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PattyWayne

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by PattyWayne

  1. That sound very interesting. I am unable to eat eggs due to allergy. Gall bladder was removed years ago, bile was crystalized. I get a shot of B12 every 3 months but willing to increase vit D and if you think getting methylate homocysteine, ie., B12, B6, Folate, Choline and Taurine would help me, honestly willing to try to feel better. Thank you.
  2. Its low Vitamin D 25 Hydroxy 29.7 ng/mL and I take D3 125 MCG Daily. I also have low B12 and 8 months ago was tested for Hemochromatosis because my arthritis was showing hooking in the bones of my fingers. Tested double gene positive so every three months I have a slew of blood work including having Iron and Ferritin Level checked- Ferritin needs to stay...
  3. The reason I have never have had Tetanus is because I get the Human tetanus immune gobulin called Hypertet- it is what they use for active Tetanus. Diphtheria, probably because I have not been anywhere I would have been exposed, and I did have Whooping Cough as a young child (as well as my siblings)- at least that is what we have been told by my parents...
  4. So to my understanding you have the genes for Celiac, but with some people it takes something to activate it "a Pathogen"? I know I had issues my entire life, with testing and testing because of stomach pain and others things-with being told it was nervous colitis and sensitive stomach, as a preteen. It was not until searching for the cause of my arthritis...
  5. I was diagnosed last year after going no gluten for a year with doing a Keto diet (cheated for my birthday and again on my Anniversary and got very ill thus leading to me being tested) 3 of my blood levels came back: Gliadin Pep IGA,unit 41.4 U/mL,Gliadin Pep IGG,unit 94.6 U/mL, Tissue Tgm Ab, IGA unit 100.9 AI and only my Tissue Tgm, IGG unit being negative...
  6. Makes me wonder if you have Celiac and if you do to what extent? I have it bad enough to be 'gluttonized" even from cross contamination can put me in the hospital. It is not a allergy- where just taking something like Benadryl can make me better. This last time it caused my intestines to shed and then I had bleeding for days. I was facing loosing my small...
  7. True, yet how many people will horribly suffer if they can state "Gluten Free" at 20ppm? Are people going to suffer for having food products free from any gluten that are truly "Gluten Free" that means NO exposure to wheat at all? It is basically saying "a little bit won't hurt you"....It is just as bad as having some Doctors not believe that gluten can...
  8. No contradiction- even 20ppm may be to much for people with Celiac....each person is a individual on how they respond to protein and you might be fine on 20ppm and then all of a sudden you can't even handle that. Just because it is standard to be able to advertise 20ppm does not mean it is safe for people with Celiac.
  9. My Gastroenterologists warned me to read ALL labels, looking for any form of Wheat. barley or rye. Even warned me about makeup, and French fries when eating out. I don't understand how any one can say removing all but a certain level would be safe- you would not say that about someone having problems with peanuts, shell fish or any medications....that...
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