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Hellokittez

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Hellokittez

  1. Hellokittez
    I was exposed to horrific levels of black mold as a child. The exposure was so bad that I was coughing up blood daily and was violently ill 24/7. After the exposure I discovered that I had developed severe celiac disease, turned out that my father, sister and half sister likely had it, so there is a genetic component. My mother recently started showing...
  2. Hellokittez
    I think that's a great idea! Just I beg you, please don't do what everyone else does and put potato, walnuts, or even mushrooms in it. (I found mushrooms in a chocolate bar once.🤢) You might want to check into the name wookies though and make sure there won't be any legal backlash from Disney and those that own Star Wars. (From what I understand Disney ha...
  3. Hellokittez
    We still aren't sure. I have had erratic bleeding for a while and the doctors haven't been able to find anything conclusive, so it has been a rather puzzling mystery to say the least. We know there is something and we know it causes bleeding, but around here, unless it is textbook the doctors have no clue.😩
  4. Hellokittez
    I also wanted to note that I tried some of the Hersheys heath mini bars, also labeled with the same type of gluten and allergen free statement as on the brookside chocolate bag and became sick from those as well. I am certain it was a gluten reaction, as it was one that included symptoms I only have when glutened.
  5. Hellokittez
    So I wanted to post and warn everyone, since social media my post and the company ignored me. I discovered that Hersheys Chocolate Company has been lying to celiacs, the gluten free and those with allergies. I first discovered it with their brookside dark chocolate pomegranate bites. I was eating them to help with cravings, as part of a new dietary plan...
  6. Hellokittez

    So for those of you who read my topic question, the pcp, gynecologist and gastroenterologist all ran and are still running tests.  The gyno says everything seems fine and wants to start hormone therapy even though we still don't know what it is (that seems to be the answer for everything😑.)  I hate that it is so acceptable for a doctor, or specialist to just start prescribing things without even knowing what something is!  I like my gyno, but I am so dang frustrated!  The PCP had zero ideas and no way to test for them and told me to go visit the gyno and the gastro.  The gastro did a celiac panel and it all came back negative, he did a few other tests and they didn't come back with much, but he is hung up on selling the diagnosis of constipation before he has even finished testing and I have a feeling that he is not going to let that one go, even if we find something else.  The problem is that I kept trying to tell them that the constipation was a secondary issue and it comes and goes with little effect on the problem at large.  Of cou...

  7. Hellokittez
    So to update I have been set up for several tests, have been to the er twice waiting to get to appointments and finally managed to see a gyno specialist and then another one whom I found I trust the judgment of a lot more. They are putting me on progesterone to stop things and hopefully control some of the bleeding until we get a better handle on things...
  8. Hellokittez
    Honestly I think it's just doctors personal bias getting in the way at that point. I had several tell me that I was just stressed, or it was all in my head, even after I kept vomiting from the celiac killing my gallbladder and my skin turned yellow. I finally recieved a solid diagnosis of gallbladder disease and they were all like "oh" so she really wasn...
  9. Hellokittez
    I am actually referring to the tumor and the celiac disease. I was wondering if they have any kind of direct connection. I know that when I get glutened it causes pain with the tumor, but beyond that it's kind of a mystery and a curiosity to boot.
  10. Hellokittez
    Okay so I wanted to start by saying that I am new to the group, but not to celiac disease. I had all the failure to thrive growing up (when I was a newborn the doctors actually accused my mother of starving me. You can bet that didn't go over very well.) There was also the lack of appetite, my growth was permanently stunted and I actually developed a form...
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