Artil
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Connecting the dots
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Ask for a celiac antibody blood test while you still have gluten in your body. It’s a simple blood test- with those symptoms a good doctor should order the test to either rule it out or start the diagnosis
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Thank you!! I didn’t know! I’m going to check it out ASAP awesome!
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I joined this for exactly this. It’s amazing to know there are others with this struggle I applaud all of you and the creator of this site. We all need to hear that we are brave and to keep going. It IS incredibly hard to look in the eyes of “authority” and tell them they are not right, they are missing something important in diagnosis etc. none of us sh...
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Artil reacted to a post in a topic:
Connecting the dots
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This is EXACTLY what I’m thinking about. there isn’t an actual treatment - it’s just stopping damage And then I’m thinking about the daunting task of determining what damage has been caused and then trying to repair it. I’m my sons case I think there is significant damage I would very much like to be able to go to a center like people wi...
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Artil reacted to a post in a topic:
Connecting the dots
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Thank you! I have looked into this topic- I clicked on every article and read them- it makes me think about thiamine deficiency being another symptom of celiac disease and all deficiency a component of celiac crisis. what is interesting about his Metabolic Ketoacidosis is that it’s not caused by lactic acid. also sometimes the anion gap is n...
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Artil reacted to a post in a topic:
Connecting the dots
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Artil reacted to a post in a topic:
Connecting the dots
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Thank you! I have looked into this topic- I clicked on every article and read them- it makes me think about thiamine deficiency being another symptom of celiac disease and all deficiency a component of celiac crisis. what is interesting about his Metabolic Ketoacidosis is that it’s not caused by lactic acid. also sometimes the anion gap is n...
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Artil reacted to a post in a topic:
Connecting the dots
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OMG. I have been looking FOREVER for a unflavored thing like this. this is INCREDIBLY HELPFUL. thank you 🙏❤️
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Artil reacted to a post in a topic:
Connecting the dots
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Artil reacted to a post in a topic:
Connecting the dots
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Artil reacted to a post in a topic:
Connecting the dots
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I should directly answer the enzyme question tho: my theory is that if the villi are damaged then all the enzymes are damaged and cannot function properly producing malabsorption- one cause of metabolic ketoacidosis is starvation (there are only three things that cause this 1.diabetes 2.alcohol 3.starvation) so in essence an undiagnosed person...
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Thank you! it’s been an insane struggle. I agree with both statements about the anti celiac sentiment and also perhaps skipping biopsy- I have grave concerns for waiting as he has been so sick. He had genetic testing done to look for mitochondrial mutations that could explain his constant (about every other month and becoming more frequent) metabolic k...
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After a horrible and scary 3 years of every two weeks in the hospital for fluids to correct metabolic ketoacidosis, seen by: nephrologist, gastroenterologists, Endocronologist, biochemical geneticist, allergy and immunology, and several more specialists, they all shrugged thier shoulders and said make sure he eats every 4 hours….they could not diagnose w...