angel-jd1

June 2, 2004

Most of them are supposedly not. There are a couple brands sold that is for sure. You can buy one at the Gluten Free pantry called "let's do organic Chocolate Sprinkles"

-Jessica

June 2, 2004

ok with all this brownie talk, I caved in and made a batch of gluten free pantry brownies!! haha

Getting ready to put some frosting on, then pour a big glass of milk. Maybe top with some ice-cream (bryers vanilla) and some reddi whip and have myself a brownie sundae!! YUM!! Who says a girl shouldn't spoil herself? haha

-Jessica

June 2, 2004

Ok I finally had some time to go back to the old board and look for that list, found it and here it is:

From Fernandofamily on the old board: 9-7-2003
here is a list of symptoms associated with celiac disease that I put together to give to my doctor. I would like to know how many of the symptoms any of you have ( or had in the past if you a gluten-free now). I have 32 symptoms off this list, many of which taken separately could have been something else, but when you look at them together you can tell there is something really wrong! If you have anything to add to this list that would be great. Most of this was compiled from the aafp.org and celiac.com websites info on celiac symptoms.

List of symptoms associated with Celiac Disease (also known as Celiac Sprue and Gluten Intolerance):

Lassitude (a term describing a feeling of tiredness, weakness or exhaustion)
Inanition (exhaustion, as from lack of nourishment)
Depression
Fatigue (often chronic)
Irritability
Fuzzy-mindedness after gluten ingestion
Dental enamel defects (lots of dental cavities due to weak enamel)
General malnutrition with or without weightloss
Any problem associated with vitamin deficiencies
Diarrhea
Constipation
Lactose intolerance
Flatulence
Anorexia
Nausea
Vomiting
Burning sensation in the throat
Abdominal pain and bloating
Borborygmi (audible bowel sounds)
Abdominal distention
Steatorrhea (fatty stools that float rather than sink)
Foul smelling stools
Bulky, greasy stools
Anemia (iron deficiency)
Hemorrhagic diathesis (bleeding disorder)
Osteoporosis/osteopenia (bone loss or thinning)
Bone pain (especially nocturnal)
White flecks on fingernails
Short stature (due to slow growth)
Arthritis
Rheumatoid arthritis
Arthralgia (pain in the joints)
Tetany (spasms and twitching of the muscles)
Parasthesia (abnormal or impaired skin sensation including burning, prickling, itching, or tingling)
Amenorrhea (absence of menstrual bleeding)
Delayed puberty
Infertility
Impotence
Cheilosis (inflammation, cracking and dryness of the lips)
*Angular cheilosis (specifically cracking in the corners of the lips)
Glossitis (swollen tongue)
Stomatitis (any form of inflammation or ulceration of the mouth, such as mouth ulcers, cold sores, thrush, etc.)
Purpura (purple or red spots on your skin caused by bleeding under the skin, more common in elderly)
Follicular hyperkeratosis (corns, calluses, plantar warts, psoriasis, nail fungus)
Atopic dermatitis (a tendency towards allergies and a predisposition to various allergic reactions)
*Scaly dermatitis (inflammation of the skin, includes dandruff and topical allergic reactions)
Hyperpigmented dermatitis (can't find the definition, must have something to do with the color of the rash?)
Alopecia areata (loss or absence of hair, leaving the skin looking and feeling normal)
Edema (accumulation of serum-like fluid in the body tissues)
Ascites (accumulation of fluid in the peritoneal cavity-the space between the abdominal wall and the organs)
Selective IgA deficiency
Seizures, with or without occipital calcification
Hepatitis (inflammation of the liver, may be acute or chronic)
Dermatitis herpetiformis (skin rash characterized as intensely itchy skin eruptions like red bumps and blisters. Burning, stinging and itching is very bad. It appears in groups around the body, most often on the head, elbows, knees, and buttocks, much like the lesions of Herpes which is why the name is herpetiformis-meaning "like herpes". Must be diagnosed by a doctor. Only occurs in celiac patients.)
Liver disease
Xerophthalmia (an eye disorder which causes the conjunctiva and cornea to become abnormally dry)
Night blindness (inability to see well in dim light)
Thyroid disease
Unexplained neuropathic illnesses, including ataxia and peripheral neuropathy
*Peripheral neuropathy (disease, inflammation and damage to the peripheral nerves, which connect the central nervous system to the sense organs, muscles, glands, and internal organs. Damage to sensory nerves may cause numbness, tingling, sensations of cold, or pain, often starting at the hands or feet and moving toward the body center. Damage to the nerves of the autonomic nervous system may lead to blurred vision, impaired or absent sweating, headaches, episodes of faintness associated with falls in blood pressure, disturbance of gastric, intestinal, bladder or sexual functioning, including incontinence and impotence. In some cases there is no obvious or detectable cause)
*Ataxia (incoordination and clumsiness, affecting balance and gait, limb or eye movements and/or speech, making one appear as if they were drunk)
Dementia
Diabetes mellitus type 1
Sjogren's syndrome (eyes, mouth, and vagina become extremely dry)
Collagen disorders
Down syndrome
IgA neuropathy
Fibrosing alveolitis of the lung (body produces antibodies against its own lung tissue, creates a dry cough and breathing difficulty upon exertion)
Hyposplenism, with atrophy of the spleen (underactive spleen)
Pancreatitis (inflammation of the pancreas)
Lymphoma (any group of cancers in which the cells of the lymphoid tissue multiply unchecked)
Leukopenia (abnormal decrease in white blood cells, often reducing immune system function)
Coagulopathy (blood clotting disorder)
Thrombocytosis (low blood platelets/damaged platelets, causing large amounts of bruises due to uncontrolled bleeding under the skin)
Melanosis (black or brown discoloration of the colon, usually due to chronic constipation)
Erythema nodosum (red-purple swellings on the legs and sometimes arms, with fever and joint pain)

In children:
Failure to thrive
Irritability
Paleness
Fretfulness
Inability to concentrate
Emotional withdrawal or excessive dependence
Nausea
Pale, malodorous, bulky stools
Frequent, foamy diarrhea
Wasted buttocks
Anorexia
Malnutrition:
*With protuberant abdomen (with or without painful bloating)
*Muscle wasting of buttocks, thighs, and proximal arms
*With or without diarrhea
(as well as any number of the above diseases and disorders)

Additional information:

Reactions to ingestion of gluten can be immediate, or delayed for days, weeks or even months.

The amazing thing about celiac disease is that no two individuals who have it seem to have the same set of symptoms or reactions. A person might have several of the symptoms listed above, a few of them, one, or none. There are even cases in which obesity turned out to be a symptom of celiac disease.

Here is my reply from the old board:

I have 33 of the symptoms,I am not sure about some of them, they would require further testing which I have not done such as bone density.
I began my struggle at age 3 with atopic dermatitis. The Dr's told my mom I had dry skin and to put some lotion on it. Here I am at age 24 and FINALLY diagnosed!! We have been doing extensive testing since approximately age 16. It is amazing how much doctors sometimes miss. I agree with you that Celiac is a very individualized disease. I think that is what makes it especially hard to diagnosed without the blood panels and scopes. However, that is no excuse for a doctor to miss it for YEARS which is par for the course in most of us.
Nice job putting together your list. Best Wishes!!
-Jessica
.

June 2, 2004

Jean-

I do not have a recipe for a crust, but the Gluten Free Pantry Open Original Shared Link makes a great pie crust mix. YUMMY!!! You will have to try it sometime.

-Jessica

June 2, 2004

Jean is right on, I also use my old recipes and just substitute Bob's Red Mill All Purpose gluten-free FLour and some xanthan gum and it works fine for the most part.

For the brownies, I do LOVE the Gluten Free Pantry Chocolate Truffle Brownie Mix with some dunkin hines homestyle milk chocolate frosting! and a big glass of milk! I might just have to make some of those today now!! haha

I hope your daughter has a great bday!!

Just remember frosting covers up any cake mistake! ha Also instead of sprinkles, could chop up some M&M's to add some color! YUM!

-Jessica

June 2, 2004

I just thought I would share my collection of links. I hope someone can find them helpful. Please feel free to add your own collections of links.

-Jessica

Recipes

Open Original Shared Link

Info Sites

Open Original Shared Link

Food Companies

Open Original Shared Link

Publications

Open Original Shared Link

Pictures of Damage

Open Original Shared Link

Research and Associations

Open Original Shared Link

Products -Tshirts, Bags Etc.

Open Original Shared Link

June 2, 2004

It is good to her positive stories from people, lets the newbies know that there is hope and it can be done!! Thanks for sharing your positive story!! Keep up the good work.

-Jessica

June 2, 2004

I LOVE frosting on my brownies! I won't eat them any other way!! So I say go for it....have a glass of milk ready to wash them down, they will be rich!!

-Jessica

June 1, 2004

Hi everybody, got this email from the National Celiac Task Force, looks like the bill is being threatened. Please take the time to send a letter to your congress people!!! We DO NOT want this bill to fail!!

-Jessica

Here is the email:

Food Manufacturers Threatening Labeling Bill

The House Energy and Commerce Committee will soon vote on H.R. 3684, the Food Allergen Labeling and Consumer Protection Act (FALCPA).

The bill has STRONG bipartisan support. Its companion, S. 741, was passed unanimously by the Senate in March, and has been enthusiastically endorsed by Secretary of HHS, Tommy Thompson.

The Food Manufacturers are now scrambling to weaken the bill and delay the effective date of January 1, 2006.

We can't let that happen!

TAKE ACTION NOW -- go to Open Original Shared Link

Send an e-letter to your Representative urging H.R. 3684 be passed with the 2006 effective date.

Feel like getting personal? Call the Capitol Switchboard (800) (800) 839-5276 and ask for your Representative's office. Don't know your member -- go to "Elected Officials" at Open Original Shared Link , and enter your zip code.

It's time to show our strength !!

American Celiac Task Force

June 1, 2004

Last summer I had written to the Kingsford Charcoal Company after getting sick several times while grilling. I personally stay away from charcoal after reading this letter, they claim that the wheat in the charcoal would have burned up due to the high heat, however my stomach says different!! I grill with a gas grill now. I hope this saves someone a gluten accident.

-Jessica

Letter from 5-03

Thank you for taking the time to contact us about KINGSFORD Briquets. We

appreciate your interest in our products.

Both corn and wheat starches are used in this product, but we predominantly use

cornstarch. In any case, the briquets burn at such a high temperature that the

starch is burned, it does not transfer to the food.

We do not make any food products that do not contain gluten.

If I can be of further assistance to you, please contact me again.

Again, thank you for contacting us.

Sincerely,

Terry Dittus

Product Specialist

May 31, 2004

Could it be poison ivy or poison oak or something like that???

-Jessica

May 31, 2004

The Gluten Free Pantry has a really good rice crumb coating. It is like a "shake and bake" type thing. I use that to make chicken and pork chops.

When I make stuffing, I make cornbread and gluten-free bread and use those for the bread crumbs for that.

-Jessica

May 29, 2004

This sounds like a pretty cool place, by reading the customer reviews. I put in for my free sample. Any place that will send you a sample for free has my vote!! They must be pretty confident in their product, or they wouldn't do that!! Awesome.

here is a quote from their site:

Charlotte

What Makes You An Advanced Member? · May 27, 2004

I believe it is 30 posts, but don't quote me on that.

-Jessica

May 27, 2004

Plantime-

I happen to work in 2 pharmacies as a pharmacy tech and am pretty familiar with the system. It's ok that you disagree with me, however I think that it is not the responsability of the pharmacist to know each and every ingredient of each and every drug. That is not humanly possible!! There are thousands of drugs each with several ingredients. Knowing the ingredients is the job of the manufactur,not of the pharmacist.

There is a book in which pharmacists can look up ingredients, however they are not usually current. Also, it isn't written right there as "gluten". The pharmacist usually ends up calling the company to see what is in it. Even when you put an allergy on a patient file, it doesn't show up as a reaction to the drug because it isn't seen as a major problem within the drug manufacturing/computer software. It is just best and safest to call the company, they have the most current and upto date information.

It is also a big pain in the butt for the pharmacist to have to take the time to look up the information. Each medication has a HUGE amount of information for it in the book, and it is hard to look through it all to find what you would want to know. Also, it isn't written right there as "gluten". The pharmacist usually ends up calling the company to see what is in it.

Think of the most annoying thing in YOUR job, that is the equivilent of what you are asking your pharmacist to do by making him look up all that extra information!! They have pleanty to do without taking time out of their day to do extra footwork that you could be doing yourself, AND it is much safer for you to do it yourself! Take that into consideration the next time you pick up the phone to call for a question that you could have just as easily have solved on your own.

-Jessica

May 27, 2004

I am not sure who recommended this, but I am pretty sure it was someone on this board. I tried it tonight and it was so GOOD!! Just wanted to say thanks!!

-Jessica

For those who have no clue what I'm talking about.....you can make a pizza crust out of hashbrowns.

I used a pie plate, thinly sliced hashbrowns

Pour some hashbrowns into a lightly Pam'ed pie plate/pizza pan.

Defrost Hashbrowns and press onto the sides of the dish.

I added some garlic powder and oregano and basil to the hashbrowns.

Bake for about 20 min at 350...or until slightly brown and crispy.

Top with pizza sauce, toppings(meat, veggies) and cheese bake for another 10-12 min. and you now have a great quick pizza!! YUM!!

May 26, 2004

The way that I do things is to get the manufacter name , drug name, and strength from the pharmacy. I then go home and do a search on the net for a phone number to call. I call and talk to a pharmacist within the company. They will be able to tell you, or should be able to transfer you to a place within the company that does.

Do not expect your pharmacist to know the ingredients of every medication. That goes far beyond what they should have to do. Do the footwork on your own and it will be more reliable!!

I have had no problems getting answers from drug companies by using this method. Best wishes.

-Jessica

May 24, 2004

I'm eating a sandwich!!! That is right, I am actually eating two pieces of bread with something in the middle!! It has been SOOOOO long since I have done this.

Connie-

I tried your PB &J Bread today. I couldn't even wait for it to cool down, sliced it hot and made a hot PB&J haha!! It was great, I hope it is as good when it cools down. This is the first sandwich in a LONG time that I have finished (not thrown away or spit out ha). Thanks for posting the recipe. I did have to cook mine considerably longer than the time you have posted (did double the recipe though).

-Jessica

May 24, 2004

-----Original Message-----

From: The Food Allergy and Anaphylaxis Network

[mailto:faan@f...]

Sent: Monday, May 24, 2004 11:32 AM

To: alerts@f...

Subject: Food Allergy Alert

Importance: High

--=| FOOD ALLERGY & ANAPHYLAXIS NETWORK SPECIAL FOOD ALLERGY ALERT

NOTICE |=--

MILK AND WHEAT ALLERGY ALERT

May 24, 2004

TO: Food Allergy & Anaphylaxis Network Members

FROM: The Food Allergy & Anaphylaxis Network and Kellogg North America

RE: Kellogg North America Co. issues allergy alert on undeclared milk

and

wheat in Kellogg

May 24, 2004

Sonya-

Welcome!! It does get easier, I personally have no found a bread recipe yet that I like. I am trying though!! As I type this I have a batch of the peanut butter and jelly bread in my oven (recipe is listed on this site in the recipe section). We will see how it goes!! I hope it goes well, I would LOVE a sandwich!! ha

You should really check the recipes here on this site. There are several bread recipes. We have some great cooks here with us and they keep us informed with recipes to try out regularly!!

I wish you the best in your search for the perfect bread, I understand your struggle. I have been gluten-free for over a year now, and am STILL looking!

-Jessica

May 24, 2004

Crockpot Mac N Cheese

3 C Cooked Macaroni (gluten-free of course)

1 T butter or margarine

2 C Milk

3 C Cheese (I used Velveeta)

1/4 C Chopped Onion

1/4 tsp. Pepper

Toss Macaroni with butter. Add remaining ingredients. Pour into a lightly greased crock pot. Cover and cook on low for 2-3 hours, stirring once or twice.

This was very easy to make and full of flavor!! YUM!

-Jessica

May 24, 2004

This is a duplicate post, please do not reply here. It will be removed as soon as it can be. Thanks

-Jessica

a celiac.com moderator

May 24, 2004

I was doing a search on kraft.com and this link came up. It is a sheet that helps you understand Kraft labels and such. It is pretty neat.

-Jessica

Open Original Shared Link

May 21, 2004

Here is your post, if you just go and click on your ID and click on find all posts by this member you can see where it is. Hope that helps ya.

Open Original Shared Link

-Jessica

a celiac.com moderator

May 20, 2004

FINALLY!!! I can report some information to you all!! Here is how you get your Celiac Disease Awareness Pins. Get some, wear them to meetings, to the grocery store, to your bridge club, to Wal-Mart, Target, WHATEVER just create awareness!!

Send a check to:

University of Chicago Celiac Disease Program

5839 S. Maryland Ave. Room C491

MC4065

Chicago, IL 60637-1470

Pins are $5.00 Each....there is NO shipping and handling charge, so just a flat $5 for each pin ordered, there is no price break for large orders.

Make checks payable to University of Chicago Celiac Disease Program OR UCCDP

You can also call 773-702-7593 if you wish to pay by credit card, however they prefer to recieve checks!!

Get those orders placed!!!!

-Jessica

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