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Killygirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Killygirl

  1. Killygirl
    Thank you. I don’t have pernicious anemia. My B12 levels are adequate at this time.
  2. Killygirl
    I have not ever restricted gluten so I would assume so. My concern is about the iron deficiency especially. I don’t think a gluten intolerance would cause nutritional deficiency would it, if there is no damage to the small bowel?
  3. Killygirl
    I am surprised that nothing was found because he definitely told me he saw “lots of edema”. Scheduled a follow up (which they don’t do if normal) and did not categorize it as a “normal endoscopy” on the discharge form he gave me (although there was a section to check for normal). I will get a chance to speak with him so I will ask about this of course. ...
  4. Killygirl
    UPDATE: I just received a call from my family doctor who had the results of all my biopsies. I am (devastated) to report that they were all NORMAL. I don’t mean to be ungrateful for my health and I am so sad because I thought I found the answer to why I am so exhausted etc. I can’t believe I am actually crying over good results. A huge thank you...
  5. Killygirl
    Ok thank you again!
  6. Killygirl
    New Question: Any recommendations for other vitamin/mineral tests to request beyond B12 & Mg? Thanks!
  7. Killygirl
    Thank you so much Posterboy. This is so helpful.
  8. Killygirl
    Also during the time I had the night sweats I had several episodes of severe abdominal pain waking me from sleep and leading to vomiting and relieved eventually but noise bowel sounds and diarrhea. It was horrible. This happened over a period of a year or so. This was around 2012-2013. I had a colonoscopy at the time that was normal and nothing further done...
  9. Killygirl
    I think I may have had celiacs for a very long time undiagnosed (if I have it). I worry that I may have neurological effects too because 1.5 years ago I had a sudden onset of severe vertigo without nausea. I had a CT scan which was normal but it took days to improve and I had trouble walking because the world was moving. Since then I have had poor balance...
  10. Killygirl
    I think he told me he took 8 biopsies so it might take a little longer. And he biopsied the terminal ileum.
  11. Killygirl
    Yes I do have access but they don’t post pathology results for 1 week after they are available, to avoid any unexpected surprises to patients without the support of their doctors. My GI specialist wrote on my discharge sheet that a phone call follow up (cause of Covid) to be arranged to discuss results.
  12. Killygirl
    Thank you 🙏🏻 New Question: how long do people typically wait for their results?
  13. Killygirl
    I will. Unfortunately I’ve gone down the rabbit hole of medical google searching for “edema” relating to small bowel appearance and can’t find any publication that relates that term to celiac findings. Adenocarcinoma—yes, Crohn’s disease—yes. But nothing about celiac. So I’m sitting at home, post-procedure drugged head, quietly freaking out.
  14. Killygirl
    Thank you everyone for your support. I am so grateful. I have my colonoscopy and upper endoscopy this morning. My colon is perfectly normal (thankfully) but my small intestine had edema. He took lots of biopsies but he told me at the end of the procedure I probably have celiac disease. I will know for sure in the next week or so. I can’t believe it but i...
  15. Killygirl
    Thank you everyone for your comments. It’s really appreciated! I have never had any other antibody tests to date. I will probably just wait for the endoscopy at this point. Does anyone else have oral lichen planus and later diagnosed with Celiac Disease?
  16. Killygirl
    Thank you for your insight Adam. The testing I had reported that any ttg level less than 20 was normal and my result was reported as “<5”. So I think it was undetected.
  17. Killygirl
    Thank you. I do eat meat especially this past year. My thyroid levels were tested and are normal.
  18. Killygirl
    Yes, they were definitely negative: ttg <5.
  19. Killygirl
    Thank you 🙏🏻
  20. Killygirl
    Oops autocorrected planus and didn’t notice. Should be oral lichen planus not plants! Lol Also should mention eating more meat than ever before in past year (3-6x/week at least).
  21. Killygirl
    Hi all, here is my story: Middle aged female, chronic iron deficiency with microcytosis. Most recent test showed severely iron deficient. B12 low normal. Taking a supplement. Can’t tolerate iron supplements so not taking (waiting for iron transfusions). Occasional loose BM’s or diarrhea with urgency but not often (1-2x/month). Regular menstrual cyc...
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