BNGed8
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Bodywide muscle weakness/fatigue
BNGed8 replied to BNGed8's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had a full panel ran almost 2 years ago by my Rheumatologist to rule out any other autoimmune issues that she would be dealing with. They all came back negative except a weak Sjogrens marker but she told me it was nothing to worry about as I did not present most symptoms for it. I do have a script to get them all done again which I will be scheduling soon... -
Hello All, I was diagnosed with celiac in June 2021 & all was good after a while on a gluten-free diet besides for the few rabbit holes I went down at times. I was hoping anyone could assist with what they think could be causing a few of my everyday symptoms that has made quality of life not so fun the last year. There are alot of "symptoms" so I...
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Thank you for all the replies. I was seen by a rheumatologist immediately, who also suspected SS. She did blood work which I received back today. I did finally on the 3rd time testing, receive a positive ANA. I will await my doctor's call to see what the results actually mean, but have also provided them below for anyone who has a clue. My Sjogren Anti SS...
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I saw my primary yesterday, who did more blood work & referred me to a rheumatologist. She suspects I have Sjogrens Syndrome, which I feared I had the whole time. The dry eyes & mouth at night & morning are what makes it most difficult. I was hoping anyone who also has this condition can help me make life as “normal” as possible. I know my ...
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Hello All, I was diagnosed in early June 2021 with Celiac Disease & the few months after were a nightmare (mostly anxiety). At that time, I complained to my doctors as well as the hospital that I was experiencing blurry vision and what seemed to be floaters. They did blood tests to rule out other AI diseases, which all came back clear. This seemed...
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Scott Adams reacted to a post in a topic:
Pain & Numbness on one side of body
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Ivana reacted to a post in a topic:
Pain & Numbness on one side of body
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Hello again, Just wanted to give another update as I had my EMG today. This came back 100% clear which has ruled out all the nasty stuff. This update is for anyone who may be going through the same exact thing as me, with the pains, twitching, throat feeling etc... Anxiety & Celiac are not a cute couple, and can really make you feel like you...
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Hello All! I am now a little over 2 months into my Celiac Journey and just had a few questions in regards to my body that feels so old now. Was hoping anyone could possibly answer and let me know if they have experienced this early in the healing or even still to this day. I still get the twitching & muscle aches which my Neuro believes to be...
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@Scott Adams Thanks for the reply! So I had conflicting reports. The first representative told me yes, these do include gluten but when I called back for reassurance the next representative said no it doesn't. She also apologized that the previous rep would say that. Needless to say, I definitely will not be taking it anymore as I am unable to even...
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Hey Guys, In addition to the above, I wanted to see if anyone had any input on the new vitamin/supplements I got. Really trying to make sure I am not poisoning myself any further; Vitamin B Complex- https://www.amazon.com/gp/product/B07414752B/ref=ppx_yo_dt_b_asin_title_o01_s00?ie=UTF8&psc=1 Benfotiamine (B1) - https://www.amazon.com/gp...
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Hello Everyone! So an additional update. I have been feeling more pains lately so I started popping Tylenol Extra Strength Rapid Release Gels alittle more than usual! This was what the ER doctor recommended so I didn't think any less of it. I decided to call up J&J & they tell me these do contain Gluten! It was my mistake as I searched Tylenol...
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Hello everyone! I just wanted to update this forum as it may help someone who is going through the exact same thing as me. I tend to search the forums every day/night for similar stories so just want to document this for whoever needs it. I have decided to get better vitamins/supplements after searching the web for a few days, which hopefully arrive...
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Hello anyone! So I have been taking Vitamin Supplements for about 2 weeks now & wanted to make sure the ones I am taking are fine. I am taking the Spring Valley (Walmart Brand) B1, Magnesium, & B Complex. It states No Gluten on it, but some of my other vitamin brands says Gluten Free. The definition of No Gluten I found was; "Manufacturers...
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@Scott Adams Great read! I will try the dairy free for a few months to see how it goes. The only one I am not sure if I can handle is no eggs! But anything to help the body recover and not cause any further damage that may not be reversible.
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@Scott Adams sorry for the questions, but I am trying to learn a lot fast & ask the more experienced people my questions. Did your daughter have an allergic reaction? Or it was just a symptom from celiac when she was eating gluten still. I definitely do think I could have ingested gluten even though I am trying to be careful as I am still new. Do you...
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I am assuming my Celiac came forth due to the Covid outbreak. I did not experience any symptoms or have a positive testing, but my girlfriend did. I have read from some articles you guys have posted that this could become an issue. @Scott AdamsIn regards to my throat, I have not touched a cigar in 2 months (since I started feeling ill from celiac), so...