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HectorConvector

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by HectorConvector

  1. HectorConvector
    I can improve my potassium a bit. I don't know what my iodine intake is like.
  2. HectorConvector
    Yeah I can definitely take a look at that, quite a few things to rule out still!
  3. HectorConvector
    I eat cheese to get calcium and to add up to my required calories as it's high calorie density and easy to eat (doesn't make me too full). I can easily replace it with other high calorie stuff like peanut butter but that makes my symptoms a lot worse - cheese is one of the least triggering foods for my pain which is why I use it. Worst foods are things like...
  4. HectorConvector
    Hi, I eat 100 gram of cheese a day to get my calcium requirements. I haven't noticed a clear connection between this and the symptoms, but I can't rule out a possible connection, and the acid thing sounds like an interesting one to look at, is there some kind of blood test to determine how acidic my body is? Anyway if I do have some lactose intolerance...
  5. HectorConvector
    FWIW, the blood sugar numbers I took last October were compared to Normal values of non-diabetics as established in this study: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2769652/ I put these values vs. my own into a spreadsheet in the following situations. The "normo glycaemic" values from the study are on the left, mine to the right. The difference...
  6. HectorConvector
    RE: the bit in bold: that was on the one day when I had 100g sugar/refined carbs with fat at lunch time, and did not happen again when I the carbs in half. It didn't happen after dinner because that had relatively few carbohydrates in it. For comparison these were my numbers the next day: Two hour numbers being similar to 1 hour numbers is...
  7. HectorConvector
    I see, although I never get high blood sugar personally, my highest recorded level was 122mg/dl after 100 grams of sugar was eaten (I no longer eat anywhere near that much), and the sticky skin (it's not actually the sweat that's sticky, any water on my skin feels sticky when this happens) also occurs with low blood sugar levels of 75mg/dl and anything in...
  8. HectorConvector
    OK, so tomorrow I'll get myself a high dose B1 Thiamine supplement and try that for a few weeks to see if there's a difference. If it's any help; I'll add that along with increased nerve pain the following things always happen: skin goes sticky, get cold flushes and heavy underarm sweat. All these things I never usually get.
  9. HectorConvector
    That's interesting, I'll see if I can get a blood test done for Thiamine then, I get a fairly consistent daily intake so whatever result it gives should be accurate. The only difference I notice are my temperatures inside, which average about 61-64°F, though I do wear 3 layers in winter.
  10. HectorConvector
    Hi thanks for your response. I did a very comprehensive blood sugar panel back in October 2021. These were my results (below this post), tested at all sorts of times before and after eating, those times are marked on the picture (PP = postprandial). Blood sugar level is in mmol/litre. I was drinking no alcohol during this time. My highest level...
  11. HectorConvector
    No, I've actually gained weight (slightly) with measurably increased muscle mass (I use a tape measure) and slightly decreased fat weight. Also, the symptoms are considerably worse the more I eat. When I gained more weight last October it was extremely bad. That's an interesting possibility (lactic acidosis). I also know that weight training...
  12. HectorConvector
    Time for an update. Currently getting about 2200-2300 calories of a varied gluten-free diet using WheatWacked's spreadsheet template making sure I am hitting my 100% RDA for as much as possible. Still on 60mg duloxetine per day. Now on 4,000iu of Vit D per day and taking a B complex. So, on duloxetine, during December/January symptoms were pretty minimal...
  13. HectorConvector
    I'm currently on 8,000iu of vitamin D each day. Not sure if it's had much effect or whether the slight reduction in symptoms is due to the duloxetine only, so it may have had some benefit.
  14. HectorConvector
    Interesting possibility - I'll look it it! I do have some dairy (a piece of cheese each day) and otherwise drink water (gave up alcohol, though really was always a tee-total more or less). I can try taking dairy out and seeing if there's a difference for a week or two.
  15. HectorConvector
    I know several things about it: It started in 2009 after a virus (but was mild for many years) Went gluten free after diagnosed a celiac in 2010. Been gluten-free since Deficiencies in the diet ruled out. Multiple sclerosis ruled out (had MRI scan) Nerve pain got significantly worse after 2019 when I did several weight gain attempts...
  16. HectorConvector
    The Duloxetine is helping a bit, not as much as last time in the summer. That time though I was eating less (but got too thin) and so the symptoms weren't as intense.
  17. HectorConvector
    Update: I just had this letter come through today from the hospital (or yesterday), dated 3rd December 2021. It regards my gastroscopy in August 2021. "Following your clinic appointment I am pleased to let you know that the biopsies that were taken to assess your bowel (actually it was the small intestine) are completely normal. This suggests that you...
  18. HectorConvector
    On my current diet I could increase choline. Eggs are out though as they massively increase my nerve pain from past experience so I'll increase it in another way. I'd have to request a test for homocysteine from the doctor. My cardiovascular health is known to be good but don't know what my arteries are like. My latest blood pressure readings are 100/61 and...
  19. HectorConvector
    I wondered if it was from carbs in the food as well. Not sure. I'll keep trying to improve the potassium levels in my diet. Something weird definitely is happening when I eat, not only that but the nerve pain is triggered by mental stress quite badly I've noticed (which includes when I concentrate) and to some extent by physical exertion. I'll inform about...
  20. HectorConvector
    Forgot to respond to this bit. I don't see any clear correlation with the nerve pain and type of calories, but carbs/quicker digesting foods will cause a quicker response and fats/proteins a more drawn out one. At the moment I get about 120g protein, 150 grams fat and 110 grams carbs per day.
  21. HectorConvector
    The doctor started me on a low dose of Duloxetine for some reason so it's not up to a clinically effective dose yet. I'm going up to 60mg tomorrow which should make more difference like last time. More calories/volume appears to be the main trigger yes. I am getting 20-25% more potassium than sodium as I don't eat salty food or add any extra salt...
  22. HectorConvector
    Thanks. I may not be able to find someone until the New Year, as I'm seeing my neurologist in late December, he'll hopefully be able to refer me to the right person.
  23. HectorConvector
    Been taking 8000iu of vitamin D for the last 5 days, and a B complex, and attempting to meet the RDA for all the nutrients on the spreadsheet (over the course of the past week). Unfortunately after increasing the range of foods in my diet all the severe nerve pain is coming back stronger, and getting shooting pains now badly in both hands as well as...
  24. HectorConvector
    Well an absolutely terrible day again today, unable to concentrate on anything, and made much worse the more things I try to eat. I have no choice other than to do an elimination diet - as all the symptoms quickly disappear when I haven't eaten for a while. That's why when I first get up I have no nerve pain but then it becomes rapidly severe into the evening...
  25. HectorConvector
    I think that as my condition get so much worse with more things consumed, an elimination diet is going to be inevitable in the near future. I am however thinking back to a diet I did in 2019, in which I consumed only very easy to digest meals consisting of chicken, rice, a little bit of fruit, a few nuts, some gluten-free pasta and gluten-free bread...
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