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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by HectorConvector
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Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
The pain preceded the weight training, but it was very slight until I started weight training. The weight training exacerbated it, but MASSIVELY. Basically took it out of control and to the point of heavy medication. At first I thought it was my higher calorie diet causing the pain to be worse but turns out it wasnt that. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Latest update. So after even more time I've become more sure about what the cause of the symptoms mentioned throughout this thread actually are. Nerve pain in feet/lower legs: caused by exercise, particularly weight bearing. Repeat experiments with weight training have now proven this, and I got rid of my weights set and stopped going to the gym... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Hi, Yeah I also cook my own meals which are typically simple with meat & veg. I don't eat rye or barley and make sure they're not in anything I buy if I buy anything processed. Not eating beans or rice atm either, though I never had problems with rice, beans, not sure. Bear in mind, I live in the UK, not sure how different it is here, but legally... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
From what I've researched, I doubt a spinal fluid leak is the cause. The headaches (more of an ice pick stabbing pain behind the eyes and in the forehead) has been now resolved - it was a direct consequence of nuts (mostly cashew nuts) and a lot of eggs in my diet. I was eating more high protein/unsaturated fat foods to reduce my carb intake thinking... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
I'm just reviving this thread to update with *factual* information. Not assumptions, or anything vague but known facts. 1). results of an MRI scan show a herniated disc in the lower spine area. However, the letter from the doctor says they don't believe this explains the symptoms. However, the symptoms were very severe and violent when I did weight training... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Finally, I'm very grateful for the advice and suggestions from members of the forum regarding my neurological symptoms, and I'll suggest some of the tests mentioned to my neurologist. I'm now going to leave this in the hands of the clinicians doing their evaluations. I am now unfollowing this thread. Thanks everyone. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
While I'm still on duloxetine and taking lots of thiamine (400+mg) and vit C (1,000mg+) the symptoms are generally consistent with no clear change in any direction, so I'll wait and see how the clinical evaluation goes, and at some point in the future when I really know something I can start a new thread and link to this one once I know some information. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Well lots of people have suggested things from their own experience, which I have considered (though not necessarily acted on yet, and I'm not one to jump to conclusions, as you have insinuated) and you describe it as a "clusterfuck", I would say it's let me discover a number of tests to recommend to my neurologist, so I can eliminate things during the clinical... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
The reality is, this being a public forum, I'm getting a lot of different people coming in reading my descriptions of my symptoms and therefore a lot of suggestions, which while helpful, puts me in a position where it's quite overwhelming, and not easy for me to know what to do next. So I've been hesitant to make any meaningful changes to my current diet... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
I'm not trying to do an elimination diet, I've been following the initial advice of Wheatwacked in keeping a dairy of food and concentrating on getting the minimum RDA of all the vitamins/minerals I wasn't getting before. I'm not sure what you mean. I've simply described the way different foods make my pain respond, and haven't tried keto or said... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Thanks for the info, agree with most of this, except I'm pretty sure I'm not getting any gluten, as I make all my food myself, and none of my utensils have ever had gluten in contact with them as I've been on a gluten free diet for more than 10 years and moved house/flat and have different utensils since then. Also, my nerve pain didn't actually start until... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Peanuts never used to be an issue, but maybe I'm starting to develop an intolerance to them? It's all a mystery. My doctor is supposed to have referred me to a dietitian but heard nothing yet. Yes I have a food diary since November 2021. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
You quoted AAARTIST not me, I don't personally drink any juices, only water. Anyway an update, I replaced the cheese with a peanut butter sandwich to get the same calories (400). Not good results. My nerve pain turned more into intense stabbing burning pains in the feet, and I am getting lots of wind/bloating etc.... which I didn't have before. This... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Not been tested for Lyme Disease. Can add it to my list of things to get checked. Don't recall having any initial signs of being infected. I don't eat anything with MSG or much L-glutamine that I know of. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
The pain is generally limited to hands and feet. Pain feels like short, sharp but intense stabs, or slightly longer, repeated burning sensations in the feet and it happens in random parts of my feet in different nerves. Sometimes it feels like something is crushing my feet for a few minutes. It can be in a toe, or the heel, top of foot, ankle. These "attacks... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
I know this thread's got quite long, but back on some previous pages I talked about all the testing of blood sugar I've done every year with a blood sugar meter (over several days and after meals) and I have an average fasting blood sugar of 79mg/dl, an average of all the days' testing I did in October last year. I'm even fitter and leaner now than I was... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
I'm currently still taking 4,000iu per day. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
My main suspicion is something like an autoimmune reaction of some kind causing the nerve damage. I'm going to have a list of tests I'd like done yes. Should be seeing the neurologist in summer. -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
What clinical means are there to find out if I'm not processing this properly? Excess protein that's not being processed properly will appear as proteinuria in the urine, which I've not had any indication of clinically, but I can always get another urine test. When I say "tolerate" carbs, I mean I'm just talking their effect on my nerve pain. My body... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
I've only done much exercising since February this year, and before that it was in late 2019 to May 2020, when I had to stop due to nerve pain. My neurologist will arrange for me to get lactate levels checked, when I next speak to him. Yes, I've avoided dairy products now since I believe, 6th April. Build up of protein, I'm not sure what that means, tbh,... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
That seems to talk about bone and muscle pains, whereas I'm getting neuropathic stocking/glove nerve pains in feet/hands only, so I'm not sure how the connection works here, and for example, my pain doesn't immediately follow a specific workout, it gets gradually worse the longer I've been doing them. Bear in mind, I had this pain before I ever did many sort... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
That seems like a possibility based on what's been said on here, and I'll mention this to my neurologist when I see him again in the summer (he can then refer me to whatever tests required). With things like cycling, I can get right into my anaerobic zone regularly where I'll get lactate build up in my legs, but never had an increase in nerve pain while doing... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Even before I went on my megadose of B12 there was no deficiency indicated from blood tests, could there be nerve problems from this even in absence of deficiency, who knows, but there'd be no way to really prove/disprove it. All I know is since I started weight training in particular, the nerve pain has got out of control again it seems. Today is terrible... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
Going through my nutrition spreadsheet, I'm getting about 200-250% of the RDA in both zinc and copper. Vit C is 1000mg supplement in addition to the RDA through actual food (usually blueberries for the most part). Having cut out dairy products there's been no reduction in nerve pain but its nature has "changed" slightly. That's all that happens if I... -
Terrible Neurological Symptoms
HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
So I'm thinking this nerve pain is in some way related to my immune system acting up. This week/weekend I have a sore throat type virus thing going on and that makes the cold spells I get and the nerve pain worse especially in my hands but it's the same type of symptoms, just exaggerated when I have some kind of infection and my immune system is reacting...