic predisposition. I have what I like to term "boutique" conditions. The thing is, none of my family members have ever seemed remotely interested in being tested for any of them. Early on, I did stress that these were genetic conditions and therefore they may be prone to them or at least carriers of them. My husband and I are...
  14. We camped with some of my husband's family over the Memorial holiday. Inevitably, the conversation comes around to why I'm eating the way I am. Rather than tell them the whole sordid year long (which it's been lifelong, now that I know) tale that led to my diagnosis as "potential celiac", I just say "I have celiac disease and I have to avoid a few foods right...
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