angel-jd1

*Veggies and Ranch dip

*gluten-free cookies (I like glutino better than pamela's, but they are more expensive)

*gluten-free mini waffles and syrup

*pudding cups and plastic spoons

* Chips and salsa

*nuts

*fresh strawberries and reddi whip

-Jessica

Well I can't say that you will ever have to stop reading labels. I also can't say that people will ALWAYS get it. But you will become more accustom to reading labels and more used to putting up with "stupid" people!! ha

Here soon you will learn to rattle off a speech to them so that they can become educated on Celiac. You won't even think twice when they don't get it. Just HELP them "get it". I find that easier than expecting them to do it on their own.

Label reading is tricky. I find it best to call the companies myself. That way I am for sure if a product is safe for me. Someone on the board may say that they called and it is safe. I will then go ahead and call on my own just to verify for my own info. I feel safer that way. (maybe obsessive, but hey it's my health )

It gets easier with time.

-Jessica

I agree, Kraft is awesome. I feel very safe when I pick up their products. I don't have to second guess them. I LOVE KRAFT!!!

-Jessica

Hang in there. Are you having anxiety just from not being sure of what to eat?? Do you have stress somewhere else in your life right now? I guess I am not sure what you mean by anxiety.....

My great grandma always says "this too shall pass". Keep your chin up.

-Jessica

I washed the gravy off just in case and just gave him the chicken

Oh gosh, yep definately NOT a good idea. The gravy contaminated the chicken, but who knows if the chicken was gluten free to begin with?!?! Many of those type of things are marinated to make them tasty.

Most frozen dinners from the regular grocery store are not safe for us. Amy's is a great brand to buy. It is usually found in health food stores, but recently Target has begun carrying some of them in my area.

It sounds like you have a tricky situation on your hands with the babysitter. Like you said you will just have to tell her "stop feeding my kiddo" nicely. And teach her some things that she COULD buy to keep on hand. Be brand and product specific (KRAFT whatever in the blue box) Help her understand about cross contamination. She needs to even wash her hands between preparing the other children's lunch and your kiddo's lunch.

Good luck with everything.

-Jessica

That's hillarious that "yes dear" said that on their show, a year or so ago they made fun of gluten intollerance. They had a play date with a child who was gluten intollerant and didn't want to go because of that. I'm almost certain it was Yes Dear. Maybe someone else can help me remember for sure.

I hope that your Oprah letter works. We had a huge letter writing campaign to her about 2 years ago. Nothing ever came of it Maybe if people keep writing it will eventually make a difference OR she will get sick enough of us and put us on a show

Good luck!!

-Jessica

Gluten Free Pantry also has a taco seasoning mix. It comes in a shaker bottle. You can find it here: http://www.gluten free.com/glu/showdetl.cfm...Affiliate_ID=92

-Jessica

Also, Nutballz was the company who purchased the Elvis cup "tour". In Jan they did a fundraiser for Celiac disease research and had "pictures with the cup".HA Open Original Shared Link She has a good company going and is doing a lot twards research, awareness and such.

-Jessica

celiac3270-

Kayla the Nutballz lady used to post on here and is a member of my group. She has her company in colorado. I have tried their meal bars and cookies. I like the bean and cheese meal bar, but it needs to be warmed up. The cookies are OK, but something I can make better at home.

-Jessica

I found this article this morning. I found it interesting that "one in 20 patients waiting for liver transplants had undiagnosed coeliac disease." Which after diagnosis led to normal liver functions. That is wild.

-Jessica

A 10-minute remedy

By Anna Rose

Tuesday, 15 March 2005

IT TOOK just 10 minutes and a chance encounter with a second year medical resident to change Eilish O'Shea from a sick child into a normal, healthy and energetic kid.

Eilish is one of an estimated 250,000 Australians who suffer from coeliac (pronounced "see-lee-yak") disease.

Coeliac disease is a food intolerance to gluten, a protein found in wheat, rye, barley and oats.

Symptoms of coeliac disease include anaemia, fatigue, irritability, constipation and diarrhoea and can be diagnosed in children or well into adulthood.

"Eilish failed to thrive after she started on solids, she had abdominal extension and she was always sick," her mother Lesley said.

"At four years old she weighed just 10kg."

After three years and numerous tests, Lesley and Eilish were lucky enough to run into a second year medical resident who, after a 10-minute discussion, suggested that Eilish might have coeliac disease.

"After that, it was really simple to diagnose. Initial diagnosis was by a simple blood test," Lesley said.

Fortunately, coeliac disease can be treated effectively by adhering to a gluten-free diet, which means coeliacs like Eilish must avoid foods such as bread and cake that most people eat without a second thought.

Within a month of eating gluten-free, Eilish looked like a normal child.

"It isn't too difficult, as there are so many products available now, and having food products exactly labelled makes life much easier," Lesley said.

Awareness of the disease is still poor, with as many as four out of five coeliacs unaware they have the disease.

If not diagnosed, coeliac disease can lead to poor growth and limited educational attainment in children and can increase the risk of osteoporosis and cancer in later years.

Recent research from Europe has revealed one in 20 patients waiting for liver transplants had undiagnosed coeliac disease.

After changing to a gluten-free diet, liver function in these patients improved so much that they no longer needed liver transplantation.

Open Original Shared Link

Williams taco and chili seasonings are gluten-free.

-Jessica

If it is celiac disease, then it will not be outgrown. It is a genetic disorder which he will have for the rest of his life. Symptoms may disappear during puberty/adolescence age, but that doesn't mean that the gluten free diet can disappear with them. He still has celiac and needs to keep eating gluten free foods.

Just be thankful it is not something that requires expensive medicines. It can be easily corrected with proper foods. I would take that over a $300 prescription any day .

Not sure where you live, but there are some support groups in KC that may have folks who can point you to a more "helpful" dr. You might try contacting them to see what you can find out about a good doctor who has knowledge about celiac.

-Jessica

I like kinnikinnick flavor, but the hamburger buns are SOO thick, can hardly get your mouth around them with a burger inside of them. I have heard of people who slice them into 2 buns (4 pieces) and it works much better. I haven't tried that yet. I kinda gave up on the prepared bread issue. I do sandwich wraps with lettuce or just roll up the lunchmeat.

There is also a recipe called peanut butter and jelly bread. It is good for peanut butter and jelly sandwiches, but that's about it. It is more like a quick bread than a yeast bread (no yeast in it). I can't remember who posted it on this site. I can repost it if anyone wants it.

I do like Manna from Anna (it is a mix). You can actually toast the bread and make a grilled cheese out if it without it being soggy or cardboardey.

-Jessica

You are all very welcome. I just wanted to add one thing that the paper said at the top of it that I forgot to type.

Because we are constantly improving our recipes, please check the ingredient statement on the label of any product. We will make every effort to keep this list up to date, but some products made without gluten may not be included.

So basically, still keep reading labels, and call if something SEEMS gluten free but isn't on the list.

-Jessica

Maybe the camp would furnish or allow you to have a small refrigerator in your cabin/room. Then you could buy things like gluten-free lunchmeat, cheese, some amy's meals to eat. If they won't go for that, then possibly they would allow you to have a small portion of the fridge in their big kitchen to keep some perishable items.

Otherwise things such as:

*nuts (cashews, pistachios, peanuts)

*peanut butter and gluten-free rice/popcorn cakes

*envirokidz bars

*genisoy bars

*glutino blueberry breakfast bars (like nutrigrain breakfast bars but gluten-free)

*fresh fruits

*think thin low carb bars

*pudding in togo cups

*take some plastic silverware with you

*paper plates

*dry cereal (i'm sure you could use their milk)

* Fresh veggies (maybe take a bottle of your own salad dressing)

*corn tortillas (those keep for a long time, can melt cheese in them)

*canned foods (such as hormel tamales, veggies, hash, little weenies)

*Mrs May's Snacks (nuts)

*candy bars like snickers, those are pretty filling

Hope that gives you a few ideas

-Jessica

Exactly, and this has NOTHING to do with you being a bad/good parent, or the child "learning what to put into her mouth" it is about COMMUNICATION!! Thank you for posting, this has been exactly my point from day 1. It is for the safety and health of the child.

I hope you get things worked out with your school. Let me know if you need anything. I can try to look up some articles or something for you.

-Jessica

Most mcd's employee's are high school students, or people who are of lower education levels, sometimes even mentally challenged workers. They work for minimal pay. For someone not to understand the term "dedicated fryer" isn't really suprising. Try explaining what dedicated fryer means after you say that or say something like "do you fry your chicken nuggets in the same oil as the fries?". This seems to work much better for me. They understand, I get the answer I need.

I would trust Mcd's over any other fast food place. I have had chicken nuggets in my fries at wendy's

-Jessica

They are part of the team if they choose to show up to the team meetings. That is yet again their choice. The meetings many times go on without parents.

Yet again, it's not a matter of "teaching kids what to put into their mouth". It's a matter of a safeguard. To make sure that your child is safe at all times during their school day. To make sure that everyone who comes in contact with your child is on the same page. I just don't get what is so wrong with wanting your child to be safe?? Sounds sort of odd to me to be against safety.

-Jessica

celiac3270-

Glad I could help you add to your list collection!! You crack me up.

-Jessica

I use skippy and jif all the time with no troubles.

-Jessica

I got this list in the mail today after calling them last week. Typed it out and here it is:

Campbell

Deby-

A 504 plan does not take "parenting" away from the parent. It increases communication and understanding between parents, school, teachers, support staff, and child.

In many schools the "case workers" or members of the "team" are the teachers, parents, support staff and child. They all sit in on meetings together and decide what steps need to be taken. That isn't costing extra.

Teachers are being over worked and underpaid.

No kidding, so why are you arguing against making life easier for everyone??

Schools have been low on funds for years, that is nothing new. They make the money "be there" for programs such as this because it is necessary. It is also the law. The children with disorders, disabilities, etc MUST included in the regular classroom because of the ADA. Celiac is covered under the ADA.

It shouldn't matter what something costs if it improves the life of a child. How can you put a price on that?

-Jessica

Mini-

There are only 3 malt o meal cereals that are gluten free (that I have ever recieved confirmation on). Crispy rice isn't one of the three. Here are the 3 that are safe (for a while longer).

*Malt-O-Meal Corn Bursts

*Malt-O-Meal Fruity Dyno-Bites

*Malt-O-Meal Cocoa Dyno-Bites cereal

-Jessica

I recieved this error today:

The error returned was:

Sorry, the board administrator has enabled search flood control. Please wait at least 20 seconds before trying again.

Also have been having trouble if I log in at a computer that I haven't been logged into for a while. I put in my username and password, push send and it doesn't log me in. I have to go through the steps a second time before it will let me in. Weird.

-Jessica

I had contacted Malt-O-Meal recently and was told that they have had quite an onslaught of complaints about the impending ingredient change.

That makes me happy, at least they know how we feel about it!!! What they said shows that they are at least listening to their customers concerns.

-Jessica