ENF

Utterly unrelated to your question, may I recommend a bit o' hair of the dog to help you sleep? Alcohol's one of the best drugs out there for making you not care about pain. I'd also recommend a toke or two, but oh right, we haven't bothered to make it legal yet.

I agree.

Alcohol is good in some cases, but in NY we're waiting for decriminalization of the other stuff for medical use - currently there's all kinds of domestic stuff floating around but it's hard to get the right varieties for specific uses, such as sleeping, pain, etc., so I don't bother too much with it.

As long as the painkiller is gluten-free, there should be absolutely no problem for a Celiac to take them. I have never heard of opiates being a problem for Celiacs and, as I have taken them for dental surgery and had zero problems with them, I would think that just another case of misinformation. Some opiates may bother or not agree with someone but it isn't related to gluten. I cannot take codeine, either, as it upsets my stomach but I can take Vicodin, which is a powerful painkiller.

It works like a charm, too! Vicodin is gluten-free and the one I always ask for.

Painkillers given in shot form that do not pass through the GI tract would not cause any gluten related symptoms either, even if they did contain a gluten derivative.

You have to eat it for it to cause a reaction. It sounds like you are just sensitive to painkillers, in general. Many people are, especially if you aren't used to consuming them. Maybe if you need them again, ask for Vicodin. It works really well for killing pain and doesn't upset the stomach. It's one of the few that completely agrees with me so maybe you'll have luck with it also.

Thanks, but I am not "sensitive to painkillers, in general", since I can take everything else including aspirin, naproxen sodium (Aleve), Ibuprofen (Motrin), Acetamiophen (Tylenol), and others. Novacaine, which is not an opiate, is also fine. Only drugs containing opiates give me problems - and these reactions are not gastrointestinal, they're more neurological and very debilitating as well.

I know that Gluten can mimic the effects of opiates in cases of Celiac. I've also heard anecdotal evidence that opiate-derived painkillers are not good for people with Celiac disease. I have never liked Tylenol with Codeine - it makes me very weak, I feel horrible and doesn't work well for pain. I was in the hospital a few months ago for eye socket surgery. I was under the impression that I could go home the same day, and many people do for this procedure, but they gave me a shot of Demerol for pain and I could hardly move. I ended up staying overnight, and did not feel well the next day either, but went home anyway. Naturally, they gave me a Tylenol w/Codeine Rx to take with me which was useless, and I ended up using regular Tylenol. Anybody else have a problem with Opiates like this? Are there strong substitute drugs that are not derived from Opium? If there are problems with Codeine and Demerol, then Morphene would be probably be even worse. I'm concerned about possible future medical procedures.

More groundbreaking Celiac research news from Dr. Alessio Fasano and his colleagues.

Scientists Pinpoint Critical Molecule To Celiac Disease, Possibly Other Autoimmune Disorders

ScienceDaily (Sep. 7, 2009)

It seems that various states have different rules for allowing insurance companies to deny coverage for testing and other procedures. My state is pretty good in this regard, and I can usaually get whatever tests I want.

David Marc Fischer, owner of the blog Gluten Free NYC, died on Aug. 6, of a rare, agressive form of Leukemia. He was 47 years old. I never met him, but enjoyed his Gluten Free NYC blog - which is still online and contains a wealth of very interesting information and features. He was a very busy Celiac Disease activist, and will be greatly missed.

Edit: Thanks for correcting the title.

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that's great, love it.

.....does anybody else kind of chuckle when they're saying the Lord's prayer.... "Give us this day our daily bread...." I always want to say "Give us this day our daily...rice bread." lol

Alcohol (wine) and gluten (wheat) comprise the sacraments of Holy Communion, as the "body and blood" of Christ, as well.

I tried to go on Kennesaw's website, and my spyware program blocked it.

Thanks Amy, I don't plan on eating it, lol. Once in a while I have to do a reality check, because I've been so careful since learning the ropes of gluten free living over the past four years, that I get nervous when a variable like this is entered into the equation. There's plenty of non-gluten toxic things that most people come into contact with every day, that could make them sick, and they just avoid getting them into their mouths. It's a task that I think I already know how to do.

I got a haircut while on vacation a couple of months ago, and the barber used a "light hold styling cream", which they also sold in the shop. I bought a tube, without checking the ingredients. I just read the ingredients, and it contains, among many other things, Hydrolyzed Wheat Protein and Hydrolyzed Wheat Starch.

I have not have any skin problems from using it, or any other symptoms. I only use a tiny bit on my hair after a shampoo, and wash my hands after applying it, which I have done even before I knew that it contained wheat. I have not even used up 5% of the tube yet, but now I'm nervous since finding out it has wheat products in it. Should I toss it?

Hi,

What symptoms did you have from dysautonomia? and do you still have them now? I will try the supplements many thanks for your advice.

When it was at it's worst, I had intense panic attacks with gastro problems that were way beyond what I thought was "IBS". I felt like I was going to have a heart attack, and feelings of impending doom as well. Cold sweating, heart palpitation, swings in BP, extreme fatigue and weakness were symptoms - even at bedtime. Most of these symptoms have been substantially reduced, and in come cases eliminated.

Another neurological symptom was a feeling of being stuck with pins, especially in my feet/toes, but also in other areas such as arms and hands. I believe that this was a neurological symptom of Celiac, as well. I've had this for as long as I can remember, and still do. I'm used to it and it's not a cause of extreme discomfort.

There were other problems, including almost constant anxiety.

I had very low Iron, and ferritin levels were zero. I am fortunate that my wife found out about Celiac about five years ago (the anemia was a tip-off), because until then we thought that the dysautonomia and gastro problems were a result only of Mitral Valve Prolapse Syndrome. I now know that it was both conditions.

Magnesium deficiency is very common in people with Mitral Valve Prolapse, and Celiac as well.

Gluten Intolerance expert Ron Hoggan, author of Dangerous Grains, uses magnesium for rebuilding bones, and recommends it as the most important supplement for Celiac Disease.

https://www.celiac.com/articles/640/1/Magne...ggan/Page1.html

Before I found out that I had Celiac, I thought that my dysautonomia was due to mitral valve prolapse (which I have), but I now believe that it's caused by years of undiagnosed celiac and the valve irregularities as well.

Fish oil supplements, magnesium, and calcium work well for me as a general treatment for my neurological problems.

I stopped eating dairy products made from cow's milk several years ago, but recently started having goat's milk products, and have had none of the problems that cow's milk gave me in the past. It's a whole different animal, lol.

I stopped having dairy products a couple of years ago, due to casein and lactose issues. At the time, most "dairy" that I was ingesting was cow's milk products. I had tried goat's milk once or twice, but I was not yet healed enough to notice any difference.

Earlier this week, I decided that it was time to try goat's milk again, so I got some goat's milk, cheese, and kefir. I've used the milk for coffee, and small amounts of cheese and kefir. I thought that it would be difficult to get used to, at the very least, but I was pleasantly surprised when there were no bad reactions at all - in fact, my digestive system seems to have improved since I started.

Many people who can't tolerate cow's milk are fine with goat's. Goat's milk is different than cow's milk - it's pasteurized, but not homogenized, because the fat globules are much smaller than cow's milk. All you have to do is shake it before serving. I’ve read numerous reports by nutritionists claiming that it’s healthier than cow’s milk, as well.

Just as it was a mistake for humans to start ingesting gluten grains, the switching from goat's to cow's milk was also bad.

The word "dairy" should not be synonymous only with "cow"....our ancestors, and many people today, are very well nourished from the healthy dairy products from the goat - man's first domesticated animal

my chinese doctor doesnt even believe in food intolerances. he laughed at me when i told him that western medicine had diagnosed me with gluten and casein intolerance. he told me that it was the quality and quantity of the product (except for dairy products, he thinks it should be completely eliminated from the diet). he told me i should eat unprocessed 8 and 9 grain breads, but im still very wary. im not going to chance it.

To tell you to continue to eat gluten is about the worst advice any doctor could give you. I've been to several doctors who were trained in China and Russia. While they were not taught anything about Celiac Disease, once they learned about it at least they acknowledged it's existence and recognized the importance of the gluten-free diet.

I also use Source Naturals Essental Enzymes. They won't interfere with your diagnosis or treatment. I take probiotics, and intend to get some goats's milk kefir later today - which is also loaded with beneficial stuff for the intestines.

I have never had a problem with constipation. If you haven't already, I'd suggest trying more natural remedies than laxatives, such as prunes, prune juice, and other foods - most fruits and veggies are good for this.

I just found some also at stop and shop in Amesbury, MA (about half hr. south of Kittery) but maybe if there is a stop and shop near you they would carry it also.

Stop & Shop in Brooklyn, NY, also has gluten free sugar cocoa ice cream cones, by Goldbaum's.

My son recently tested positive for Celiacs on a stool sample. The dr told me we have to do a biopsy to confirm, so the nurse called me to schedule it and told me the dr is going out of the country and we can't get the biopsy done for a month! I am in Oregon and there are only seven GI docs. I have been told that we should not start doing the gluten free diet because it can sway the test. What do I do?? Any advice...I don't want to wait that long. Should I go ahead and start the diet?

Thanks Celiac Pros!!

There are stool tests for gluten sensitivity, but Celiac Disease cannot be diagnosed through a stool test. The only accepted medical tests are through blood tests and endoscopy/biopsy procedures. A blood test is usually first performed for determining whether Celiac Disease is present. A positive blood test is usually a very good indication, but false negatives are very common. The biopsy may show villi damage, but sometimes does not - even when the patient has Celiac. Often, a positive response to the diet is the best indication. Hope he's feeling better soon.

How about magnesium supplementation, with calcium? Of course, you may not need it since your diet is so healthy, but most people do, including non-celiacs. Among other things, magnesium makes my heart's mitral valve prolapse (murmer) less annoying.

Because I have reason to believe that cow's milk casein is bad for me, I've been dairy-free for several years. Tonight I had some goat's milk, with no bad reactions at all. If all goes well with it over the next few days, I am going to try introducing other goat's milk products into my diet as well, such as yogurt and cheeses.

New York City is the number one travel destination in the world for Gluten-Free dining accomodations.

Lilli and Loo, on the Upper East Side, is fantastic - my current hands-down favorite Asian food place in NYC. I was diagnosed 4 1/2 years ago, so I can remember eating at many similar restaurants in NYC, and elsewhere, before going gluten free. The food on Lilli & Loo's gluten-free menu is on a par with the best of them. They have excellent lunch specials on weekdays, which are great for a late afternoon early-dinner as well.

They deliver, within a certain distance, so you may even be able to have it brought right to your hotel.

Lilli and Loo

Pan-Asian & Pacific Rim, Sushi, Thai, Chinese

792 Lexington Ave (between E. 61 and E. 62 Street)

Double post

Hello,

There's a number of places in NYC that have menus with gluten free choices. Most of them are easily found on the internet, and in past posts here.

While these restaurants are varied and (usually) safe for gluten intolerance, there are also many other places in NYC which have delicious food that is naturally gluten free. This is the subject of an article that a friend of mine recently put on his food blog, which includes some suggestions:

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When frequenting restaurants like this, it's up to the customer to determine the risks of contamination by speaking to a manager or owner before dining.

There's seven Whole Food locations in Manhattan, and they have a good selection of gluten-free products.

Have a great time in NYC!

Imagine being a Celiac patient who is hospitalized, with nobody as their advocate, and the meals are prepared by a staff that doesn't have a clue - and the hospital's "dietician" has never learned about gluten intolerances, or how to feed people who have them. Recently, I was in the hospital and this could have happened to me, but fortunately my wife was on the scene to make sure that they didn't poison me.

We need the medicine, at the very least for those who can not prevent themselves from being exposed to gluten in hospitals and other care facilities.

If we do not support this research, who will?

I stopped consuming all cow's milk product several years ago, and have used Vance's DariFree potato milk as a substitute.

Goat's milk products are more easily digestible by people who have problems' with cow milk. I've had it in the past, and plan on getting some goat milk cheese, and yogurt, later today. Recent studies suggest that it is healthier, for many people, than cow's milk.

There is an excellent article in this month's Scientific American magazine (August 2009). It covers a wide range of information - from the basics of the disease to current treatments being researched. It also has several diagrams and illustrations that were very informative.

Happy reading!

Glad you posted this. I expect to have the August issue in few days. It sounds like it's very interesting, as well as being an excellent source of accurate information in the publicity and public awareness department.

Metamucil is pretty good. The powders and capsules are gluten free, but not the wafers.

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I don't think that it's "all natural", though.