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Ginger38

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Ginger38 last won the day on September 19 2024

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  1. icon Zuma888 reacted to a post in a topic: Confused About Results
  2. Ginger38
    Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise. I have started having palpitations and chest pain, both of which seem to be...
  3. icon Scott Adams reacted to a post in a topic: Confused About Results
  4. Ginger38
    Yes the journey here has been a long one. Is there any reason to continue to check blood antibody levels in the future? mine had not gotten to negative or zero yet . Thanks for all the great information! I will check out these supplements and hopefully start feeling better !!
  5. icon Ginger38 reacted to a post in a topic: Confused About Results
  6. Ginger38
    Thank you! This is helpful and validating, which is nice. I am so tired of gastrointestinal issues and feeling poorly. Obviously my immune system is freaking out and seeing gluten as a foreign invader… and I feel like I’m just trying to doctor myself all the time but I did wonder if it was all indicative of pre celiac or something like that. I haven’t g...
  7. icon Ginger38 reacted to a post in a topic: Confused About Results
  8. Ginger38
    Hi! Thank you, this is the most validating information I have had shared with me. I wondered if all this was indicative of pre-celiac or just celiac that hasn’t caused damage. It’s been a long road with all this and I am burnt out on dealing with it all. And I am beyond tired of gastrointestinal issues and feeling poorly. I have had major improvements on ...
  9. icon Ginger38 reacted to a post in a topic: Confused About Results
  10. Ginger38
    Thank you 😊 Yes this whole process has been very frustrating! I didn’t think NCGS caused positive TTG-IGA antibodies? I thought NCGS was just a sensitivity but doesn’t cause ab autoimmune reaction which is what raises the antibody levels, correct? A formal diagnosis would have been so much easier for me as far as dealing with family and functions and fo...
  11. icon Ginger38 reacted to a post in a topic: Confused About Results
  12. Ginger38
    I forgot to add that my gastro doc was 💯 sure I had celiac and finally convinced me to do the gluten challenge which was TERRIBLE… I gained like 9 pounds and was so bloated and swollen and in pain.. all because he felt I needed this diagnosis.. which in the end I didn’t get .. It’s been frustrating. And I don’t understand why my body is throwing out antibo...
  13. Ginger38 started following Confused About Results
  14. Ginger38
    I have positive Ttg-IGA antibodies- and I have every time they have been checked. Also the antibodies do respond positively to a gluten free diet. However my biopsy showed no damage and my doc said it all looked okay in there. How does this happen and What does this mean??
  15. icon Scott Adams reacted to a post in a topic: Shaking/Tremors and Off Balance
  16. Ginger38
    I had positive TTG - IGA antibodies. Is the marsh scale something that is automatically done when they do the biopsies or how does that work? And how many biopsies should the doc have done for pretty accurate results?
  17. Ginger38
    Thank you so much and thanks for all this good information! I’m glad I survived as well. It was rough! I already feel lighter or something and the bloating is so much better as well as the leg and feet swelling.
  18. icon Ginger38 reacted to a post in a topic: Shaking/Tremors and Off Balance
  19. Ginger38
    Thanks for the info, that helps me understand all this a little better. My GI doctor has already told me that regardless of the biopsy results he believes I have celiac and either way I have to live a dedicated gluten free life as a celiac
  20. Ginger38
    So what happens if a person doesn’t have any damage yet? The biopsy would come back negative, correct? But does that mean you don’t have celiac or it was just caught before any major damage has been done? Im A bit confused
  21. Ginger38
    I agree there is definitely something going on. I am having a terrible time with anything tomato, cucumbers, salad .. it’s like I’m not digesting my food. And it seems like my body does not like most all grains if any. I’m out of ideas on what to even eat to get to feeling better. I am so bloated right now, have to wear leggings - and I’ve also gained almost ...
  22. icon Ginger38 reacted to a post in a topic: Shaking/Tremors and Off Balance
  23. Ginger38
    Thank you so much!! Me as well, my family doesn’t believe me And it is so frustrating Will do! Hoping for some definitive answers! My family doesn’t believe me and I wouLd love to have definitive proof
  24. icon Ginger38 reacted to a post in a topic: Shaking/Tremors and Off Balance
  25. icon Scott Adams reacted to a post in a topic: Shaking/Tremors and Off Balance
  26. Ginger38
    Yes it was successful , have a really bad sore throat and some abdominal pain / gas but guess I’m okay. He took several biopsies of my duodenum, stomach and colon
  27. Ginger38
    Procedures are done , thank goodness
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