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HectorConvector

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Everything posted by HectorConvector

  1. HectorConvector
    I've never noticed problems with it myself but am taking it out to begin with owning to what Jackie said about the lactic/lactose relationship, in case it's a hidden cause of the problems. So, I'm trying one thing at a time to begin with before making any completely drastic changes to my diet. Still taking 400mg of thiamine a day.
  2. HectorConvector
    FWIW my upcoming MRI scan in June will be my second, on my first there was no sign of any abnormalities (unlike in Geoff's case). Of course there could still be (or have been) thiamine deficiency, so I'm keeping the supplement going to see if any improvements occur.
  3. HectorConvector
    Well that is interesting. Yeah I generally eat my own prepared food now so I know what's going in it. Mostly fish, meat, vegetables and some fruit. I'm taking cheese out of the diet today to see if that was causing problems but I have to replace it with something calorific though, so am using peanut butter, but that presumably would have lectins in it, which...
  4. HectorConvector
    I'll at least stop the cheese for a few weeks and see what changes if anything - then when I catch up with neurologist again I'll request blood tests for lactic acid or the anion gap test so I can rule anything out.
  5. HectorConvector
    So I do exercise on every two out of three days on a cyclical basis., and my shortest exercise sessions are half an hour, longest ones 2.5 hours. On average, they are 1.5 hours long, five times a week, so 7.5 hours per week total. This would be done at a moderate level intensity. Could that be considered excessive?
  6. HectorConvector
    I did look this up recently, in fact. I don't appear to have some of the features (like the joint issues or hypermobility), but it can be looked into. I'm wondering if I should get a DNA genetics test of some kind that could identify mutations as I think the condition I have (whatever it is) could be genetic in some way.
  7. HectorConvector
    On the back of what I said in my previous post; I think it's worth mentioning again (as it's last somewhere way back in this thread) that my nerve pain issues didn't start to get really bad until my attempts to gain weight, having been underweight most of my adult life. My first serious attempts to gain weight were in 2017-2019, during which time my nerve...
  8. HectorConvector
    I was always skinny since a child, so it seems to be genetic and because I have an unusually narrow skeleton/body (my hips are only 10" wide, and doctors even tested me for Marfan syndrome). I can put on weight these days, - but it just exacerbates my nerve pain if I eat more (of anything). I can gain muscle fine, but not really gain fat, which wouldn't really...
  9. HectorConvector
    So I get this annoying nerve pain but none of the other symptoms associated with thiamine deficiency which makes me wonder, though I can't rule it out yet. My athletic performance has increased very rapidly since starting to do my exercises (which are running, cycling and weight training) and I tend to have very high energy levels which has always been the...
  10. HectorConvector
    My neurologist is supposed to have referred me to a dietitian but the referral doesn't seem to have taken place yet (things are a bit slow due to the covid pandemic). Dunno my B12 level at this moment but I'm getting a high level from my diet (900% RDA) and 36000% RDA from a B complex supplement. I have had lower back issues for some time, so that's...
  11. HectorConvector
    Thanks, I am going to do research on this before I commit to any dramatic changes in my diet, though I'll start by stopping cheese and see how that is for a bit first. My only drink is water and I don't eat nightshade veg so that's already good. Not much else needs to be changed if I try the AIP diet as most of my diet is meat, fish and veg already. Another...
  12. HectorConvector
    The fish was not canned, no. The apple pie doesn't use HFCS, we don't use that in the UK generally speaking. I have rapeseed oil, due to it being cheaper than olive oil. Think that's OK for omega 3? Also get it from the fish each day. Still taking 400mg/day of thiamine, but I can't afford to take a higher dose at the moment. Yeah could be...
  13. HectorConvector
    Funny that when I had the worst neuropathy ever I was eating quite a lot of salmon. At the time I wondered if I might have had mercury poisoning or something. On the matter of the apple pie thing, that is just a once weekly or less thing for me, so I don't have any sort of junk food regularly, and eating much of anything carby including fruit induces...
  14. HectorConvector
    Today in the afternoon (between my two meals which are mostly fat/protein) I had a miniature apple pie and a few tortilla chips (all gluten free ones of course), this kind of thing I have once per week.. total calories, about 300. Total daily calories about 2000 today. Those things are once weekly only otherwise the only carbs I eat are fruit and vegetables...
  15. HectorConvector
    What about peanut butter, that doesn't cause me issues I'm aware of. The link with kidney beans shows I'd have to eat 300g to get 400 calories that I get from 100g of mild cheddar. I don't have any problems eating them however but perhaps not that much. I'm making sure to get some decent omega-3 with fish every day (usually at lunch time). To...
  16. HectorConvector
    I have no problem stopping dairy product (I have cheese once a day at the moment) if I can find something equally calorific to replace it with which doesn't trigger my symptoms. When I've used what cheese I already have I'll do 1 month without it and see if there's any difference.
  17. HectorConvector
    Not only been tested by doctors every year but also conducted my own tests with blood sugar meter, never had any sign of diabetes or prediabetes, my highest blood sugar on record during normal diet is just 120mg/dl which is very low (for a max blood sugar) and the fasting is around 75mg/dl. My BG is generally lower than the population average and I have no...
  18. HectorConvector
    Personally, this condition described here doesn't match my experiences, as my nerve pain became the worst ever (in late 2019) when I was eating a high carb diet, with fish as my only source of protein. I was eating a lot of gluten-free pasta, sweet potato and that sort of thing, and no dairy. My nerve pain got so bad I was almost panicking and went straight...
  19. HectorConvector
    I've heard of it, and I have thought about it before because a lot of my diet consists of meat/fish and cheese at the moment as they are less triggering for my symptoms. Maybe that's a clue already. Unlike most people I generally have to count calories to try and gain weight! I'm very thin though I'm getting 2400 calories a day, but at 6'4" my waist is only...
  20. HectorConvector
    I had an MRI scan last year which didn't show any signs of MS. I'm currently seeing a neurologist who is lining up another MRI scan including the spine as well as head.
  21. HectorConvector
    I get the recommended intake of Magnesium in my diet at the moment yeah. My financial situation is poor at the moment, so I can't buy a lot of supplements. I do take a B complex, which has 36000% RDA of B12 in it, and 1500% of B6 as well. Vit C intake is high as I supplement that as well as get it in my diet. The cheese is going out of my diet in a few...
  22. HectorConvector
    Thanks for your post. I am going to mention the anion gap blood test to my neurologist when I next see him - that will be when I have results back from an MRI scan which is still yet to happen, unfortunately quite a bit of waiting. I'm going to give the B1/Thiamine a few more weeks to see if there will be any improvement from that, then if not, I'll eliminate...
  23. HectorConvector
    Update today after being on 400mg a day of Vitamin B1 supplements for just over two weeks. So basically no improvement in symptoms, in fact in the last few days, it's getting much more frequent and severe (stabbing/crushing pains in feet, especially after meals). Also, getting terrible clammy skin especially when I've done exercise (this seems to go...
  24. HectorConvector
    Actually I've decided to start on 400mg a day for cost reasons. Still, that should be enough to make some difference if that's the problem?
  25. HectorConvector
    Interesting studies. I've seen the one about fasting blood sugar - my average from several days is 79mg/dl putting me in the lowest risk category, thankfully. Yeah when I was on Gabapentin it was absolutely awful, my nerve pain got very bad on that before I discovered duloxetine, which almost immediately reduced it. Regarding alcohol; I only drank that briefly...
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