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GF-Cate

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GF-Cate

  1. GF-Cate
    I'm so sorry this is happening to you and just want to validate that you have every right to feel annoyed and upset. As a parent it is really difficult to understand their behavior. Since you know they are not taking your very real health needs seriously, you're probably going to have to implement some additional measures to keep yourself safe while...
  2. GF-Cate
    This details all of the various types of follow-up care you should have if diagnosed with celiac from time of diagnosis, 3-6 month follow-up appt, 12 month follow-up appt and annual thereafter: https://celiac.org/about-celiac-disease/treatment-and-follow-up/ It's a great document to bring with you to doctor appointments if you are diagnosed as you...
  3. GF-Cate
    Here are a few links to lists/resources to find celiac aware doctors: Celiac.com Doctor Listing https://www.celiac.com/celiac-disease/celiac-disease-doctor-listing/ Celiac Centers, Labs & Alternative Resources https://www.beyondceliac.org/celiac-disease/additional-information/hospitals-labs/ The Celiac Disease Foundation Healthcare...
  4. GF-Cate
    Restaurants can be so difficult because few are truly able to avoid all traces of cross-contamination, and provide the 100% gluten free food celiacs need to heal, avoid triggering an autoimmune response and stay healthy long-term. My guess would be that liability concerns would prevent most restaurants from using your pots and pans. I recently...
  5. GF-Cate
    There is another autoimmune disease called alopecia areata, so it is possible you have developed a 4th autoimmune disease that is causing the hair loss. Patchy alopecia areata causes coin-sized patches of hair loss on the scalp or other areas of the body. Thyroid disease (Hashimoto's if autoimmune hypothyroid, Grave's if autoimmune hyperthyroid) as well...
  6. GF-Cate
    The product that you linked to likely contains gluten. I didn't see a gluten-free label on the photos for the product (but sometimes it's so small it's hard to see). I'm not familiar with the labeling laws in the UK, so hopefully someone who is will chime in, but stick with products that are labeled as gluten-free (or even better, certified gluten-free...
  7. GF-Cate
    Try a daily dose of chia seeds hydrated with water (or hydrated with dairy-free milk, juice or blended into a smoothie) - "chia pudding" . Start with 1 teaspoon a day, increasing to 2 teaspoons/day. Acacia fiber also works very well.
  8. GF-Cate
    The good news is that a gluten-free lifestyle can help thyroid disease. There is a connection between celiac & thyroid disease, and in general if you have one autoimmune disease, you are likely to have or get others. "The prevalence of autoimmune thyroid disease in patients with celiac disease is four times greater than that in the general...
  9. GF-Cate
    Unfortunately, one of the side effects of levothyroxine (too much, too little or even the type - Synthroid, Unithroid, Tirosint, etc.) is that it can also cause hair loss. Many docs will not medicate to complete symptom relief and also don't run the full panels of blood tests truly needed to assess thyroid levels & functionality - including blood...
  10. GF-Cate
    Additionally, here is a link about the DGP-IgG test: "A positive test result means that it's likely you have celiac disease." https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid=dgp_celiac_disease It does not look like a total IgA level was measured in the bloodwork you had done? This is usually included...
  11. GF-Cate
    Honestly, I would probably get an official diagnosis if you can, even if it means switching doctors - you may be able to find a celiac-aware doctor in your area on this forum or others. Bringing a support person to your appointment may get them to take you more seriously. Also, be sure to note your family history of celiac. Yes, the treatment is just...
  12. GF-Cate
    @Sirenna Like you, I faced a lot of roadblocks from traditional Western medicine doctors. I was misdiagnosed for years and test results were misinterpreted. Your best bet for finding a supportive doctor who is willing to provide a diagnosis may be at a Celiac research center. There are many throughout the country, primarily in the larger cities...
  13. GF-Cate
    @Annieoh The Garden of Life brand has collagen peptides that are NSF certified gluten-free and GFCO certified. I use several products from this brand because they I also need certified products and theirs are clearly labeled if CGF (and sold in many stores in my area, though available online as well). Now if they would only make the font a little larger so...
  14. GF-Cate
    Though they are labeled gluten-free, she may need certified gluten-free products and/or dairy-free especially while she is working towards the healing process. Garden of Life is one brand of probiotics that are dairy & soy free and certified gluten-free. Lentils are very often cross-contaminated with wheat and other grains due to how they are...
  15. GF-Cate
    Celiac Disease Program at Stanford Health Care https://stanfordhealthcare.org/medical-clinics/celiac-disease-program.html "We offer one of only a handful of centers in the US and the only one in Northern California with dedicated specialists who focus solely on treating and studying celiac disease."
  16. GF-Cate
    A lot of doctors are simply not well educated about celiac disease (or other autoimmune diseases). If a person has the genes for celiac, on-set can be triggered at any point in a person's lifetime. This sounds awful. Please do verify as others have mentioned that the TPN is gluten-free. I don't think many of those products are CGF (certified gluten...
  17. GF-Cate
    Hi Diamonds, Tirosint is a brand name version of levothyroxine that does not contain fillers such as gluten, lactose, dyes, and preservatives. https://www.tirosint.com With celiac or NCGS you should be able to get your endocrinologist or whichever doc prescribes your thyroid meds to switch you to it. Unfortunately, it can be very pricey even...
  18. GF-Cate
    It's so tough to be having reactions and not be able to pinpoint the cause. As others have mentioned, it's certainly possible to have developed another autoimmune disease, which is not uncommon once you have one. Some people have luck with the AIP diet (autoimmune paleo protocol) to try to eliminate symptoms: https://autoimmunewellness.com...
  19. GF-Cate
    It could be NCGS, but it would be best to get the full celiac panel of blood tests while you are still consuming gluten before ruling celiac out. Since you have a celiac gene, even if it is not celiac now it could still develop at any point in the future (for your kids too if they got the gene(s) - so good to get them tested too - gene test now, blood tests...
  20. GF-Cate
    Spices were one of the items that were cross contaminating me, so I ended up giving away every bottle in my spice cabinet and starting from scratch. It was expensive, but worth it for me. Morton & Bassett (CGF - certified gluten free) https://mortonbassett.com/ Spicely (CGF) https://www.spicely.com/ I also grow some of my own...
  21. GF-Cate
    The other thing to remember is that "may contain" statements may be on items that you're not expecting. For example, I recently almost used a bag of dried lentils without reading the label, and sure enough it had a "may contain" for wheat (I'm in the US - Goya brand). Also packaged nuts in US almost always have a "may contain" statement, at least in...
  22. GF-Cate
    For D & K, Carlson's D/K drops are gluten-free. Many Garden of Life protein powders are certified gluten-free.
  23. GF-Cate
    I am struggling with these things too. It's so frustrating to feel like we're doing everything we can and still not getting the results we are aiming for while adding more things to remove from our diets. I hope you're able to figure out the cause.
  24. GF-Cate
    I would second that. It may be difficult to do right now with all you have on your plate right now but check and double check things like spices, makeup/body care products that come in contact with your mouth (especially lipbalm and lipstick), gums & mints, toothpaste & dental care products, and as Scott said supplements and medications (and...
  25. GF-Cate
    What about Diet Coke?
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