Linny H
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Thanks for the response. Lots of great info. I stopped oats about a year ago. I didn't notice a problem with dairy but I will look into the auto immune diet you referenced.
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Thanks so much for your reply. I was diagnosed via endoscopy. Definitely could be getting some hidden gluten as I'm still working thru careful label reading. Dapsone scares me. I don't like what it's doing to my blood work.
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Have been on a Gluten free diet since my diagnosis in June 2021. Was diagnosed with DH last fall and started taking dapsone. This medication is affecting my red blood cells and I am experiencing fatigue and minor dizziness from time to time. I plan to discuss stopping the dapsone with my dermatologist at the end of the month. Anyone else taking dapsone? How...
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Book: Dear Gluten It's Not Me It's You by Jenny Levine Tinkle She also has a website with a blog and newsletter. Wonderful explanation and resource. My advice is to seek out an online dietician that has Celiac or specializes in Celiac. Do your research and take a deep breath. You'll be fine and you are not alone!
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Do blood test for gluten levels tend to fluctuate?
Linny H replied to Linny H's topic in Meet Up Room
Thanks for the encouraging word about your doctor's opinion. Yes, it is my ast and alt that are elevated again. No problem with any other liver related numbers Thanks again for your responses. -
Do blood test for gluten levels tend to fluctuate?
Linny H replied to Linny H's topic in Meet Up Room
Cristiana, Thanks so much for your suggestions. I was diagnosed in May after years of high liver enzyme numbers (ast & alt). My TTG readings were >100 and an endoscopy followed that. August numbers for TTG were <2 and my liver enzymes were back in the normal range. December blood work showed TTG of 5 and elevated liver enzymes again. I haven't... -
My first test was great and now my gluten number is up again along with my liver enzymes. I haven't changed my diet at all. Confused! My question for those of you who have had Celiac for years: do these numbers tend to fluctuate?
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Scott Adams reacted to a post in a topic:
Apps to use for determining gluten free foods
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Thanks again for all of the advice. I'm in the process of restocking my cabinets.
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Thanks so much for all of these responses! Each one was SO helpful and encouraging. I do have one other question in regards to cooking from scratch. Seasoning and spices?? What do you use and recommend for meats and veges?
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Scott, thanks so much for the articles. This gives me some great starting points. I appreciate your help. I appreciate your guidance and encouragement. Look forward to spending time in this forum.
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Thanks so much for the guidance. I approached this was a positive attitude, but frustration is setting in as I go through my cupboards and attempt to shop. I meet with a dietician for the first time on June 11th. I hope to find more guidance there. I look forward to asking for advice here as well. I do appreciate your kind help.
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I was recently diagnosed with Celiac Disease. Shopping has been a challenge. Is there a really good app for scanning bar codes? I have tried a couple and I'm getting mixed results: One says gluten free and the other posts a warning. Help! And thanks.