Ginger38
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Scott Adams reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Shingles - Could It Be Related to Gluten/ Celiac
Ginger38 replied to Ginger38's topic in Related Issues & Disorders
Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ... -
Scott Adams reacted to a post in a topic:
Shingles - Could It Be Related to Gluten/ Celiac
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Scott Adams reacted to a post in a topic:
Challenges eating gluten before biopsy
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Xravith reacted to a post in a topic:
Challenges eating gluten before biopsy
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Shingles - Could It Be Related to Gluten/ Celiac
Ginger38 replied to Ginger38's topic in Related Issues & Disorders
It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away -
I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
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I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry. But Developing s...
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So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few. I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If t...
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Ginger38 reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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I also had high eosinophils which I’ve never had before either - could that be due to gluten consumption?
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So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done...
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Beverage reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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Zuma888 reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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Zuma888 reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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knitty kitty reacted to a post in a topic:
Confused About Results
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Scott Adams reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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Thank you ! Good to know I am not alone. I am currently on metformin and rybelsus for my diabetes. The last week or so my sugar has been so uncontrolled, more so than before. I am very frustrated and discouraged by all this. I have had days of 317 to a low of 64. I feel terrible. I am getting back on the gluten free wagon, just taking some time, and not seeing...
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Confused About Results
Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. I appreciate it -
Ginger38 reacted to a post in a topic:
Confused About Results
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Ginger38 reacted to a comment:
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
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Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes...
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Ginger38 reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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I have posted a lot on here and find that the support , advice and information here is much more helpful than anything else.. ever. I am really tired of the back and forth advice in the medical community and I am beyond frustrated and over all of it currently. I will try to keep this as brief as possible. I have positive TTG IGA antibodies - and I have...
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Confused About Results
Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes... -
I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge
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Confused About Results
Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise. I have started having palpitations and chest pain, both of which seem to be...
