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Sharib

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sharib

  1. Sharib
    Hi Karen, What did the doctor base your Celiac diagnosis on back in 2002? As far as I know, gluten should be eaten prior to an EGD with biopsies of the small intestine. There is no standardized amount of gluten and/or servings per day or a set duration we must eat the gluten prior to the biopsies. I asked a few docs and looked it up. I ate gluten...
  2. Sharib
    Thank you Joey!
  3. Sharib
    Hi, So sorry you had side effects from Budesonide. The other drug seemed to work for you. I did read up on the drug & side effects. I’m starting it today. I’m nervous, but my family & I feel I need to give it a try. I must see if it can reduce the inflammation in my small intestine so it can begin to heal. I have been doing everything I p...
  4. Sharib
    Hi, My colonoscopy and biopsies have always been normal. Many things have been ruled out in the colon and small intestine. I have Celiac and Refractory Celiac could be possible. I currently have no symptoms. My last loose stool was March 4, 2022. The reason Budesonide has been recommended by the Celiac/RCD specialist is due to the EGD showing severe...
  5. Sharib
    Hi, Budesonide is used for RCD as well as pulmonary issues. It’s been a long almost 3 yrs & removing gluten hasn’t helped. My scope in February shows severe villous atrophy. I cook all my food and there certainly could have been cross contamination as one other person is not gluten-free. We have since removed most of the gluten fro...
  6. Sharib
    Yes, I have a Celiac dietician. I have deficiencies that have been addressed and are continually monitored. Thanks! Shari Hi, I really appreciate you posting these coupon codes. I will call and inquire. Thanks, Shari
  7. Sharib
    Hi, I have 2 GI docs. One referred me to a Celiac/Refractory Celiac specialist. Dr. Rubio-Tapia feels I possibly have a slow healing celiac or maybe RCD Type 1. He has my complete history including labs with deficiencies. Yes, I supplement. My Vit D level is at 60 & 70 would be optimal. Budesonide is 95% targeted to the intestine...
  8. Sharib
    Hi, I am trying to find assistance with the cost of the drug Budesonide 3mg capsules taken orally 3 times a day. It is used for RCD, refractory celiac disease type 1 & slow healing celiac. RCD is diagnosed based on biopsies of the small intestine and non responsive to a strict gluten-free diet for 6-12 months. It’s a diagnosis of exclusion. ...
  9. Sharib
    Hi, I was diagnosed with Celiac and removing gluten from my diet has not resulted in symptom improvement or small intestine healing. My upper endoscopy a year later shows sever villous atrophy. My GI doc in FL Cleveland Clinic referred me to a celiac and refractory celiac disease specialist in Ohio Cleveland Clinic. He feels it could be a slow healing...
  10. Sharib
    I have since read that heat from the grill will not clear the grill of gluten.
  11. Sharib
    Hi Kate, I’m sure I was cc at restaurants. This was prior to my Celiac diagnosis although I was eating gluten free. The scallops were well cooked and my partner ate them with no issues. Histamine intolerance maybe or one could have been bad. I eat my home cooked food and that’s it. More bland. I have my own pots, pans and utensils. Most glu...
  12. Sharib
    SIBO can be cleared and reappear. My GI doc said many people have low levels of it & their symptoms are more mild. I’ve read many with Celiac also have SIBO. Good luck to you too. Yes, “we are not alone!”
  13. Sharib
    Hi, I’m wondering if your food intolerances are due to SIBO, H pylori or a histamine intolerance. Celiac alone causes inflammation in our small intestine. This leads to leaky gut and I believe intolerances. As the inflammation subsides & the healing takes place, we should clear out SIBO and other issues if treated and then be able to tolerate t...
  14. Sharib
    I was diagnosed Celiac via biopsies of my small intestine in June 2021. It was highly suspected from biopsies done in October 2020. I was gluten free at the start of 2020 and consumed gluten daily for 2 months prior to my scopes. I didn’t have nausea, vomiting and episodes of diarrhea while eating gluten. Maybe some more minor loose stool, but nothing l...
  15. Sharib
    I have tried crackers that were labeled gluten free and my stomach was upset. I’m sensitive to either the small amount of gluten and/or other additives. I cook all my meals at home. My Celiac is complicated with SIBO, H pylori, histamine issues and leaky gut. It’s been a long road of treating each. I am doing the supplement route to treat H pylori wit...
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