Rogol72
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Rogol72
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Hey @MiriamW. I'm going to hold off on the Fulvic minerals for the time being but thanks for letting me know about Victoria Health. I'm using Virdian Trace Mineral Complex and their Organic Mineral Complex. Incidentally, I was looking into the ingredients in the Organic Mineral Complex (I emailed them about the iodine content) ... one of them is Horsetail...
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@Ginger38 ... I agree with @Scott Adams and @knitty kitty about the AIP diet. I follow the AIP diet most of the time because I have trouble with nuts, seeds, gluten-free oats, dairy and nightshades. Dairy is just as bad as gluten for some Coeliacs. Eggs don't seem to bother me at present though. It's not a forever diet, just until your body heals, and your...
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Dr. Dinezza (another coeliac ND)... she explains in a 4 part video series the mechanism of histamine intolerance as it relates to mast cells in a visual manner, which is what I like being an engineer.
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Beware Shelled Nuts
Rogol72 replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
I was on a webinar last year by the Dietitian with the Coeliac Society of Ireland. A question was raised in the Q&A at the end of the presentation about the safety of plain frozen veg. I recall her saying that in the past flour was used to prevent frozen veg from sticking together, probably many many years ago but that's not the case any more. -
We're on the same page ... I was referring to fulvic and humic acid to educate myself about them, but subsequently if you or anyone has tried these trace mineral products ... https://www.traceminerals.com/. I believe the trace minerals come from ancient salt deposits in Utah (which may be polluted?). I use himalayan salt in food also, but never felt...
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@MiriamW, Just wondering, have you heard of Fulvic and Humic minerals? I've come across them lately in an interview with the founder of Beam Minerals ... https://www.beamminerals.com/ I also discovered a Canadian company called Activation products, the founder Ian Clark has an interesting story ... https://shop.activationproducts.com/ I'm looking...
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Possible Symptoms of Celiac?
Rogol72 replied to Seethefacts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Does getting iodine this way affect your DH in any way? -
Is There Gluten In Soft Drinks?
Rogol72 replied to Lynxear's topic in Gluten-Free Foods, Products, Shopping & Medications
I had a Fanta Orange in a pub for the first time in years this summer. I reacted to it, skin started itchnig. Don't know what the offending ingredient was and haven't bothered to investigate. -
Does your DH change? How do you cope with DH?
Rogol72 replied to Arietti's topic in Dermatitis Herpetiformis
@Arietti, I wasn't aware that NSAIDS are linked to DH but it wouldn't surprise me, since upon my UC diagnosis my gastroenterologist said to avoid NSAIDS as they can cause UC flares. It was a sudden ichty eruption of what appeared to be eczema on my back, which was biopsied when steroid creams didn't clear it up. No idea how many biopsies, but probably... -
Does your DH change? How do you cope with DH?
Rogol72 replied to Arietti's topic in Dermatitis Herpetiformis
@Arietti, My celiac disease diagnosis was by skin biopsy for DH. I get it on my elbows pretty bad if I'm not careful, on the knees, backs of the knees and hips. I'm trying to figure out what my threshold for iodine consumption is since we need it for thyroid, and coeliacs are prone to thyroid disease! I know my triggers, I thought it was the teabags... -
thoughts on juicing?
Rogol72 replied to LaLeoLoca's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey @LaLeoLoca, sounds like you're having a really tough time. I saw you're previous posts and see that you have UC. I empathise with you cause I also have UC, in remission for years thankfully. Personally, anytime I tried juicing it didn't sit well with my stomach, but I was an undiagnosed Coeliac at the time. Juicing can raise blood sugar which is not good... -
Hi @MiriamW, I've had UC since ’02 caused by C.Diff. It’s been in remission for years. UC later led to celiac disease/DH. I did the juicing thing for a while before celiac disease/DH diagnosis. Maybe I’ll get back to it sometime. I’ve looked at Steven Gundry’s stuff on youtube. I like his ideas on plant lectins which I avoid. I’ve never tried quercetin, ...
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Thanks for that tip @MiriamW, much appreciated. I have DH, the skin version of Coeliac Disease but my gut and brain also take a beating from it!! At the moment, I only eat sweet potatoes most days as I'm mostly on the AIP diet (for UC also) which excludes nightshade vegetables. I try potato once or twice a year, but too many and my stomach is sore the next...
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@MiriamW, If you wish to geek out on nutrition, allergies and all things Coeliac related, check out Dr. Robert Pastore's podcast. He's a Phd Clinical Nutritionist who's worked with some top Coeliac experts in the US. I've found some of the topics very educational. He's a Coeliac with DH and a severe dairy allergy. Here's an episode on Lactose Intolerance...
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I hear ya @MiriamW. As I understand it, gluteomorphins and casomorphins result from the breakdown of gluten and dairy proteins in the gut. They both have an opioid like affect on our brains, that's why bread and cheese are so addictive! So I do believe they apply to sheep's and goats products also. Maybe @knitty kitty who is more knowledgeable about microbiology...
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I’m 12 years on this journey @MiriamW. Some things are easy to deal with, others not so much. We persevere though! It’s the casomorphins in dairy that make it so addictive. And it’s highly inflammatory. You might benefit from the AIP diet for a while to heal your stomach. Knitty kitty is a big advocate of AIP and I agree, it helps to stop the reactions and h...
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@MiriamW, I can't tolerate dairy ... and stay away from it, though I fall off the wagon occasionally! It gives me brain fog (histamine), gurgling stomach and my skin starts itching. At present I follow the AIP diet 80-90% of the time. Just fruit and vegetables ... the freshest meat, lambs liver, poultry and fish possible ... and I'm making progress fixing...
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No problem @MiriamW. The Warburton's bread seems to have less ingredients likely to cause issues ... https://www.warburtonsglutenfree.com/products/supermarkets/white-loaf Regarding thinning hair, I've read that deficiencies in Zinc, Selenium and Iron can cause this. I've always had thick hair, but many years ago I noticed it going thin (at the Barber...
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You're welcome @cristiana, really nice pub/restaurant. A good find so had to share.
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Getting a little off topic here but I'll share anyway. I don't eat gluten-free bread any more, but I attended a wake for a friend in the UK this time last year. A day trip from Cork to Heathrow and back. The staff at the pub/restaurant were incredible, it was a bufffet/finger food. I contacted management prior and made it known I was a sensitive Coeliac....
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More info about Vitamin Deficiencies
Rogol72 commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
I don't envy you @Charliexxx doing the gluten challenge. Hope you get through it. Good to see that you're still smiling!! If I had to do the gluten challenge, it would feel like I've eaten a bowl of broken glass, literally ... or my intestines were used in a tug of war. I'm curious what was the private test you used to test your copper levels? Is it... -
Went back to the optician to get me reading glasses, we discussed Blepharitis again ... he said it's caused by a bacteria imbalance in the eyelids. He said it's just a matter of managing it carefully. I'm wondering if a good probiotic would help correct that bacterial imbalance?
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Need help I don’t what’s going on
Rogol72 replied to Marissa221's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree 100%. I keep a food diary most of the time ... I use the Reflection app on my Macbook.