Wilsontribe5

I see what you're saying but he hasn't had any sort of stomach ache in 2.5 yrs. He's been 100% asymptomatic for a long time now. The slight stomach ache was only BEFORE he was diagnosed and was still eating gluten. If his Endo does show more intestinal damage then we will avoid dairy since I know it can cause more problems. Thanks

We do eat a lot of dairy in this house but I haven't noticed my son having a negative reaction at all.

I've wondered about this and brought it up with my GI Doc and she said that while he can have a negative reaction to oats it would not affect his TTG IGA numbers. I've also heard that food with lectins (like nightshades and oats) can have a negative impact but I'm not sure regarding the IGA numbers. We'll probably wait and see what the next Endo reveals...

Thanks Cristiana, I think you're right about the restaurants. I'm so careful at home with my cutting boards being brand new and never being cross contaminated as well as my pots and pans and any other potentially porous surfaces- but well meaning restaurants probably aren't as careful. I think we may try 100% home cooking for 2-3 months and redo the...

Our GI Doc recommended the stool testing. It casts a wide net, so it's hard to pinpoint exactly where you get glutened but it does indicate if you were glutened in the last few days. But I do get what you are saying about the the handling being different every time, so it's just possible we need to stay away from restaurants for a time. Yes me and...

My son was diagnosed in Feb 2019 when he was 7 years old. He would only get slight stomach aches, his main symptom was that he wasn't growing well (which we later found out was actually due to growth hormone deficiency). So I think he's mostly asymptomatic other than slight stomach ache. While this is good, it makes it almost impossible to know if he gets...