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Makky

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Makky

  1. That is wonderful to hear, I’m so glad you’re doing better and that is very encouraging for others who are just starting out the journey! I appreciate you sharing that because that’s exactly the type of things I was curious about. & It is so hard to not get “glutened”! Trying to be extra careful from here on out and taking lots of vitamins. It’s terr...
  2. Thank you so much Scott, I think I have a long road ahead of me, trying to take things slowly right now but definitely not feeling like my Normal self yet 😓
  3. Wishing you healing and no pain 🙏 I was very very pro vax before this happened to me (I still went and ahead and got the second dose right around time of diagnosis) but I truly think that a combination of stress and the vaccine messing with the immune system really set this off for me, I was very healthy and am very young before the celiac symptoms began. I...
  4. So sorry to hear all this, I wish you healing and truly hope you feel better soon 🙏💜
  5. Thank you Trents I really appreciate that, I am about two months gluten-free now with one accidental glutening one week ago. Feeling much better than before, but of course after much research I am seeing a lot of op-eds and such that discuss how some celiacs intestines NEVER heal back to what they once were, and that really scares me! I’m so impatient to b...
  6. This is extremely interesting to note, my celiac symptoms began about a month after receiving the first covid vaccine. Now I wish I never got it!
  7. Hi Larzipan, about a year later here, I am newly diagnosed and curious to see how you are now feeling at a year and a half gluten-free? Any advice would be great, wish you well and thank you so much!
  8. I am starting this new chain because I know a lot of people haven’t been on this forum in years, but for those who are still here and fully recovered, how long did it take to heal your leaky gut/intestinal permeability? I do feel much better than I felt two months ago since being diagnosed but I am still just trying to gauge the healing process timeline a...
  9. Hi Sharon, no worries I agree, from the nature of these results, it seems like to me that you are possibly not celiac, but gluten sensitive. Try cutting out gluten for a few days and see how it makes you feel! Gluten sensitivity can be just as painful as celiac, and your IGa seems high which I believe indicates a food allergy, anyone pls correct me if I...
  10. I completely agree, yet of course the doctors want to see the ridiculously low/high levels before they decide to treat. My TSH is finally over 1.0 for the first time in years (compared to 2018-up until recent celiac diagnosis it was between .2 and .3), after being on the gluten-free diet for the last month and a half. So now, I have the option to wait and...
  11. Hello all, thanks again for all the info that you shared, quick update for those who asked: I am now coming up on six weeks gluten-free, with one accidental slip up the other day. I am adjusting to the gluten-free diet the best I can while also trying my best to eat as healthy as possible. I have yet to decide whether or not I need to quit dairy, soy...
  12. Hello Jaffy, thanks for the reply and sorry for the late reply on my end. I appreciate all the information and wish you the best on your journey, it's very interesting to see the different ranges of sensitivity and symptoms between all of us!
  13. Thank you Scott, I will definitely follow up here as things progress, I have only been gluten free about a week now, but may start having a piece of toast each morning for the next month until the biopsy just so I can get the clear results, as difficult as it may be. I appreciate all the insight.
  14. Thank you so much for the expertise, Cate, I truly appreciate it, and that is what I feared, I think I will continue the gluten free diet for one more week to see how my symptoms clear up, (they already seem to be a bit better), and then go back on the gluten for the next three weeks before the biopsy. I will also be calling the GI office again on Tuesday...
  15. Thank you so much, I will definitely work on adjusting my supplements because I agree it may help with some of my symptoms.
  16. Currently I take daily: 5000 iu of vitamin d3, (I had low vitamin D, but will go back down to 2000 iu after a month of the surplus), a daily B-complex, 30 mg zinc, and 500-1000 mg C, I was looking into the slow-fe iron tablets but am trying not to self prescribe too much. Currently I am dealing with my primary physician, and the biopsy will be...
  17. Thank you, I have quite a few blood tests to request now, including the IGE, I am not sure what is going on with my heart unfortunately, it just seems to be much more rapid than before, as well as an increase in blood pressure, I have had a hemoglobin A1C test done as well as checked my cholesterol, so probably not diabetes, but my suspicions are possibly...
  18. Hello Trents, thank you so much for the reply, yes my scheduled date for the endoscopy is July 1st, but I am on a list in case anyone cancels to come in sooner. Yes, I definitely have already seen improvement since going gluten free, for the last week now, with my aches and pains, fatigue, and brain fog significantly. Still having a lot of issues with my...
  19. Hello all, I have a lot of questions and concerns that hopefully some of you more educated, diagnosed members can answer. I had been having horrible symptoms for about a month, starting in the end of April ‘21, ended up in the Er many times and many different doctors visits. Eventually, through my own research, I was able to match my symptoms up to C...
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