Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

Rogol72

Advanced Members
 View Profile  See their activity

  • Posts

    190

  • Joined

  • Last visited

  • Days Won

    3

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Rogol72

  1. Rogol72
    We've got plenty Tiernan's over here across the Irish Sea! I think anything will irritate an open wound in the skin. My dermatologist suggested Aveno moisturiser and E45 Emollient shower cream when she thought it was Eczema. I'm sure they will help during a dermatitis herpetiformis outbreak, or be the least irritating. Rinsing off after exercise should...
  2. Rogol72
    Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...
  3. Rogol72
    @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains.
  4. Rogol72
    I agree. PPI use long term is concerning. I believe a combination of PPI use along with a history of antibiotics for colds and sore throats led me to develop CDiff and Ulcerative Colitis shortly after a minor knee op. Lowering inflammation and bloating through diet can significantly help getting off PPIs in my experience.
  5. Rogol72
    @sillyyak52, If it makes you feel any better, I have a sibling who thinks the dinner table (at fine dining restaurants, and less formal pub grub settings etc.) is a personal buffet table and dips into the food of whoever is sitting beside or opposite to them just to get a taste (no plate is safe!) ... never asks for permission ... and has no consideration...
  6. Rogol72
    Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make...
  7. Rogol72
    Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case...
  8. Rogol72
    I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights. Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in...
  9. Rogol72
    Hey @itarachiu, Have you investigated any other Biofilm disruptor other than NAC?
  10. Rogol72
    Thanks @itarachiu, much appreciated. Great news that you finally got to the root cause of your SIBO/SIFO and the protocol is working. Are you using any liver support while taking the herbal antimicrobials? I suspect that I have a mild case of SIBO or SIFO/Candida as I get bloated after meals, especially after starchy carbohydrates ... in addition to histamine...
  11. Rogol72
    Hey @itarachiu, I'm interested to know what herbs you plan on taking to address SIBO / SIFO if you don't mind sharing that info.
  12. Rogol72
    Hi @Blanco, I think you should contact this dietitian ... https://www.bda.uk.com/find-a-dietitian/cristian-costas-batlle-london-united-kingdom-12490.html Specialising in Coeliac Disease, he may be able to assist you in pushing for an official diagnosis without the need for a biopsy. He knows everything about the diagnosis process in the NHS...
  13. Rogol72
    There's a great podcast on Spotify that I've found helpful. It covers a range of topics regarding adjusting to life with Coeliac Disease for both adults and children, with various guests including psychologists. There's a 4 part series on children with Coeliac Disease. Here's the first one ... https://open.spotify.com/episode/4xEJlfhC2Y4CEpJ2XSmVmF...
  14. Rogol72
    Totally agree. A type 1 diabetic with good blood sugar control can generally eat whatever they want. We can't slip up or let our guards down ever.
  15. Rogol72
    We Coeliacs can suffer from nutrient deficiencies relatively easily, years after healing our guts with strict adherence to the gluten free diet. Even more so if we eat more meat than seafood or restrict because of fear of food or past bad experiences. Maybe engaging with a functional medical practitioner as an adjunct to your regular doctor. Coeliac...
  16. Rogol72
    I think there is a connection between Coeliac, Thyroid and Histamine Intolerance. From what I've come across, optimal levels of TSH are between 1.8 and 2.25 ... the reference range on my lab is 0.35 to 4.95.
  17. Rogol72
    Folks, Just wondering if anyone knows what the optimal level of thyroid blood markers for a healthy Thyroid are? I know there's a link between Coeliac and Thyroid issues. I've noticed a downward trend in TSH and T4 over my last few blood tests .. 1.08 and 12 respectively. Thanks in advance for your responses.
  18. Rogol72
    Fellow long term dermatitis herpetiformis'er here. If I take my eye off the ball regarding Vitamin D supplementation and let it slide, then my skin becomes more reactive ... itchy but not blistering ... even though I'm strictly gluten free. I can't handle any gluten-free grains or rice. Nuts, seeds and dried fruit are a no go for me also, and I don't consume...
  19. Rogol72
    I had a coeliac panel last year to see if any sneaky gluten was getting into my system, the ttg result was 3.1. I had another done last week, and it came down to 1.7.
  20. Rogol72
    I agree with trents. I believe you can have DH with negative bloods. I was on Azathioprine for UC at the time I was diagnosed with DH, and partially eating gluten free to treat the UC. I don't recall if a Coeliac panel was conducted. From what I understand the Coeliac antibodies in the blood are TTG2 while the skin antibodies are TTG3. Rather than going...
  21. Rogol72
    If he suspects DH, then I don't see why you haven't been referred to a Dermatologist for a skin biopsy to confirm or rule out DH. It could be some other skin condition similar to DH. As shadycharacter said, you can have a negative blood test for Coeliac Disease and a positive skin biopsy for DH as they're two different antibodies.
  22. Rogol72
    If it's suspected Dermatitis Herpetiformis and the itch is that bad, you should be referred to a Dermatologist for a skin biopsy ASAP to either confirm or rule out DH. I have DH and the itch can be terrible. A blood test won't confirm DH, only a skin biopsy will. A positive diagnosis for DH is a positive diagnosis for Coeliac Disease according to the dietitian...
  23. Rogol72
    I think we can all identify with feeling isolated having an autoimmune disease, even more so with multiple autoimmune diseases. You're not alone. I would suggest looking up some podcasts on Spotify for inspiration and motivation. There's a bunch of them there from fellow Coeliacs. Some titles to look out for ... "Eat Gluten Free with Me" ... pretty...
  24. Rogol72
    Great idea to get a compounding pharmacist on the case. Hope they can come up with something for you.
  25. Rogol72
    I hear ya. I can't ever take NSAIDS because of UC. I took Panadol for a day or two for a bad cold that was going around a few months ago. I felt like I ate a few crumbs of bread, checked the ingredients before and after taking them and it only says maize starch. I react to any OTCs that contain maize starch such as antihistamines. https://www.coeliac...
×
×
  • Create New...