Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

CeliMomi

Advanced Members
 View Profile  See their activity

  • Posts

    14

  • Joined

  • Last visited

CeliMomi's Achievements

Rookie

Rookie (2/14)

  • Conversation Starter
  • Week One Done
  • One Month Later
  • First Post
  • Collaborator Rare

Recent Badges

0

Reputation

  1. CeliMomi
    I am just as concerned as you are. I truly don’t think he is a reliable source of information when it comes to celiac. When I told his nurse we were going to go gluten free anyways she told me to wait until we could get a DNA test. I asked why and she said it could change the results. I said “since when can your diet change your inherited genes??” She t...
  2. CeliMomi
    1) he said there isn’t a test for gluten sensitivity 2) he said the DGP IgG is the least sensitive and most unreliable and is ruling out celiac as a cause of her symptoms 3) didn’t ask originally so I can only assume what his answer would be 4) he said we could try a gluten free diet but he wasn’t convinced it would make a difference ...
  3. CeliMomi
    I was told by the doctor today that even if her DNA test showed the celiac related genes, she would NOT be given a celiac diagnosis due to the negative biopsy. Moving forward with a stool sample to check on the lower GI track for infection/inflammation/blood. He also said it is still not understood in the medical community as to why the DGP IgG is positive...
  4. CeliMomi
    I’m currently awaiting celiac labs for myself since I have low iron and b12. Also wouldn’t be surprised if my dad has it. He has struggled with stomach issues his who life but has never sought treatment. They took 4 samples; one in the duodenum, one in the duodenal bulb, one in the antrum body, and one in the Lower esophagus.
  5. CeliMomi
    I’m definitely confused as to how there can be a positive DGP IgG but not have celiac.
  6. CeliMomi
    I'm hoping with my daughters double coverage with insurance the financial aspect may not be an issue.
  7. CeliMomi
    Biopsy came back negative. Should I push to have a DNA test? Biopsy came back negative. Do you recommend getting the DNA test for her?
  8. CeliMomi
    Thank you for the articles. I will definitely be looking into it more.
  9. CeliMomi
    Thank you, Scott. I’m hopeful to get a diagnosis quickly without too much testing. It’s been a long road of dealing with her Low Iron and it will be nice to finally have some answers.
  10. CeliMomi
    Will do. One of my coworkers has a husband and child with Celiac and has been a great resource this far. I appreciate your help
  11. CeliMomi
    No worries! I appreciate any feedback I can get. She has an appointment next week and I am expecting the biopsy to be our next step. No one in our family has been diagnosed with Celiac but that doesn’t mean someone doesn’t have it.
  12. CeliMomi
    No other testing has been done. I’m hoping the specialist will have more insight to additional possibilities. What would cause her Deaminated IgG to be so high?
  13. CeliMomi
    She has been struggling with low iron and has been on supplements for the last year. Every time we do labs, her CBC results are slightly off and CRP is high. She is constipated often and gets tummy aches.
  14. CeliMomi started following Possible Celiac?
  15. CeliMomi
    My 12 year old just got her labs back. Her pediatrician is sending her to a GI Specialist for celiac. Any insight as to whether or not she has it?
×
×
  • Create New...