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Karly

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  1. I haven’t even thought about that stuff. Thanks, I’ll check them out!
  2. Yes, he doesn’t eat dairy, eggs (possible allergy), gluten, or corn syrup, and we limit all sugar because he is currently deficient in all the disaccharideases.
  3. Thanks for the reply! he did have a primary immune deficiency genetic panel done and found no variants that are known to cause disease. I am assuming the genes for celiac disease were in that panel, but I’ll have to double check. he has been on a gluten free diet since February. The first month he didn’t have any improvement, but then he got noticeably bet...
  4. Thanks for your responses everyone! He had a negative blood test in 2017 and 2020. I attached the most recent results. He’s had 4 endoscopies/colonoscopies (June and December 2017, November 2020, and February 2021). After each of the first three, the pathologist said it didn’t look like celiac disease. After this last one though, the pathologist said it ...
  5. Hi all! If any of you have advice or experience that could help with my son’s case, I would really appreciate it! He was a very colicky baby. I discovered a milk allergy at 6 months and going dairy free helped him a bit. Around 18 months he started really going down hill. He barely ate, had severe diarrhea, had bad abdominal distension, and vomited f...
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