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J Morgan

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by J Morgan

  1. J Morgan
    Hi! Yes, I do. It is well within the normal range. This is one of the first things they checked.
  2. J Morgan
    Hi! Thanks for your response. I had some more tests done and I have something called primary biliary cholangities; which is another autoimmune disease and likely caused the SIBO I have been experiencing. Essentially my immune system has decided that my bile ducts are evil and must be destroyed. It apparently is associated with Celiac.
  3. J Morgan
    My zinc is normal so its not a zinc deficiency; most recent tests show that my copper is still going up...another appointment with my Mayo doc today so hopefully I will have more info soon. They are still working on it-ideas are Wilsons Disease and an autoimmune that impacts the liver. I can't remember the name but hopefully I will know more soon.
  4. J Morgan
    This is so helpful. Thank you for sharing!
  5. J Morgan
    I’ve been gluten free for 8 years…the liver issue is new.
  6. J Morgan
    Hi everyone, I thought I would update you on my health journey! The Mayo Clinic was pretty amazing, the GI doc I met with spent about an hour with me and my husband trying to make sure he understood exactly what was going on. (I don't think I have ever spoken with my GI for more than 8 minutes at a time.) I was poked and prodded endlessly and it...
  7. J Morgan
    Thank you so much. I will share this with her. I definitely thought the corn solids were the same as corn syrup. I have more learning to do!!
  8. J Morgan
    Oh and I did get the MRI done yesterday evening but no results yet.
  9. J Morgan
    Hi, it sounds like you are actually pretty qualified to give your thoughts about this (!!) but I do have lots of doctors who are trying to help figure it out as well. Unfortunately there are ZERO doctors in my area that are Celiac specialists; well, there is one guy but he isn't taking new patients. My current GI is really not great. He told me that I couldn...
  10. J Morgan
    I haven't had any meat in forever. The last time I tried ANY solid food (grapes) I was in excruciating pain for hours, I can't imagine a piece of meat! I seriously wish there was a nutrition pod that I could just eat that had all the good stuff and was easily digestible. I think this is why my nutritionist has me on the essential care jr. Three weeks...
  11. J Morgan
    First I want to say how absolutely amazing it is that you went and did this. I am soooo appreciative of this group and the information you have shared with me. Second, the thing you looked up is not the stuff my nutritionist has given me. She has given me Essential Care Jr. I took a pic and am hoping it will upload here. It has zero corn syrup solids, I would...
  12. J Morgan
    Where do I get these vitamins?!? Amazon? Specific type you recommend?
  13. J Morgan
    Thank you! I reached out to my doctor and they said they have tested for “all nutrients” but I’m doubtful because I only see the basic stuff in my chart. in other news I got my CT of abdomen today and they saw no signs of inflammation in my guts but did find my common bile duct was dilated to 1.5cm. I’m not sure if this is significant/has anythin...
  14. J Morgan
    Just wanted to say I looked in my chart online and it looks like they have only tested for B12 and D, calcium, potassium and magnesium. I just requested they do the full panel, including the thiamine. Thank you!
  15. J Morgan
    Hi! Thank you so much for your reply-I am so grateful for this group. The essential care jr websites says it does not have corn syrup solids. Which is why My dietician ordered it for me. No gluten, no corn, no lactose…no allergens. https://essentiallybetter.com/our-ingredients/ My primary has said all of my B vitamins and D vitamin levels are f...
  16. J Morgan
    My dietician has me on a different shake now. Essential care junior. It is made of fermented amino acids and has no allergens. I have not eaten lactose or any dairy in a month and really didn’t eat much before that. (Maybe cheese kn a gluten-free Pizza) with all the food changes it is just getting worse instead of better. Sigh. I’ll talk to her about who...
  17. J Morgan
    Hi-wondering if you found any answers?
  18. J Morgan
    Hello Celiac friends, just wanted to give a quick update. The Neuro issues are continuing and I am now not working (I sell words and thoughts for a living so as I can't think straight its probably not good to work). I actually went to the ED last week because I was super confused, they found I was dehydrated and my calcium was a little low, but were unsure...
  19. J Morgan
    Thank you! I had my vitamin B checked and my doc said it was fine but I’m not sure *which* B it was. I’m going to ask her to check those levels again.
  20. J Morgan
    This is fascinating! I have an appt with my gastro on Tues and will ask him about this.
  21. J Morgan
    Thank you for your response. I went to the nuerologist yesterday and she said that she thinks I have a CNS disorder (not likely ALS due to EMG and other tests) or a brain tumor. I'm not really sure which diagnosis to hope for? I think CNS disorders tend to be lifelong, but a brain tumor (if it were benign) could be taken out and I could have zero additional...
  22. J Morgan
    It really is! I have taken lactose out of my diet and feel a bit better GI wise. I have heard that leaky gut is something to consider and have taken out dairy and lactose...which is making my GI symptoms a bit better I think.
  23. J Morgan
    The lump is not a lipoma-2 radiologists have been very clear of that. Just a weird buldge? I’m having some neuro issues now (lots of muscle spasms/numbness/tingling in my arms and legs and parts of my abdomen) and am wondering if it is a paralyzed muscle…just hanging there all flabby like?
  24. J Morgan
    Thank you so much for your response. I totally agree that it could be dairy related. I stopped eating dairy too. Literally all I eat ATM is fresh fruit, eggs, and nutritional shakes. Everything is gluten, soy, lactose and corn free. I know it takes a while for the lactose to clear your body so maybe I will feel better soon. 8.5 years is a long time...
  25. J Morgan
    Thank you for this information: I really already am (and have been for 7 years) the strict gluten-free diet. So I hope there is another solution out there. Again, I am so grateful for the response.
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