kagey

It took more than a year to get the B12 level down to normal. But the doctors keep telling me to take it, then it goes high again (even from only a multi-vitamin, not separate B12) and I stop it again. Iron is the opposite. I might make a thread about iron, mine is weird (which does seem to go with celiac I am told).

That's a great question: the blood levels are consistently higher than the upper limit of "normal". No idea why that would or could be.

Yeah, that's my problem too. At the time of my upper endoscopy, I was having very little wheat. Maybe one low-carb tortilla or two per week, no bread, no pasta of any sort, and STILL they diagnosed celiac based on "smooth spots" and mild villi damage (but no really bad stuff). Negative antibodies, one of the several genetic markers (but what does that...

I have found a lot more success going to a colorectal surgeon as opposed to a GI doctor for large intestine matters. I have pain after hemorrhoidectomy, so I "feel your pain". One thing that helps a LOT is to be on a pretty strict regimen of non-long-term but medium-term "helpers". The most important one is fiber, up to three times per day - I tend...