ENF

I'd first make sure that this is not a bowel obstruction - they're one of the leading causes of emergency room visits, and can be deadly.

I use Benadryl, it's gluten-free and I never had a problem with it.

Is the name of it British Beer Company? Thanks.

Edit: OK, I looked it up and get it now.

If your daughter comes back positive, it does not mean that you have Celiac with false negatives, or even the genetics - she could have gotten it from her mother. I have a Celiac gene from each of my parents. As far as a "full life", we're all in the same boat - you'll just have to be gluten free so that you don't get sick. There are currently about 39 research projects to develop and test medicines to prevent cross-contamination and food poisoning from gluten, so it's only a matter of time until it gets a easier to live with it. To me, it's more of an inconvenience than a great loss. I feel so much better after decades of various problems due to gluten consumption, that the diagnosis was about the best thing that ever happened to me. I don't eat out much, and have gotten considerably healthier due to this - celiac notwithstanding.

By "set it off", I meant the start of symptoms and/or villi damage. Sometimes women who have given birth develop Celiac afterwards, other people have had it hit them after another traumatic event in their lives. Since some people have it since infancy, it can no doubt just present itself without a catalyst.

To answer your questions, yes a child can have celiac even though neither parent has it - but it has to be passed down genetically from at least one parent. About 30% of the population has one or both of the main "celiac" genes, but only a small percentage of those with the genes develop celiac. There are other genetics involved, as well as diet, and sometimes a traumatic event can set it off.

A positive blood test is usually a very reliable indicator that celiac is present, but false negatives are common so the condition can't be ruled out through this method of testing.

I don't see why your daughter can't live a full life, it's only a matter of eating what nature intended her to have. It's a hassle to get used to - but it beats the alternative of getting sick.

Since my doctor admitted that he knows nothing about celiac, how can I get to such a lab and get such results? What would I search for on Google Maps to find such a place near me?

When we did Enterolab we just filed a claim with the insurance company, and were reimbursed for most of the costs. No doctor of ours was involved in this at all. As you probably know, the results from Enterolab are not a diagnosis - they only show if you have genes and/or antibodies that are associated with Celiac and/or gluten sensitivity. The only accepted diagnostic tests for Celiac are the blood tests and endoscopy.

It's possible that you may still have enoungh villi damage left, since going gluten free, to get positive diagnosis from an endoscopy. I've had several such tests, and the last one showed villi damage even though I was gluten free for over a year.

I tried to post a short video about Celiac Genes, by Dr. Alesio Fasano, but this site's system won't let me. It is not an advertisement.

The best tests that Dr. Fine's company has are the genetic tests for Celiac and Gluten Sensitivity. If you don't have Celiac genes, it is impossible to get villi damage from gluten.

The DPP IV enzyme is supposed to work for casein, which may help you.

As far as casein, I have less trouble with goat's milk products, but even that can get to me if I overdo it so I don't have it regularly. I don't consume cow's milk, or anything that contains it, at all anymore.

Oscar Meyer Deli Fresh turkey slices are gluten free, and I've never had a problem with any of their varieties of Deli Fresh turkey. OM is owned by Kraft, and they do a great job on labeling foods that contain, or may contain, gluten.

Awesome.

So would this: Open Original Shared Link help?

I can't swallow pills. I can break them into powder and eat the powder, but I'd rather not. Anything chewable is what I'd prefer. Would you recommend this product?

Oh, and before you comment on this statement: "May be used as a companion or alternative to the gluten-free/casein-free diet", bear in mind that I intended to use it as a companion, not a replacement!

How about this: Open Original Shared Link

It looks cheap. $9 for 60. You think it's any good?

I've never tried the DPP -IV product in your link, but they mention Houston Pharmacuticals which is where I think the original line was developed. I don't think that there is a chewable DPP-IV. The only DPP-IV products that I've had are from Kirkman, and BioCore. I switched to BioCore because they're cheaper. They are in capsules, and you can order them from Amazon.

I'm not familiar with the probiotic that you mentioned, on the bottom. It looks like it has the right stuff in it, so I may try it if it's dairy-free. Good find.

Bifidobacterium lactis, in your link, looks interesting, even though it hasn't been proven in human trials to help Celiacs with gluten. There might be a type of probiotic that has it. Mine doesn't, probably because it's a vegetarian product.

Another thing that I sometimes use is DPP IV (dipeptidyl peptidase), a protease enzyme forumla. I take it when I eat out at restaurants with a gluten free menu, just as insurance against cross contamination. It's also supposed to help with casein. I can't say for sure whether it works for me, but until they come out with something better I'll continue to use it.

Since you only take it once a day, I take it that's all I need? Take it once in the morning, and then during the rest of the day, should I accidentally consume small amounts of gluten, it'll digest it for me or help it not break through my intestine? And heal my GI tract at the same time?

It helps prevent D to a certain extent, for me at least. I don't know it if can heal the gut, but I am certain that it can't "digest" gluten, or protect against glutenings.

That's an expensive product. You could buy it in capsules, and sprinkle it on your food - it's a lot cheaper. I use Kyo-Dophilus Probiotics, it's gluten free and non-dairy as well. They recommend two a day, which comes out to about 20 cents a day. I only take it once a day.

If you want to know if you carry a gene that you could pass on to your baby, then I agree with ENF to get the genetic testing done; this will show if you carry a recognized gene for celiac or for gluten sensitivity. You will then know if you need to watch your child for symptoms of gluten intolerance. This is the only test that will tell if your child has the propensity to develop this intolerance (if your child is also tested and also carries the gene); it does not say whether s/he will develop it though..............

The child could also get Celiac genes from the father. I have one from each parent.

would a regular general practitioner do this?

I don't know. I did it through the mail with EnteroLab, a few years ago. Since then, there are other places that you can do it with. I think that it was just a cheek swab, where you scrape off a bit of tissue and send it in. Here's a lab that's advertising on Celiac.com:

Open Original Shared Link

my bloodwork came back negative. i think its the IGA or something?

i have been eating gluten. when i was pregnant i ate it with no problems and now that i've delivered, my issues are back.

No one can say, because sometimes the blood work is false negative. I think that, in your case, you should first get the gene test before proceeding to make a trip that may not be necessary.

I went to The Celiac Disease Center at Columbia University, where I had an endoscopy, bone density test, blood work, and consultation with the dietician.

If you are going to be tested, you'll probably have to go back to eating gluten for the results to be accurate. In your case, I would get the genetic test done first, if you haven't already, which could rule Celiac out with a high degree of certainty. The Center's director, Dr. Peter H.R. Green, has recommended genetic testing for some individuals. It can be done through the mail by several medical labs.

But the idea that you have to have the "genetics" to develop celiac disease has been disproven. I know a lot of doctors and others insist that you have to have the genetics, but the facts prove otherwise.

There have been several members on this board and other celiac boards as well in the last few years who DID have bloodwork-and-biopsy-diagnosed celiac disease, but did NOT have the so-called celiac genes.

From the Washington Diplomat (Open Original Shared Link):

Although DQ2 and DQ8 are the strongest genes involved in celiac disease, they

I'm just wondering if you have the autoimmune responses, including villi damage and antibodies, that are usuallly necessary for Celiac Disease. You also have to have the genetics.

Is it possible that you don't have Celiac Disease?

I was diagnosed with osteopenia. I use Caltrate 600-D Plus minerals, which are chewable. I also take MagOx 400 magnesium supplements.

I don'y know if all Caltrate products are gluten free. Nature Made is another good brand that will have gluten free printed on it.

The "difference between celiac and gluten intolerance" is the billion dollar question, lol! If you asked a hundred different people, who have some kind of problem with gluten, you'd likely get a hundred different answers.

Can't answer your question about gluten ingestion, and tolerance, since I don't eat it at all anymore and do not allow myself to get cross-contaminated.

I take Probiotics, the nondairy types because I don't want to ingest any casein. It seems to help.

Sorry to hear about this. I woudn't even consider leaving the country anymore until they come out with a cross-contamilation pill. Travelling in the U.S. is difficult enough with Celiac. Even here, I have to find a hotel with a fridge and kitchen, and health food stores nearby.

I bought restaurant cards a few years ago and only used them once, at a luncheon in Alexandria, VA. I sent a copy of it to the manager weeks before the event and it was fine, all I had was chicken and salad. I just don't eat out anywhere that doesn't have a gluten free menu. It's too risky. Even some places with gluten-free options have seriously messed up my orders by including bread on top.

You can't safely eat out on a regualar basis, unless it's at gluten-free places. They don't even understand gluten-free in many hospital kitchens.

Celiac has a major learning curve. Very few restaurants can correctly prepare a gluten-free meal, without CC, etc.

I was considering going on antidepressants again (I used to take Zoloft), but am trying St. John's Wort. I've been taking this herb for three and a half weeks, but it's too early to know if it works for me. So far, I haven't noticed much difference.

My health is more important to me than a career. Therapy is for anxity and depression, not to heal your villi and cure you of Celiac. The bottom line is, as long as frequent travel is necessary, you're going to have to quit this job eventually.

Good luck.