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celioops

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by celioops

  1. Recently, I've been finding that I get episodes (several days long) of forgetting to snack outside of mealtimes. I eat small meals to avoid gastro discomfort, so I'm having to force myself to eat in order to have enough energy to continue through the day. While I'm in these non-hungry spells, I find myself obsessed with *finding* food. I'll waste hours...
  2. Hi all. My appetite has changed quite a bit since diagnosis 3 months ago and I've (noticeably) lost weight. I'm satiated and eat nutritious, nonprocessed whole food. I'm running into issues with my identity and occasional cravings and am hoping for some commiseration or relief. I feel lonely and like I can't talk much about this with people in my life. ...
  3. Hey GBear, Comments on weight--especially from family--are unhelpful, unnecessary, and often wholly unwelcome. I'm sorry that you're having to put up with that. You mentioned you gained back your energy. That's fantastic! Now you get to decide where to go from here. How do you feel about your current size? If you've got your energy back and are...
  4. Smiler, It's a few months out. How are you feeling? My heart goes out to you...I had a ferritin level of 8 measured just a few weeks after your level of 5. Been <5 before and it's no fun. This time around I took iron every other day with a Vitamin C gummy and it totally worked! For some reason it absorbs better that way. If you're taking your iron...
  5. Thanks for the warm welcome, Scott. My TTG and other bloodwork was really high (20x the diagnostic minimum). It's totally possible that they didn't bother with a Marsh score. I see them mentioned so often online I thought it was just a default to get one!
  6. Thomas, I've found it to be incredibly hard to meet daily levels of certain nutrients without tracking my diet pretty carefully. If you're eating a lot of gluten replacements (corn pasta, gluten-free crackers, etc) you may not be getting a lot of bang for your buck nutritionally since they are not fortified. You're not alone. Even "regular" Americans...
  7. Hey all, Got biopsied and the gastroenterologist sent a short, informal note letting me know I have celiac and to avoid gluten. Yay! But I have questions... He didn't even give me a Marsh score, which seems weird given that most formally diagnosed people on here have one. In my post-procedure notes from the endoscopy (had to request them myself...
  8. I relate so strongly to what you said, KHL! Being able to leave chocolate untouched is very new for me. I always had to put a lot of effort into avoiding sweets because I craved them like crazy. This morning, even greek yogurt felt unappetizingly sweet. I opened one up and left it half-eaten. Surreal! To trents and for the reference of any...
  9. Hi Scott, The reference ranges on both tests were <=14.9 U/mL. I'm easily above 10x the cutoff on both tests, but am in the United States. Thank you for adding this to the conversation! I didn't know that 10x the cutoff was okayed for diagnostic purposes in Europe. I'll mention this to my doctor and let the forum know what he says.
  10. Increasing bread consumption is a good idea. My PCP said I could decrease gluten, but it's probably best to stick with the industry standard. My endoscopy is in a month.
  11. Hi all. Newbie here who was recently diagnosed with Celiac from blood testing (TTG >250 and DGP >200). While waiting for an endoscopy, I've been eating one piece of bread in the evening to keep my gluten intake in check and eat completely gluten free otherwise. I used to have an insatiable appetite (CONSTANTLY snacking and thinking about food)...
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