angel-jd1

Sure I'd love to read it!!

Thanks

-Jessica

Richard-

I would be interested in reading your research, I have always heard to stay away from ALL veined cheeses. Please post the info thanks!!

-Jessica

Deanna-

I was checking out some of the hot wing recipes on allrecipes.com I have never had them before (I know I know, I MUST live under a rock!!) Just looking at some of the recipes raised a few red flags:

some are deep fried (cross contamination)

hot sauce (ones i have checked on are not gluten-free)

SOO many spices (need to use a gluten-free brand to be ok)

All Purpose FLOUR (some of the recipes contain this)

Blue Cheese Dipping Sauce (we aren't supposed to have blue cheese)

It sounds like this is a sort of thing that you would be better off making at home. You just need to find gluten-free ingredients and go from there Good luck, and here is one of the recipes from allrecipes.com

-Jessica

Restaurant-Style Buffalo Chicken Wings

Submitted by: Kelly

"This is the similar to the hot wings recipe served at a popular restaurant chain. If you have ever had them, you have to love them."

Yields 10 chicken wings.

oil for deep frying

1/4 cup butter

1/4 cup hot sauce

1 dash ground black pepper

1 dash garlic powder

1/2 cup all-purpose flour

1/4 teaspoon paprika

1/4 teaspoon cayenne pepper

1/4 teaspoon salt

10 chicken wings

1 Heat oil in a deep fryer to 375 degrees F (190 degrees C). The oil should be just enough to cover wings entirely, an inch or so deep. Combine the butter, hot sauce, pepper and garlic powder in a small saucepan over low heat. Stir together and heat until butter is melted and mixture is well blended. Remove from heat and reserve for serving.

2 In a small bowl mix together the flour, paprika, cayenne pepper and salt. Place chicken wings in a large nonporous glass dish or bowl and sprinkle flour mixture over them until they are evenly coated. Cover dish or bowl and refrigerate for 60 to 90 minutes.

3 Fry coated wings in hot oil for 10 to 15 minutes, or until parts of wings begin to turn brown. Remove from heat, place wings in serving bowl, add hot sauce mixture and stir together. Serve.

Makes 5 servings

There is already a thread on the board that relates to that subject, and it hasn't been terribly popular. Only a handfull of people have posted in it over quite a long period of time.

You can find it here: Open Original Shared Link

-Jessica

celiac.com moderator

Mentadent is gluten-free

-Jessica

celiac3270-

Living without has more stories about coping, travel, etc. Gluten free living has some technical articles. They also have some informational articles, like in this last issue they interviewed the Chef with Disney who is very supportive of Celiacs.

Both are good magazines, Living without has color pics and all that good stuff like a normal magazine.

-Jessica

Tiffany, just a quick note to let you know you aren't alone in your skepticism. I also find Enterolab to be fishy for the same exact reasons that you mentioned in your post.

-Jessica

I contacted Jif because I wanted to get accurate info. I got a call from Jif this morning. ALL of their Peanut Butters are gluten free, but they always encourage you to read labels.

-Jessica

*Skippy is also gluten-free

Hashbrowns are potatoes thinly sliced. They are usually fried as a side dish.

-Jessica

Clabber Girl Baking Powder is gluten-free

McCormick's Vanilla is gluten-free

During the NIH Conference question session, one gentelman asked about eczema and celiac disease. The panel of experts said that about 5% of patients who have eczema, dermatitis, atopic dermatitis have those conditions linked to celiac disease, it is commonly thought that only dermatitis heptaformis is the only skin condition linked to celiac.

I personally was diagnosed with atopic dermatitis at age 3, and went undiagnosed for another 21 years!!

They also talked about a study on smoking, they had 3 studies and 2 of the studies showed that smoking prevented celiac disease from rearing it's ugly head. Interesting!

-Jessica

Being relieved does not sound silly at all!! Knowing instead of wondering can be a great relief. Your mind sometimes wanders when you do not have a definate diagnosis. I know I thought I was dying before I got mine, good to know I wasn't!!

Congrats on your definate diagnosis, now you can work on getting healthy again.

-Jessica

I was reading an article the other day in some "celeb" magazine and Elizabeth Hasselback was being written about. They asked her a fill in the blank question "I will eat oysters, but I won't eat________", to which she responded "WHEAT, because I have an allergy to it!" SO I guess hers in not celiac,but instead a wheat allergy.

-Jessica

NIH Conference on Celiac Disease in Bethesda, MD - begins TODAY!

You can watch via webcast!

Watch on-line or attend in person the NIH Celiac Consensus Conference

sponsored by the NIH on June 28-30 at the Natcher Conference Center in

Bethesda, MD. Details on how to watch on-line at the NIH videocast

website and the program are listed below. Experts in celiac disease including

Cynthia Kupper, RD, Shelley Case, RD and 18 MD's from the US, Canada

and Europe will be presenting at this historic conference. The

speakers

summmaries will be available at the NIH web site after the conference

and a special supplement in the J of Gastroenterology with in-depth

articles from each speaker will be published in the fall. Here is the

link for more information :

Open Original Shared Link

This link also give the NLM bibliography on celiac disease which contains hundreds

of articles and is 207 pages!

Open Original Shared Link

The conference will address the following key questions:

1. How is celiac disease diagnosed?

2. How prevalent is celiac disease?

3. What are the manifestations and long-term consequences of celiac

disease?

4. Who should be tested for celiac disease?

5. What is the management of celiac disease?

6. What are the recommendations for future research on celiac

disease

and related conditions?

During the first day and part of the second day of the conference,

experts will present the latest research findings in celiac disease to

the independent consensus panel. After weighing all of the scientific

evidence, the panel will prepare its statement addressing the

questions

listed above. The panel will present its draft statement to the public

for comment at 9:00 a.m. on Wednesday, June 30. Following this public

comment session, and a subsequent executive session to weigh the input

provided, the panel will hold a news conference at 2:00 p.m. to take

questions from the media.

Preliminary Agenda for the Celiac Consensus Conference happening NOW

in Bethesda, Maryland. You can view it live via webcast. See below

for details on how to do so:

Monday, June 28, 2004

8:30 a.m. Opening Remarks

Allen M. Spiegel, M.D. Director

National Institute of Diabetes and Digestive and Kidney Diseases

National Institutes of Health

8:40 a.m. Charge to the Panel

Susan Rossi, Ph.D., M.P.H.

Deputy Director

Office of Medical Applications of Research, Office of the Director

National Institutes of Health

8:50 a.m. Conference Overview and Panel Activities

Charles Elson, M.D.

Panel and Conference Chairperson

Professor of Medicine and Microbiology

Vice Chair for Research, Department of Medicine

University of Alabama at Birmingham

I. How Is Celiac Disease Diagnosed?

9 a.m. Overview and Pathogenesis of Celiac Disease

Martin F. Kagnoff, M.D. Professor of Medicine

Cancer Biology Program

University of California at San Diego

9:20 a.m. The Pathology of Celiac Disease

Paul J. Ciclitira

Professor

The Rayne Institute

St. Thomas' Hospital

United Kingdom

9:40 a.m. What Are the Sensitivity and Specificity of

Serological Tests for Celiac Disease? Do Sensitivity and Specificity

Vary in Different Populations?

Ivor Hill, M.D.

Professor of Pediatrics

Wake Forest University School of Medicine

10 a.m. Discussion

10:30 a.m. Clinical Algorithm in Celiac Disease

Ciaran P. Kelly, M.D.

Herrman L. Blumgart Firm Chief

Director, Gastroenterology Fellowship Training

Associate Professor Medicine

Beth Israel Deaconess Medical Center

Harvard Medical School

10:50 a.m. Genetic Testing: Who Should Do the Testing and What

Is the Role of Genetic Testing in the Setting of Celiac Disease?

George Eisenbarth, M.D

Executive Director

Barbara Davis Center for Childhood Diabetes

University of Colorado Health Sciences Center

11:10 a.m. Evidence-Based Practice Center Presentation: Summary

of the Evidence

EPC Speaker TBA

University of Ottawa

11: 30 a.m. Discussion

12 p.m. Lunch

II. How Prevalent Is Celiac Disease?

1 p.m. Epidemiology of Celiac Disease: What Are the Prevalence,

Incidence, and Progression of Celiac Disease?

Marian J. Rewers, M.D., Ph.D.

Professor

Clinical Director

Barbara Davis Center for Childhood Diabetes

University of Colorado Health Sciences Center

1:20 p.m. What Are the Prevalence and Incidence of Celiac Disease in

High-Risk Populations: Patients With an Affected Member, Type 1

Diabetes, Iron Deficiency Anemia, and Osteoporosis?

Joseph A. Murray, M.D.

Professor of Medicine

Mayo Clinic

1:40 p.m. Evidence-Based Practice Center Presentation

EPC Speaker TBA

University of Ottawa

2 p.m. Discussion

III. What Are the Manifestations and Long-Term Consequences of Celiac

Disease?

2:30 p.m. Clinical Presentation of Celiac Disease in the Pediatric

Population

Alessio Fasano, M.D.

Professor of Pediatrics, Medicine, and Physiology

Director, Mucosal Biology Research Center

Center for Celiac Research

University of Maryland School of Medicine

2:50 p.m. The Many Faces of Celiac Disease: Clinical Presentation of

Celiac Disease in the Adult Population

Peter Green, M.D.

Clinical Professor of Medicine

Division of Digestive and Liver Disease

Columbia University

3:10 p.m. Association of Celiac Disease and Gastrointestinal

Lymphomas and Other Cancers

Carlo Catassi, M.D., M.P.H.

Co-Medical Director

Division of Pediatric Gastroenterology and Nutrition

Center for Celiac Research

University of Maryland School of Medicine

3:30 p.m. Skin Manifestations of Celiac Disease

John Zone

Chairman and Professor of Dermatology

University of Utah Health Sciences Center

3:50 p.m. Neurological/Psychological Presentation of Celiac Disease:

Ataxia, Depression, Neuropathy, Seizures, and Autism

Khalafalla Bushara, M.D. Department of Neurology

University of Minnesota

4:10 p.m. Discussion

5 p.m. Adjournment

Tuesday, June 29, 2004

IV. Who Should Be Tested for Celiac Disease?

8:30 a.m. Should Children Be Screened for Celiac Disease? Is There

Evidence To Support the Strategy of Screening All Children?

Edward Hoffenberg, M.D.

Associate Professor of Pediatrics

Director, Center for Pediatric Inflammatory Bowel Disease

Children's Hospital Denver

University of Colorado School of Medicine

8:50 a.m. Should Adults Be Screened for Celiac Disease?

What Are the Benefits and Harms of Screening?

Pekka Collin, M.D., Ph.D.

Medical School

University of Tampere

Finland

9:10 a.m. Evidence-Based Practice Center Presentation

Speaker TBA

University of Ottawa

9:30 a.m. Discussion

V. What Is the Management of Celiac Disease?

10 a.m. Dietary Guidelines for Celiac Disease and Implementation

Cynthia Kupper, R.D., C.D.

Executive Director

Gluten Intolerance Group

10:20 a.m. How To Educate Patients Effectively and Provide Resources:

Gluten-Free Diets

Shelley Case, R.D.

Case Nutrition Consulting

10:40 a.m. The Followup of Patients With Celiac Disease-Achieving

Compliance With Treatment

Michelle Pietzak, M.D.

Assistant Professor of Pediatrics

University of Southern California Keck School of Medicine

11 a.m. Discussion

11:30 a.m. Adjournment

Wednesday, June 30, 2004

9 a.m. Presentation of the Consensus Statement

9:30 a.m. Public Discussion

11 a.m. Panel Meets in Executive Session

2 p.m. Press Conference

3 p.m. Adjournment

Rev. 3/12/04

Open Original Shared Link is where you can find the live video

feeds

Can infants get hemmaroids(spelling sorry)? I know that I had them while going through the diagnosis processes and that caused bleeding in the stools. You might want to have the baby checked for that.

-Jessica

Just curious where you got the info, because I understood that all Jiff was fine. Thanks.

-Jessica

DK-

I believe that CSA sends packets out to Dr's. I think they do it once a year during Celiac Awareness Month.

-Jessica

I FINALLY got my sample today!! Only a month after I ordered!! haha. Oh well. It is good stuff!! I will probably be placing an order in the near future!!

Here is the link if you all want to get your free sample. Open Original Shared Link

-Jessica

You can find letters to send at the website. You should check it out! Open Original Shared Link Put in your zip code, it shows your reps. then you can choose an appropriate letter to send OR compose your own. Simple and takes like 2 min. to do. and it seems to be WORKING!! WOO HOO!!

-Jessica

Bridget-

Thanks for the info. I have emailed them countless times and have never gotten responses back!! I appreciate knowing.

-Jessica

I have a subscription and I really enjoy it alot!! It feels good to know there are other people out there. They have great full color pictures and ideas just like a regular magazine. Open Original Shared Link

I have a subscription to another, which is in all black and white and not very good paper and they charge an arm and a leg for it!! It has good information, but hardly any pictures or anything fun it it! ha Open Original Shared Link

-Jessica

Food Labeling Bill Headed for Final Vote !

The House Energy and Commerce Committee has passed the Food Allergen Labeling and Consumer Protection Act (FALCPA). This was the fourth time S. 741 received UNANIMOUS approval.

Now there is JUST ONE VOTE TO GO !!

All signs point to quick passage by the full House. Then its onto President Bush for his signature.

If your Representative is a member of the House Energy and Commerce Committee, please write or call to say, "Thank You."

To send a thank-you go to: Open Original Shared Link , enter your zip code. 'Click' on the Representative's name. Under the picture, 'click' on 'Send message.'

American Celiac Task Force

actf@fogworks.net

I also saw one after my diagnosis. She too was not educated on Celiac Disease. She had gone and printed information off of Celiac.com to give to me, which I had already read!! Then proceeded to talk to me about how much juice is in a serving and how much veggies are in a serving.....LADY I"M NOT HERE FOR THAT!! I'm here to learn how to eat now that my life has been turned upside down!! I agree with Shirly.....they need to get a clue!! I think they need to take classes and learn how to help people like us. It amazes me how little they know about it.

My trip wasn't paid for by insurance and was a TOTAL waste of money.

-Jessica

Bridget-

Gluten Free Panty sells an egg replacer that you can use in recipes. They have a whole section of egg free products: Open Original Shared LinkThey also have a dairy free milk substitute which I suppose you could use in recipes. You can find it here: Open Original Shared Link The majority of their products can be made lactose/casien free with just a little adjustment to the mix recipe. here is the list of things that are lactose free/casien free: Open Original Shared Link

Hope that helps!

-Jessica

The injections go directly to your blood stream, so there should be no issues with them. They never go into your intestines, so nothing to worry about with them.

As far as the others go, I have always been told not to worry about it, they will be absorbed. Maybe someone has some research on this issue. I just know what I have been told in the past.

-Jessica