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Rogol72

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Rogol72

  1. Rogol72
    If anyone is interested, here's an interesting webinar from ITL Health on the importance of Magnesium in relation to food intolerances, histamine etc. ... www.youtube.com/watch?v=NYeuSw86bzk
  2. Rogol72
    So is it best to take Thiamine and Magnesium Glycinate at the same time or can they be taken a different times? Magnesium Glycinate at night for example or between meals as it has a relaxing effect!
  3. Rogol72
    Thanks. Those brands are available on Amazon.co.uk, though they ship from the US. iHerb.com ship to the EU. I've used Magnesium Malate and Glycinate in the past, Glycinate was more beneficial. I'll try Magnesium Citrate this time around.
  4. Rogol72
    Update: After taking 4 x 100mg Solgar Thiamine HCL for 4 days now I can definitely feel a big improvement. Clearly the 300mg to 400mg level is the therapeutic threshold to see benefits. Thanks for the suggestions folks. Much appreciated!!
  5. Rogol72
    There's a very good casual webinar with a clinical psychologist by the Coeliac Society of Ireland titled "Minding your mental health – how to meet the psychological challenges of coeliac disease" on youtube. There may be some gems of information there that may be helpful.
  6. Rogol72
    The link to the video is at the bottom of this article at ... "Source: vimeo.com" or paste ... vimeo.com/486284734 ... into your browser address bar. You have to advocate for yourself with regard to your family, hard as it may be when you don't feel your best. I've had to be quiet blunt with some of my folks, but they get it now.
  7. Rogol72
    Is there any brand of Benfotiamine that is preferable? Or are they all more or less equal?
  8. Rogol72
    @Posterboy, I have DH and am on Dapsone as needed to control it. I've made several unsuccessful attempts to get off it. I have normal blood sugar but a HA1C in the low 20s, a side effect of Dapsone. I think it's time for Benfotiamine!
  9. Rogol72
    Getting to grips with reducing/controlling histamine is the final piece of my puzzle! I'm emptying my histamine bucket! The brain fog and agitation it causes is no fun at all. I took Niacin 50mg a few months ago for a few days but the flushing was too much. Since then, I've been concentrating on getting polyphenols into the body so as to build up levels of...
  10. Rogol72
    I'm a little confused because I've read in some sources that Niacin causes the release of histamine, so does it trigger the release of new histamine or just that it flushes (in the case of Niacin) out the existing histamine built up in the body?
  11. Rogol72
    Hey Liam R, Yes, I had dyspepsia a few years ago and managed to fix all my issues by myself through research and with the help of a functional nutritionist who is also a qualified nurse. She prescribed me some herbal remedies which really worked. I was having some acid reflux issues, went for an endoscopy and the doctor diagnosed dyspepsia, with some...
  12. Rogol72
    Yes! I've experimented a lot with different foods, supplements to see what does and does not work for me. I brought up the hiatus hernia discussion because A) Liam R reduced his from 6cm to 2cm which was a great result and B ) My gastroenterologist previously stated that they can go away sometimes ... not so sure about that, a discussion for another time...
  13. Rogol72
    I'm curious, did they say how or why the hiatus hernia reduced from 6cm to 2cm? I 'm asking because I have a HH also.
  14. Rogol72
    @Liam R, I'm not in Yorkshire but Ireland, 12 years on this journey. I've had terrible brain fog and recovered from it, all down to nutritional deficiencies, additional food sensitivities and histamine overload. Hats off to you for hitting the ground running post diagnosis! I would ditch the rice and potatoes as Wheatwhacked and Knitty Kitty said. It...
  15. Rogol72
    Personally, I wouldn't trust it or take a chance. I don't know what the Certified gluten-free Symbol is in the US, but over here in Europe certified gluten free products have the cross grain symbol with the country of origin and a "licensed to used" certification code printed on the packaging. Some companies use the cross grain symbol without the license...
  16. Rogol72
    Great info. Thank You. At a follow up appointment with my functional practitioner, she said to focus on get plenty of polyphenols because they feed the "keystone bacteria" in the gut ... Akkermansia Muciniphila and Faecalibacterium prausnitzii. After a few weeks of a kale and berry smoothie every morning, I can feel a big difference and histamine issues are...
  17. Rogol72
    Thanks @Scott Adams. From what I gather, some adults with Type 2 go on to develop LADA ... Type 1.5 as they call it ... in fact they really had LADA in the first place but were diagnosed as Type 2 since the antibody test is not the standard Diabetes test for adults. Development of LADA seems the be a slow process.
  18. Rogol72
    I guess that's why it forms on the hips, from the pressure of clothing ... elbows and forearms if you're working at a desk all day long. I've got the scars!
  19. Rogol72
    I think you may be on to something with the Coconut. Coconut oil affects me, it's subtle but I can tell ... Coeliacs with DH seem to be more sensitive that the average Coeliac. Tilda make a gluten free steamed rice with desiccated coconut .. no good. I've also tried a gluten free coconut milk mixed in with home cooked basmati rice about a year ago, no...
  20. Rogol72
    I react badly to soy and potato starch, both send me into a tailspin ... agitation for 5 or 6 hours and then I recover once it's passed through my system. I've got DH, so I get the telltale random pinpricks all over my skin when CC'd. I've removed all grains, nuts, seeds and anything in a packet basically. I stay away from anything that has starchy binders...
  21. Rogol72
    Thanks @Posterboy and @knitty kitty, All great info. I'll certainly look into it. I came across a very interesting article about SIBO and the connection to Sulfur ... https://www.metagenicsinstitute.com/pulse_patrol/plp-eps-5-sibo-sulfur/ ... in it they discussed how we Northern Europeans may not deal with sulfur very well in the absence of...
  22. Rogol72
    The Thiamine HCL has made a difference, I feel more alert. Benfotiamine is not readily available in Ireland, got to get it from the UK. Caffeine of any description does not agree with me, tea or coffee or chocolate etc ... I get really agitated from it ... even decaf is not safe, must be the tannins in tea. I test certain foods out every now and then. I had...
  23. Rogol72
    I'm taking 100mg of Thiamine HCL three times per day. How much Benfothiamine and/or Allithiamine is recommended per day?
  24. Rogol72
    Hey Folks, Does anyone know if there is any prevalence or a likelihood of developing LADA when you have Celiac Disease? I know having one autoimmune condition raises the risk of developing another. Just keeping an eye on the blood sugars at the moment ... the education never stops! There appears to be lots of info on Type 1 Diabetics developing...
  25. Rogol72
    Thanks @Wheatwacked, it's the histamine issue that I'm working on addressing at the moment. That's what got me thinking about methylation and I suspect I have the MTHFR thingy going on. Everything else is fine. Bananas though seem to give me a histamine reaction. Yes, potassium intake could be better, and Vitamin E since I don't tolerate nuts.
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