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Rogol72

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Rogol72 last won the day on June 13 2023

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  1. Rogol72 started following 1540 TTG Results... Help! , How many people here are aware that there are 9 types of gluten that Celiacs should be aware of? , Medicinal mushrooms 🍄 and 5 others
  2. icon Rogol72 reacted to a post in a topic: Medicinal mushrooms 🍄
  3. Rogol72
    Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form.
  4. Rogol72
    We've got plenty Tiernan's over here across the Irish Sea! I think anything will irritate an open wound in the skin. My dermatologist suggested Aveno moisturiser and E45 Emollient shower cream when she thought it was Eczema. I'm sure they will help during a dermatitis herpetiformis outbreak, or be the least irritating. Rinsing off after exercise should...
  5. icon Russ H reacted to a post in a topic: How to navigate living with dermatitis herpetiformis
  6. icon Scott Adams reacted to a post in a topic: How to navigate living with dermatitis herpetiformis
  7. Rogol72
    Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...
  8. Rogol72
    @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains.
  9. Rogol72
    I agree. PPI use long term is concerning. I believe a combination of PPI use along with a history of antibiotics for colds and sore throats led me to develop CDiff and Ulcerative Colitis shortly after a minor knee op. Lowering inflammation and bloating through diet can significantly help getting off PPIs in my experience.
  10. icon knitty kitty reacted to a post in a topic: Family education
  11. Rogol72
    @sillyyak52, If it makes you feel any better, I have a sibling who thinks the dinner table (at fine dining restaurants, and less formal pub grub settings etc.) is a personal buffet table and dips into the food of whoever is sitting beside or opposite to them just to get a taste (no plate is safe!) ... never asks for permission ... and has no consideration...
  12. icon Rogol72 reacted to a post in a topic: Family education
  13. icon knitty kitty reacted to a post in a topic: Family education
  14. Rogol72
    Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make...
  15. Rogol72
    Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case...
  16. Jean Shifrin

    Thank you so much for this helpful information!

    1. Rogol72

      Rogol72

      You're Welcome!

  17. Rogol72
    I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights. Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in...
  18. icon Rogol72 reacted to a post in a topic: Nausea and fatigue almost all day
  19. Rogol72
    Hey @itarachiu, Have you investigated any other Biofilm disruptor other than NAC?
  20. Rogol72
    Thanks @itarachiu, much appreciated. Great news that you finally got to the root cause of your SIBO/SIFO and the protocol is working. Are you using any liver support while taking the herbal antimicrobials? I suspect that I have a mild case of SIBO or SIFO/Candida as I get bloated after meals, especially after starchy carbohydrates ... in addition to histamine...
  21. icon Rogol72 reacted to a post in a topic: Nausea and fatigue almost all day
  22. Rogol72
    Hey @itarachiu, I'm interested to know what herbs you plan on taking to address SIBO / SIFO if you don't mind sharing that info.
  23. icon knitty kitty reacted to a post in a topic: Thiamine Thiamine Thiamine
  24. icon knitty kitty reacted to a post in a topic: Thiamine Thiamine Thiamine
  25. icon Blanco reacted to a post in a topic: 1540 TTG Results... Help!
  26. Rogol72
    Hi @Blanco, I think you should contact this dietitian ... https://www.bda.uk.com/find-a-dietitian/cristian-costas-batlle-london-united-kingdom-12490.html Specialising in Coeliac Disease, he may be able to assist you in pushing for an official diagnosis without the need for a biopsy. He knows everything about the diagnosis process in the NHS...
  27. icon knitty kitty reacted to a post in a topic: Celiac Disease Comparison to Diabetes
  28. Rogol72
    There's a great podcast on Spotify that I've found helpful. It covers a range of topics regarding adjusting to life with Coeliac Disease for both adults and children, with various guests including psychologists. There's a 4 part series on children with Coeliac Disease. Here's the first one ... https://open.spotify.com/episode/4xEJlfhC2Y4CEpJ2XSmVmF...
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