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Ruu

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    Nutrition therapy, video games, meditation & self care
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    Bay Area, CA

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  1. icon HrcHrc reacted to a post in a topic: Diagnosed with celiac a little too soon
  2. icon Ruu reacted to a post in a topic: Diagnosed with celiac a little too soon
  3. Ruu
    Yes, I hadn't made my home completely gluten free because I wanted to wait for the biopsy results, so you're probably right. I did have a positive TTG-IGG test, however, and its my understanding NCGS cannot be detected by a test. My gastro said we may have caught it early.
  4. Ruu
    Update: I had my endoscopy last week and immediate went gluten free afterwards. I felt better for 4 days. I slept better, no waking up at 4 am anymore, but on the 5th day I became nauseous again on & off. Then my gastro contacted me and told me that the biopsy (10 samples) came back clear. No evidence of celiac and my stomach and duodenum looked healthy...
  5. icon Ruu reacted to a post in a topic: Diagnosed with celiac a little too soon
  6. Ruu
    No worries! And that's actually a good question... I read other people's experience on what the other 3-5% could be (like hashimoto) but I haven't found any studies on that. We definitely need some more research for autoimmune diseases.
  7. Ruu
    Hey, Onegiantcrunchie (lol). I am well informed on the purpose of the gluten challenge and endoscopy, but thank you for taking the time to explain for those who may be lurking. And no, my doctor was referring to the early stage of celiac where there is yet damage to be shown (damage from celiac doesn't just happen one day, it is progressive and damage...
  8. icon Ruu reacted to a post in a topic: Diagnosed with celiac a little too soon
  9. icon Ruu reacted to a post in a topic: Webinar September 30 - Intersection of Neurology and Celiac Disease
  10. Ruu
    I sent you a DM about my profession, I hope that's okay. I think phrased my question poorly. My gastroenterologist said that sometimes there is no damage shown in the biopsy (even with a positive blood analysis) which could mean early stage celiac, but this is not an actual diagnosis? Now that I am phrasing it this way it sounds like a question I can...
  11. Ruu
    Thank you for sharing your experience. No, I do not think foods are more important than my health. I can't wait to start eating gluten free, but I'm still waiting for my endoscopy. I'm in my early thirties now and I just hope there hasn't been any permanent damage (I doubt that since I've been diagnosed with osteoarthritis at 19, and no one cared to look...
  12. Ruu
    No, I am not a doctor. The information I was taught about celiac is accurate, but it wasn't enough information. It was a brief lesson on it. If there is no damage in a biopsy, however, wouldn't this mean that people are walking around undiagnosed? It seems to be that in order to be diagnosed with celiac, is must show on a biopsy. I'm in the US, by the...
  13. Ruu started following Endoscopies and Toasters (and Greetings!) and Webinar September 30 - Intersection of Neurology and Celiac Disease
  14. Ruu
    Yess! I get CEUs for this and it's relevant to me. Thank you!
  15. Ruu
    Agreed! Is there a test that detects early celiac before it gets to that point?
  16. icon Ruu reacted to a post in a topic: Diagnosed with celiac a little too soon
  17. icon BlackShoesBlackSocks reacted to a post in a topic: Diagnosed with celiac a little too soon
  18. Ruu
    Oh, the gastroenterologist explained it very well. There is a progression of celiac disease and in the earlier stages there's little to no damage, so it tends to get missed and people are misdiagnosed until later. My hesitation was with my general doctor who just went ahead and told me I had it without consulting a gastro first.
  19. icon GodsGal reacted to a post in a topic: Diagnosed with celiac a little too soon
  20. icon GodsGal reacted to a post in a topic: Diagnosed with celiac a little too soon
  21. icon Baguetteless reacted to a post in a topic: Endoscopies and Toasters (and Greetings!)
  22. icon Ruu reacted to a post in a topic: Endoscopies and Toasters (and Greetings!)
  23. icon cristiana reacted to a post in a topic: Endoscopies and Toasters (and Greetings!)
  24. icon Scott Adams reacted to a post in a topic: Diagnosed with celiac a little too soon
  25. Ruu
    Something good that came out from gluten free trend are all the substitutes! Same with keto, not more people with diabetes have more options. And now I am adding a glazed doughnut to my "goodbye" list.
  26. icon Ruu reacted to a post in a topic: Diagnosed with celiac a little too soon
  27. Ruu
    I felt the same way as you, questioning if I really have it. The longer I keep eating gluten, though, the more symptoms (and worse) I have. Its hard to say what will resolve on a gluten free diet, but I would say for most people a lot of issues resolve or improve. Are you planning to see a gastroenterologist? I recommend ruling celiac out/in if possible...
  28. icon Onegiantcrunchie reacted to a post in a topic: Diagnosed with celiac a little too soon
  29. Ruu
    I just saw my gastro and got an endoscopy scheduled in 2 weeks, so I am in the same boat as you. I asked if he could let me know if anyone canceled so I can be seen sooner; he said yes. You can maybe ask to be put on a waitlist, or call every morning to see if anyone canceled for the next day? In the mean time, I'm -trying- to enjoy gluten foods while I can...
  30. Ruu
    I just want to update for anyone who is interested: My gastro said that with elevated ttg-igg, presence of genetic factors for celiac, and current symptoms make him 95% confident I have celiac disease. I am scheduled for an endoscopy where he is going to take ~16 samples and observe the damage. I feel I am in good hands with someone as thorough as he...
  31. icon Scott Adams reacted to a post in a topic: Diagnosed with celiac a little too soon
  32. icon Scott Adams reacted to a post in a topic: Diagnosed with celiac a little too soon
  33. Ruu
    I just googled this real quick: https://www.beyondceliac.org/celiac-disease/non-celiac-gluten-sensitivity/gluten-sensitivity-testing/ Its concurrent with what I've been taught... even testing for wheat or other allergies is iffy and is used as a guide or starting point rather than the answer.
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