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I just received my 3yr old daughters celiac panel test results back and her doctor stated he has never seen results this high.

Antigliadin Abs, IgG 63

t-Transglutaminase (tTG) IgG 1

Immunoglobulin A, On, Serum 47

Im not really sure what all this means, Dr said he is sure she has celiac disease and is sending us to a Gastro. Can someone please help me understand what these numbers mean? Thank you in advance for your help..

I think that you'll have to compare these numbers to the "reference range" on the report(s) - the way the numbers and ranges are expressed can vary depending on the lab your doctor used, and/or the country the tests were performed in.

What is so special about this dr. green does he offer some alternatives i haven't heard before? Have you heard of glutenase?

Dr. Peter H.R. Green is founder and director of the Celiac Disease Center at Columbia University in New York City. From Dr. Green's Book, CELIAC DISEASE - A Hidden Epidemic, "The Celac Disease Center at Columbia University is the only center in the United States that provides comprehensive medical care, including nutrician, for adults and pediatric patients with celiac disease. It's mission is to redefine the future of celiac disease and treatment through continuing advances in biomedical research, patient care, and physician and public education. The center is diagnosing and treating more than two thousand patients annually from around the world."

You do not have to see Dr. Green himself at the Celiac Disease Center - there are several other doctors who work there, who are easier to obtain an appointment with, as well as having more insurance options. This is what I did.

There's no magic bullet yet for Celiac, though - you have to be on the diet to recover.

Glutenase cannot be used by people with Celiac Disease to safely consume gluten, although it probably wouldn't hurt to take it.

Website of the Celiac Disease Center at Columbia University:

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Hi

Everyone that I have spoken told me that for an adults it takes several months to a year in order for the intestine to recover. I believe is all dependent on the amount of damage you have. Some people recover faster than others.

It takes several months to a year for children's intestines to recover. The older you are, the longer it takes. I'm middlle-aged, and the Celiac Disease Center told me not to come back for another endoscopy and biopsy for two years, which is the minimum time it usually takes for an adult to show improvements using this test.

Well, this may come as a shock to some, but take out and delivery gluten free pizza is not a "pipe dream" in NYC, and you can have many other foods from the gluten free menus in a number of restaurants here as well. It's only a matter of time until other areas have these options, and gluten free accomodations and services are still in their infancy in NYC.

I'm really happy about this article - many more people will hear about Celiac because of it.

I had a root canal decades ago, it soon became infected, and had to be redone. This did not help, the infection stayed, and I ignored it for many years. I recently had oral surgery, about 7 or 8 months ago, and it's still infected. The peridontist said that about the only choice is extraction. Since I have so many bridges and crowns, I don't want to have to get them ripped out in order to put in a new bridge. I am thinking of getting an implant. Does anybody have any experience with implants?

Alba Therapeutics Corporation Reports Preliminary Phase IIa Clinical Trial Results for AT-1001 for the Treatment of Celiac Disease

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"We are very encouraged by the preliminary data and look forward to applying the extensive knowledge gained in this Phase IIa exploratory clinical trial to a larger, highly powered Phase IIb gluten challenge study later this year" said Blake Paterson, M.D., Chief Executive Officer of Alba Therapeutics

The study may be concluded by 2008.

Has anyone tried it?

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I haven't seen it for sale yet in my area. Here's another article about it:

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Thank you for the responses and information.

I've had increasing neurological problems, fatigue, bad dreams, brain fog and some digestive trouble for a few weeks - roughly a month to six weeks after I started using BEANO on a regular basis. Since my diet is so carefully gluten free, I am relatively sure that it's the enzyme. I stopped taking it earlier today, and seem to feel better already - but that may just be psychological at this time. There should be noticeable improvement over the next few days, if in fact it was the BEANO

I'm sorry, I have had no experience with Beano.

Wanna buy an almost full bottle, cheap?

I've been feeling bad lately, including thoughts that I've been glutened. I wondered if it might be the BEANO I've been taking every day, one tablet up to 3X a day, for the past few months. Unfortunately, I didn't check the forums here regarding this product, or read the new listing of wheat on the product's label. These "trace" amounts of wheat could be the culprit. Hopefully, that's the only thing that has been contaminating me. I went for a blood test at my primary doctor last week, before I realized BEANO had wheat, and my Gliadin IgA/IgG blood test results were within an acceptable range - so apparently it isn't a major problem.

Double post by accident.

I had all of the Enterolab tests (I think), even though I was previously diagnosed with Celiac by endoscope and blood tests. Enterolab found two Celiac genes.

According to the results I have soy and casein antibodies, also. I do not know if they mean anything, but I avoid dairy completely, and soy as much as possible.

There is a lab run by a diffrent company, which Dr. Peter Green recommends in some circumstances, that does DNA testing. I cannot remember the name, but it's been mentioned on this forum.

Hi!

I had some blood work done a couple weeks back, as I've been feeling constantly tired and lethargic and it's making my 9-5 job really uncomfortable. The blood test (it was a fasting test, done in England with the NHS) came back all negative, so the docs can't help me out.

It struck me last week that I feel most tired after eating lunch- and I always have a sandwhich which... you guesedt it- contains gluten. As of today, I'm going on a 2 week no gluten trial- but I was wondering if anyone knows if a regular fasting test examines gluten intolerance? In which case I should probably look at something else.

Thanks!

P.S. Oh, I've had IBS for about 6 years now.

In the U.S., typical blood work does not contain a Celiac test unless the doctor specifically requests it.

Hello,

What do you mean when you say "banana baby"? I ask - because the only time I have ever heard that was from Dr. Sears (a pediatrician/author) who uses the term to describe babies who are tall and skinny - instead of the baby chubbiness that most people expect. I didn't realize the term went back several years and I am curious?

Thanks,

Amy

There was a very interesting thread, with links provided by Ms_Sillyak, about this last year:

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I was wondering are the Freeda Vitamins soy free? It does not specfically say that it is soy free in the catalog.

Thank you!

Becky

Somebody in this thread, https://www.celiac.com/index.php?showtopic=23707, said that they are in post #9.

They have a store in NYC which I will be visiting soon.

I meant supplements

Metamucil with 100% Natural Psyllium Fiber, but ONLY the powders and capsules. The wafers contain wheat.

My son has been gluten-free for over 2 years and he has other problems. We were sent to Atlanta to a dr and the dr wanted other gi testing done. We live in Kansas and we saw one gi dr in KC and he said to put him back on glutten and then test to see if the testing came back positive. I told him he was crazy. So we went to see a different gi dr and he suggested to genetic testing. He wants to see if he carries the gene for celiac disease. He never had positive blood test or biopsy but since being gluten-free he has grown and no more diahrea. Please help me I don't want to put him through unessessary testing. Thanks

Yes, the genetic testing is easy, quick, affordable and conclusive. It doe not indicate active Celiac, just the predisposition for it - as well as gluten sensitivity. Dr. Peter Green, of the Columbia Celiac Disease Center in NYC, recently mentioned it on the "View" segment that he appeared on and suggested that it is a good test alternative for children that are related to people with active Celiac. I had it done last year, as you can see below I have the Celiac genes from both parents. My wife has never had classic digestive symptoms, but has gone gluten free as a result of her test.

DariFree milk alternative is gluten free also. We get it through the mail:

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The only problem is that they keep raising their prices for the stuff. Seems like every time we order it, it costs more.

Blue Smoke has a glutenfree menu, on East 27th Street, in the same building as The JAZZ Standard night club. I have not gone, yet.

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I also recommend:

Peter's Gourmet Diner & Bar

1606 1st Ave (east 80's)

New York, NY 10028

(212) 734-9600

It's in a very nice neighborhood. They have a gluten-free kitchen, and full menu. Service can be a little slow but they don't rush you out, either.

We went to Bloom's Deli, last year. It's very enjoyable to sit in a "real" NY delicatessen and actually have foods that you can eat.

Bloom's Delicatessen Cafe

350 Lexington Avenue

(corner of 40th Street)

New York, New York 10016

United States

Cuisine: Everything - Diner Style Menu with Omelettes, Hamburgers, gluten-free French Fries, and Salads

www.bloomsnewyorkdeli.com

Bloom's New York Delicatessen & Restaurant features a special gluten free menu including amazing gluten free French Fries!! Bloom's offers great deli and dinner foods such as Eggs and Omelettes, Hamburgers, Smoked Fish Platters, Salads, and Dinner Entrees including Salmon and Steaks.

Here is our favorite celiac specialist, Dr. Peter Green, founder and chief of the Celiac Disease Center at Columbia University, NYC, chatting it up with Mikhail Baryshnikov. Open Original Shared Link

Celiac Chicks have a great website with plenty of gluten free dining choices in New York.

The method works by immobilising gliadins - proteins found in gluten - on the surface of gold electrodes

Thursday, 22-Mar-2007

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The Celiac Center at Columbia will give you a very detailed Biopsy report and Celiac Disease Seriology blood test. You may want to get a bone density test while you're there, or at another time. The Bone Density test is done in another building, right in the area.

Hope you have nice weather that day - you might want to pack a lunch and stroll to the benches, near the West Side highway, where there is a great view of the George Washington bridge.

The link says that the video is "no longer available". Same day it was put online? Strange

Maybe they'll fix it.

I just watched it and thought it was excellent. Dr. Green gave a very complete synopsis of Celiac Disease, and said that the genetic testing was appropriate for family members if a relative has been diagnosed. He said, "None of us digest gluten very well. We did not evolve to digest gluten." A number of issues were covered, including DH, the common issues of "IBS" misdiagnosis', etc. We're very lucky to have people like him, and Alice Bast, at the forefront of the battle to get this disease recognized on a wider scale and slated for futher research.

The whole tone of the segment was upbeat and positive, and there was a large table filled with Gluten-free products on the set, which they discussed.

I am very happy that they did such a good job today - it was very uplifting to see. Bravo!

This article says that he has, among others, a wheat allergy:

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