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AmericanaMama

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by AmericanaMama

  1. I've requested a book from my local library and was wondering if anyone has read it. It's called This is Your Brain on Food by Uma Naidoo, M.D. She works with Mass General's Nutritional Psychiatry area. I was like, "nutritional psychiatry"? I guess it's a relatively new specialty. She talks about gut biome dysfunction and gluten being huge drivers of mental...
  2. Hey there, Chess Fox... Yeah, it's so important to taper down your meds if you choose to go off or with a doc. Being that my son was 21 at the time of his first "break", I wasn't in control of his meds. He got them all messed up and couldn't abide with any sort of side effect or need to build a blood level type of scenario. I think the first problem...
  3. I am so glad! How very scary for you otherwise. I am sorry you went through all of this. My oldest tries to avoid gluten as he has found it helps him with his mood. I feel so bad because the poor guy had to be hospitalized so many times in his young adult years due to anxiety, mood swings, paranoia, and suicidal ideation. It makes me fully sick to think...
  4. This original post has been a long time ago so I don't know if you still participate. Did your alpha 1 antitrypsin levels show normal or abnormal? I asked because my husband and I are both carriers.
  5. Hi, Scott...thank you for taking the time to reply. Here are my numbers: (first test) Tissue Transglutaminase, IgA 72.5 units/mL (their standard range is <20.0 units/mL) Immunoglobulin A (IgA) 212 mg/dL (their standard 70-365mg/dL) (second test, a couple weeks later) TTG was 68.8 Endomysial Antibody, IgA 1:40 titer ...
  6. Just to recap my situation, I've had ongoing issues with nerve pain, paresthesia, joint and muscle pain, etc. That's been going on for a year. After all the various specialists chimed in, my rheumy thought it prudent to at least draw a celiac panel. It came back positive for the TTG and then later the EMA was positive as well. I had the endo/biopsy that was...
  7. Could you child have a liver problem? In my family there is a genetic condition called Alpha-1 Antitrypsin Deficiency. It can cause problems with the liver and the lungs. Not saying that is the problem, but maybe it's in need of checking out liver enzymes and maybe bleeding times (PT, PTT), maybe hemoglobin, etc? Keep us posted. Robin M.
  8. Mercy...eleven years. I think a little over a year is a problem? Lord. It sounds like diet has been the key to you feeling relief. I am definitely exploring a bunch of things. I haven't went off gluten yet because I don't know if the doc will end up doing other test that require a gluten challenge. Digression of sorts, I was dx'd about twelve years ago with...
  9. Greetings from behind (or in front of?) my computer, in the state of Michigan and confusion😀...long rant, I'm sorry ahead of time.... I've been on a journey to some kind of "normal" since last April. I guess you'd say I'm a bit of an indirect "collateral" damage of Covid. I did too much on a nice spring (rarity) day last April and had back spasms. O...
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