Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Checks

Advanced Members
 View Profile  See their activity

  • Posts

    17

  • Joined

  • Last visited

  • Days Won

    1

Checks last won the day on September 2 2021

Checks had the most liked content!

1 Follower

  • cristiana

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

Checks's Achievements

Apprentice

Apprentice (3/14)

  • One Year In
  • One Month Later
  • Collaborator Rare
  • Week One Done
  • Dedicated Rare

Recent Badges

17

Reputation

  1. Checks
    You poor thing Ceslater yes it's so frustrating. I had also been told to continue having gluten so was feeling very unwell. My poor family, I was very hard to live with! And yes Cristiana you're dead right about IT issues and hospitals. I think I fell down a crack as our hospital was transferring itself on to the (spectacularly mis-named) EPIC system.
  2. icon cristiana reacted to a post in a topic: Waiting for two months on biopsy results
  3. Checks
    Ceslater am so sorry to hear about your situation and that of your daughter's. Yes I had blood done in Feb then biopsy May and didn't get results til September, ended up chasing through PALs patient liaison. My daughter is now diagnosed too, but purely on ttg blood test as her levels were really high .. keep pushing your hospital, it felt soul destroying...
  4. icon GodsGal reacted to a post in a topic: Waiting for two months on biopsy results
  5. icon GodsGal reacted to a post in a topic: Waiting for two months on biopsy results
  6. cristiana started following Checks
  7. icon cristiana reacted to a post in a topic: Waiting for two months on biopsy results
  8. icon cristiana reacted to a post in a topic: Waiting for two months on biopsy results
  9. icon Onegiantcrunchie reacted to a post in a topic: Waiting for two months on biopsy results
  10. icon Onegiantcrunchie reacted to a post in a topic: Waiting for two months on biopsy results
  11. Checks
    Thanks Onegiantcrunchie! Definitely looking forward to taking the next step and getting myself well again. Great to have found such a friendly and supportive group ☺️
  12. Checks
    Thanks Cristiana 😊 Yes definitely a huge relief, and just in the nick of time! I started back today but the first three days are training days, pupils go back next week. Most of the schools seem to be doing that locally here too although my children's school is a bit different and they started back today. Have just signed up for Coeliac Society, as you sa...
  13. icon Onegiantcrunchie reacted to a post in a topic: Waiting for two months on biopsy results
  14. icon cristiana reacted to a post in a topic: Waiting for two months on biopsy results
  15. Checks
    Hi everyone, thought I would let you know that I had a call from my Gasterentorologist in person today, she was really lovely - and very apologetic, as she confirmed that I do have Coeliac they found blunting of the villi. She did say that she was surprised that she hadn't had my results sooner, and that she felt really bad I'd had to persevere with the gluten...
  16. icon cristiana reacted to a post in a topic: Waiting for two months on biopsy results
  17. Checks
    Thanks Cristiana! Yes definitely relieved, and there's a part of me that's dying to know what my results actually are, although the blood tests and horrible reactions I have to gluten are convincing enough for me personally. I agree with you that it's likely due to Covid, with staff on other duties or isolating... there's definitely a staffing issue as PALs...
  18. Checks
    Thanks Onegiantcrunchie! The bone broth sounds really good, have ordered the beef one to try. Looking forward to saying goodbye to the various fun symptoms I've been having 🙂 Hope all well with you too!
  19. Checks
    Just thought I'd post an update (albeit a bit cryptic!) on this. So, after some to-ing and fro-ing between myself and PALs, I received an email today from the latter, telling me the Gasterentorologist has just received my results, that I can stop eating gluten and that they will be in touch with me as soon as possible to organise a clinic review.. Not quite...
  20. Checks
    Thanks Cristiana and Onegiantcrunchie! Will let you know how it goes.
  21. Checks
    I was surprised too when they said it (well, as surprised as you can be when coming around from the sedative!) I checked with the Coeliac Society and they did endorse the advice. Perhaps because of the scope limitations in hitting on patches of flattened villi which just so happen to have occurred in the area it can reach to? I really wish I had found the...
  22. Checks
    It's been a horrible experience, especially with the lack of information and support from the hospital/ GP, and my family are so frustrated with having to watch me do this. Now with school looming over me am starting to feel a bit desperate, but still hoping I can hear before September.
  23. Checks
    Thanks for explaining, Onegiantcrunchie. Agree definitely not helpful! I checked with the GP a few days ago and am waiting for phone consultation, but have also contacted PALS to chase up just in case it's some kind of clerical error somewhere. I keep thinking I'm going to have to stop the gluten, or reduce it if this carries on much longer. Like you, i have...
  24. Checks
    Hi, thanks for getting in touch and no worries, hope you are doing ok now. Did you manage ok with keeping the gluten going til you found out?
  25. Checks
    Thanks Cristiana, yes that's a good idea, will try going through PALS. Definitely worth paying that for peace of mind!
  26. Checks
    Hi Cristiana, Thanks for the swift reply, goodness 12 months overdue is staggering, hope you are feeling well and doing ok. Definitely highlights the plight of the NHS... Fingers crossed you get your follow up soon!
×
×
  • Create New...