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Joan Bundtzen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Joan Bundtzen

  1. I think it's one of the most most missed diagnoses, and the science of it is relatively new--there are only about 20 experts around the country, like Dr Schievink at Cedars-Sinai, Dr Dillon at UCSF, Dr Kranz at Duke. I've written a journal article about it that I've submitted for publication and it has all the references that matter. I can send it to you...
  2. You might consider the possibility that you have a spontaneous spinal fluid leak--go to the website spinalcsfleak.org which is run by Dr Wouter Schievink at Cedars-Sinai in Los Angeles, an expert in the field. I've read about it because I probably have it and am undergoing imaging now--but it can present with symptoms all over the body, usually with a postural...
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