EmilyJ93
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@Jhermes maybe a dumb question - but as long as protein powder/drinks are labeled ‘gluten free’ why wouldn’t they be safe for celiac? Asking because I use Orgain products that are labeled gluten free per the recommendation of my dietician. Thanks!
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I wondered the same. It’s possible I was glutened at a restaurant recently. I don’t really have celiac symptoms, so it’s hard to know if/when I’m glutened. I asked my doctor if it’s possible for my TTG IGA to go up that high from consuming a gluten bun if I was recently served one on accident at a restaurant or something. She seemed to think that a number ...
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@CeliacMom57 I’m so sorry to hear about your daughter’s continuous symptoms - I can’t imagine how frustrating that is Thinking of you both! Does the doctor seem concerned by the elevated TTG since her villi have healed?
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@shadycharactergood question! Yes - I just doubled checked and they were all units/ML. Most of my blood work has been done through LabCorp, although the >200 TTG IGA blood draw was done at a Quest Diagnostics lab. LabCorp considers >10 a positive result, while Quest considers >15 a positive, but that’s the only difference between the two as far a...
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Hello, When I was diagnosed via endoscopy in late December 2021 my TTG IGA was >100. I started my gluten-free diet in January 2022 and in August 2022 my TTG IGA was down to 32, which my GI doc was very please with. I just had it checked again and the result was >250!! My GI is very confused as I am very strict about my compliance, have a completely...
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Hi everyone, I started my gluten free diet a month ago after receiving an official celiac diagnosis. I haven’t really felt any different since going gluten-free, although I didn’t seem to have digestive symptoms like stomach aches when I WAS consuming gluten. Anyways, last night I had a terrible stomach ache and can’t figure out why. Everything that ...
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That’s super interesting - thank you for sharing! I’ve always thought mine was just from tweaking some muscles occasionally from sleeping weird. Interested to see if it changes once I start gluten-free!
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Yes. Just wondering if others have joint/muscle pain. Could be unrelated but just curious.
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This is super random - but does anyone get pain right between their clavicles in the front of the chest? It hurts when I take a deep breath sometimes and also is worse when I bend over. It feels like musculoskeletal pain. It only lasts for a few days and then goes away for a while until it comes back. I also have noticed pain in my neck kind of leading down...
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Soft Palate/Palatoglossal Pain/Redness
EmilyJ93 replied to EmilyJ93's topic in Related Issues & Disorders
My mouth has also been itchy. Particularly in the back. -
Soft Palate/Palatoglossal Pain/Redness
EmilyJ93 replied to EmilyJ93's topic in Related Issues & Disorders
I recently saw one 😊 They did a laryngoscopy and said things looked pretty good, but that I had signs of laryngopharyngeal reflux. My PCP that did the blood work for celiac said since I’ve been eating gluten that may be causing the reflux issues. -
Soft Palate/Palatoglossal Pain/Redness
EmilyJ93 replied to EmilyJ93's topic in Related Issues & Disorders
Thanks! My TTg IGA was 100, TTg IGG was 29, Deamidated Gliadin IGA was 60, and Deamidated Gliadin IGG was 68 - all strong positives according to my doctor. I have an endoscopy scheduled as well. That is so interesting! I’m glad you’re doing better now! Thanks for sharing! -
Hi! I was just diagnosed with Celiac after having a variety of symptoms, mostly throat/mouth issues. Since I was just diagnosed I haven’t yet started a gluten free diet. Has anyone else with Celiac had pain/redness of the soft palate and back of the mouth (palatoglossal arch) as a result of eating gluten? I also have a lot of mucus draining down t...