Thanks Scott. My immunologist hopes that healing from celiac will eliminate my symptoms. He does see a connection between mast cells (white blood cells responsible for allergic responses) and celiac. He quoted emerging research on the subject that overly simplified says that mast cells can gather or "over-produce" in areas that have inflammation due to autoimmune...
Hi,
I am recently diagnosed Mar 2021 through biopsy and blood work (doctors were actually looking for Eosinophilic Esophagitis).
My symptom set is very strange. Bloating and IBS. But mostly symptoms that mask Mast Cell Activation Syndrome which I have been tested extensively for and am negative.
My immunologist seems to think that the...
Thank you. I will start a new thread. It was encouraging to find someone with a similar symptom set. I am praying that celiac is the answer to my reactions. It has been a terrifying few years.
I have similar symptoms!! I have been having idiopathic anaphylaxis for four years now. I was diagnosed with celiac inadvertently a month ago. The doctors were looking for EOE in and endoscopy/colonoscopy and found celiac and my blood work confirmed.
First, let me tell you how much I hear your fear and experiences. And reading through the (best intending...