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Rogol72

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Rogol72

  1. Rogol72
    There are other conditions that may cause itchy skin that can coexist with DH ... Iron Deficiency/Anemia and underactive Thyroid, these can be easily missed or overlooked. https://www.usdermatologypartners.com/blog/getting-rid-of-itchy-skin-with-no-rash/ Iodine does exacerbate DH, I can attest to that.
  2. Rogol72
    Congrats @MADMOM ...well done! Just goes to show you hard work and diligence really does pays off. @Kate333, that's really impressive to get G antibodies so low. Mine were at 3.1 a year ago, more motivation to get even lower now!!
  3. Rogol72
    No many would think of this but that's a great catch. Well done. Hopefully, it's the source of your problem.
  4. Rogol72
    Having a cheat day is never ever worth it. The longer you are off gluten, the more sensitive you become to smaller amounts. I've gone to a Dietitian at the hospital where I was diagnosed with DH, and the Dietitian affiliated with our Coeliac Society. They do offer good advice, however they don't know everything and it's better to speak to a dietitian...
  5. Rogol72
    Is there any risk of hookworm infection getting out of control? How many are administered for each treatment? Have you had your TTG levels tested after treatment? Sorry for the questions, but this is fascinating ... i've got UC in remission, celiac disease and DH.
  6. Rogol72
    A cautionary tale about supplements and medications. I recently came across a calcium supplement Kalcipos at my local pharmacy. I looked at the ingredients and it seemed to be gluten free but had Maltodextrin in it. So I emailed the manufacturer/distrubitor and asked if there was gluten and/or what the maltodextrin was derived from. Sure enough, they replied...
  7. Rogol72
    @Tyler2022, Here's a home Coeliac test you can get in the UK ... https://www.letsgetchecked.co.uk/home-coeliac-test/ You should be able to get a Coeliac blood test on the NHS which would be better. I would strongly advocate for one based on your symptoms. https://www.nhs.uk/conditions/coeliac-disease/diagnosis/ With regard to the endoscopy...
  8. Rogol72
    I don't know whether you can get gluten from dog food, but what you're describing is plausible. Are you consuming any excess iodine in your diet or from supplements? Iodine causes DH to flare. In the past, my DH has flared from too much iodine in my diet.
  9. Rogol72
    You're welcome. I'm glad it's worked for you. People with DH are generally more sensitive to small amounts of gluten that most Coeliacs.
  10. Rogol72
    Hey @statguymark, Welcome! Dapsone is a double edged sword. It does actually work very quickly depending on the dosage, within a few hours to 24 hours depending on how active your DH is. I believe it only stops the itch from an active DH flare up. The TTG antibodies will still remain in your system/dermis until they dissipate over time with a strict...
  11. Rogol72
    I've heard that adage before and it is true!! Thank you so much for the encouraging words. It's been a very frustrating week. I've been eating Beetroot and Radishes every evening in a salad which are high nitrate foods ... so I guess the nitrate load caught up with me, I'll try something else.
  12. Rogol72
    @knitty kitty, One other question, I also tried some bacon rashers two days in a row for breakfast. Between watching histamine foods, avoiding excess iodine and not being able to handle gluten-free oats, it's hard to find something filling to eat for breakfast! Here's the ingredients ... Irish Pork (88%), Water, Salt, Preservatives (Sodium Nitrate,...
  13. Rogol72
    Thanks for this! I was curious about other people's experience on AIP and yours sounds all too familiar to me. It was homemade potato salad with new potatoes (skins on and chopped) and Hellman's Mayonnaise which contains paprika extract. I've read that the skins on potatoes have the most alkaloids. Nightshades are just as evil if not more than gluten! They...
  14. Rogol72
    How long did it take you to heal on the AIP diet? Were you ever able to introduce nightshades? I tried potato salad this week, it was a very unpleasant experience.
  15. Rogol72
    I agree. The knowledge of the Admins and Mods here is incredible. Thiamine is a big one as it's hard to for Coeliacs to get it in sufficient amounts from food. I was taking 200mg of Magnesium Glycinate which kinda worked but since cranking up to 400-500mg daily in split doses, that has really helped. Hope you feel better soon.
  16. Rogol72
    I think Dairy and Soy are the main ones. Some Coeliacs can't tolerate certified gluten free Oats. Corn and eggs can also be problematic.
  17. Rogol72
    I wouldn't take what those test results say as gospel, more so as an indicator. I think you would be better served by keeping a food diary throughout the day to see how you react to certain foods. You can't exclude everything, so maybe just excluding foods that register a severe reaction or the heavy hitters that are common in most Coeliacs. If your vitamin...
  18. Rogol72
    I can confirm that dietary iodine does exacerbate DH along with omega 3 fish oil and cod liver oil ... it causes random pin pricks on the skin and itching. Here's a case report ... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6698721/
  19. Rogol72
    @Cramper, The moderators here (all Coeliac) are excellent and may offer better advice. First of all it is definitely worth pursuing a definitive diagnosis of Coeliac Disease either way if you can relate to being "glutened", as you may have Non Coeliac Gluten Sensitivity. However, you mentioned mucus and foul smelling with flatulence above which caught my...
  20. Rogol72
    That's really impressive. Well done!! My TTG levels last year were at 3.1, though I'm not sure what my IGA levels are. Time to get it checked again.
  21. Rogol72
    I'm a long time DH'er, 10+ years. The first and really only clue was the sudden onset of a rash on my back that itched like crazy which my Dermatologist thought was Eczema. Steroid cream did not help at which point a skin biopsy for DH was taken and came back positive. A subsequent intestinal biopsy via endoscopy was negative for Coeliac Disease! A definitive...
  22. Rogol72
    The Canadian Coeliac Association have a very informative webinar on DH. It can be associated with Thyroid Disease or Type 1 Diabetes. https://www.youtube.com/watch?v=PAdmsNiyfOw
  23. Rogol72
    I'm wondering if there is a genetic test that can identify how well a person metabolises vitamins and minerals? You could then tailor your supplementation to those needs to hit the sweet spot without over or under doing it and saving some money at the same time! For example, I can maintain a healthy Vitamin D level at the upper RDA with a relatively low dose...
  24. Rogol72
    Speaking from experience, Flagyl is a really nasty antibiotic. It leaves a metallic taste in the mouth hours after taking it, wipes out the gut flora! I have found that being consistent with taking supplements is the only way to get well combined with a strict gluten-free diet and lots of patience ... at least in my case! Even trace amounts of gluten getting...
  25. Rogol72
    Yes. If I get cross contaminated badly enough I get them. Like sudden sharp stabs out of nowhere, in the bottom right quadrant of my stomach. Also had them when I was consuming gluten-free breads and pastas.
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