Kathryn T
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Kathryn T
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Refractory Celiac?
Kathryn T replied to J Morgan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So, I’m reading this in Feb 2022… did you find out what was/is going on? I have a story much like this that started after 6 years of gluten-free…. So, I’m reading this in Feb 2022… did you find out what was/is going on? I have a story much like this that started after 6 years of gluten-free…. -
Thank you for the updated list! We’re very much home bound, so it’s on me…
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Thank you… I am under a lot of stress, for sure. My GI specialist says it’s non responsive, didn’t say refractory… my ttg showed only a 15, which is negligible in my opinion, but they believe that is the cause. None of the GI specialists I see are very versed on celiac disease, to them the ‘cure’ is gluten free or none. There are no celiac specialists...
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Thank you, at almost 71, I’m just frustrated and have no idea after five years ‘clean’ what May have happened… Good luck to you on this journey through the unknown!
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Thank you… I’m trying to do all that daily, have almost always gone to certified gluten-free foods, but have taken any else out. Perhaps it’s just a matter of time, and rechecking the meds with the pharmacy and demanding gluten-free. The supplements are gluten-free too, so I’m playing with the idea it’s another food, also. I no longer tolerate dairy or possib...
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Thank you, I will read and absorb what you’ve written and your references! God bless and be safe.
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I actually finished checking this morning… there are 2 out of 5 that need a different manufacturer! I’m not sure that small amount would make a difference, but I’ll call the pharmacy on Monday! Thank you!!!
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Thanks, Scott! hubby is last stage COPD, I’m mostly his caregiver, only go out for picking up groceries or essentials… never to restaurants or pre made food. I am tearing apart my kitchen again as we speak, but I just can’t figure it out.
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Hi, diagnosis by endoscopy and blood tests in 2016, Marsh 3b damage. Strict gluten-free diet since, no change to HH or diet. In January 2021, a heart stent and 4 days in hospital, in late March ended 2nd Covid vaccine. Many new meds. Early April began ongoing serious diarrhea with pain in upper abdomen, daily. Many fecal tests for everything,...
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Hi…. I finished the vaccine the end of March. The diarrhea has ended and stools are better, but I’m no longer responding to a gluten-free diet. In other words, my iron, ferritin, etc is not building again. I think mine is an aberration.
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Hi! New to the group and page. Diagnosis by both IgA, IgG and endoscopy at Stage 3b, in 2016 at 65 years old. Strict gluten free diet since, but as of past April (exactly 2 weeks after my second covid vaccine), I began quick onset diarrhea and weight loss. This has lasted through August, but is now beginning to right itself. New biopsy and tests show...
