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Gilly M

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Gilly M

  1. Gilly M
    I've taken 1/3 B complex so far and 250mg Thiamine HCl. I'll take more in an hour. Last week I took 500mg, it made me feel worse the next day ...it massively increased dumping. I am fearing this again....so maybe I can prepare myself my taking more Mg(400mg) and more K food/drink in day perhaps with K citrate supplement added.
  2. Gilly M
    Hi....I'm struggling to get the Drs onboard with thus. I went to the hospital but they wont entertain it either. I am now flushing face, breathing.issues, burning arms, nauseous. They say its all anxiety and that anxiety can be extreme. I'm questioning myself now!! But surely such extreme symptoms are not just anxiety. I have severe headaches and weird...
  3. Gilly M
    Hi...symptoms came on on the night....I took the supplements that morning. I have read that b1 can be a histamine liberator in sensitive individuals. I haven't taken anymore yet.
  4. Gilly M
    I took 450mg. 260mg Mg. 0.5 B complex. Potassium.foods. There were times in day I definitely felt calmer. But then times everything came flooding back.....muscle tremors, tingly lips, burning feet, nausea, head pressure, tingly hands and feet, anxiety, shivering. I have slept 5 hours (taking herbs) and women with all these symptoms and mind racing....
  5. Gilly M
    Potassium supplementation too....or just include fruit /veg /juice/meat?
  6. Gilly M
    Hi,thanks for prompt reply. My Dr doesn't comment on the dumping. I don't seem to excrete via urine....its via skin and mostly stool. I seem to dump more when I increase b1, exercise, go too low oxalate. I get all my info via TLO Facebook site. But maybe I just need to go for it...I'm.getting such weird CNS symptoms....hard to explain....like electricity...
  7. Gilly M
    Hi ...thank you so much for all.this. One thing holding me back....dumping....Trying Low Oxalate forum members speak a lot about increased dumping and then histamine issues and then.more anxiety and insomnia ...after increasing B1. If I didn't have signs of dumping I'd go for it...but this makes me super cautious. I know you don't think...
  8. Gilly M
    What magnesium would you recommend? And what dose to start with if I take 1 B complex and an extra 25,mg B1 today? I'm nervous about doing it...but last night was awful.... so little sleep, agitation, and waking up in a panic if i did get to sleep. I'm.blaming it on foods, histamine, dumping. I didn't have this anxiety or low mood in 2022 before I...
  9. Gilly M
    Hi Knitty Kitty, I'm worried the B complex is actually adding to anxiety and keeping me up at night- this is maybe me overthinking it, but the methylated B's in the complex can cause this in some people? I'm only taking a very small amount of B1 so not too concerned with supporting the other B's right now?????(I may be wrong in saying this), but if...
  10. Gilly M
    PS....my vit D levels are pretty good at 95mmol/l
  11. Gilly M
    Brilliant. Thank you! So the sandy stools may not be oxalate at all?!! But undigested food!!? But I only started getting them when I went low ox and added in B1?? I don't have diarrhoea....just sandy stools...quite normal otherwise. I have taken a quarter B complex with an extra 25mg HCL.... Am I being too cautious?? Yes! I have rest that...
  12. Gilly M
    Thank you. I am so lost right now. I feel in 24hour fight and flight. I feel so low. So anxious. In 6weeks my life has just 180degree turned. Nothing seems to bring me joy. I am shivering a lot. I have nocturia. I am dumping oxalates via stools loads. I get weird zapping/tingly/ tightness over face/neck/ head What do you think about this B complex...
  13. Gilly M
    Hi Knitty Kitty,. The Dr thinks all my symptoms are due to anxiety and depression.....and these are causing the insomnia. She gave me sleeping tablets for emergencies. Without them I'm very anxious falling asleep and have panic attacks. I am.low in mood, yes. But I do feel that other things are adding to it I think I'm reacting to histamine...
  14. Gilly M
    Hi, I had a Drs appointment today and am getting bloods taken tomorrow.....iron panel electrolytes, vit D. So I will wait until after that before I change anything. The Dr was very caring and concerned and wants to see me back tomorrow. Thank you so much for this wealth of info Knitty Kitty.....I think my Dr is very open and flexible to my ideas and input...
  15. Gilly M
    Hi Knitty Kitty, thank you so much for getting back to me so quickly. I'm so grateful to you...... Last year I was up to about 300mg benfotiamine and 300mg B1Hcl. I reduced gradually until only on 100mg b1Hcl in my B complex. I think I reduced because my sleep was getting light and I was dumping lots(although its a bit vague now...I'm not the best...
  16. Gilly M
    Hi Knitty Kitty, I hope you're well. This is a bit of an emergency message:( Since last year, I gradually reduced all my B supplementation down until just taking B complex over Xmas. I was also experiencing more stress, poorer sleep and drinking alcohol(I'm normally Tea total) and likely more carvs/refined foods. I was also skiing intensively...
  17. Gilly M
    Hi. Great to hear from you. Just a quick message from me for now and will read your message again later. Your reply couldn't have come at a better time. I just tried a run...I was very wheezy. I was thinking it was maybe dumping reactions. But niggling thoughts about dairy cropped up...I ate quite a lot yesterday. In fact, the run felt pretty bad with...
  18. Gilly M
    Hi, I'm so sorry for the delay in my reply- especially after your prompt one! Been a non-stop weekend. Even writing that shows me how much I have improved as "non-stop" was not in my vocabulary a month or so ago! Thank you for all those tips Knitty Kitty. Vit D- last blood test result was in February this year and it showed 108nmol/l. I think I was...
  19. Gilly M
    Hi Knittiy Kitty, Just a quick update on how things are going- I have noticed a definite shift in the positive direction Things that have improved - less malaise, no nausea, virtually NO headaches!!!!, more motivation for life, less fatigue, less ravenous appetite/more stable appetite, lips now mostly pink and moist instead of pale and chapped...
  20. Gilly M
    Forgot to say- I'm taking 420mg magnesium daily- split throughout day- magnesium citramalate first half of day, magnesium citrate PM. I likely have scope to increase this.... to bowel tolerance.
  21. Gilly M
    Hi, I was just about to tuck into my yogurt and fruit breakfast- and I read your message- so I out the spoon down! I'll try no dairy this weekend. (Butter too??) In the past I have tried dairy free and I feel my sleep really deteriorated. I was also concerned about where I would get my calcium sources from which resulted in me eating the high oxalate...
  22. Gilly M
    This is so helpful Knitty Kitty. Very coherent and logical, thoughtful and kind. Thank you. This is a real eye-opening fact:- Thinking and worrying causes the brain to use up as much thiamine as your muscles use in running a marathon.!!! I must have zero stores!! Yes,I overthink EVERYTHING!! My supplement B complex only has 10mg B6 so I'll have...
  23. Gilly M
    HI Knitty Kitty, I am not sure now about my intolerance to thiamine HCl. As well as I can recall it, I started thiamine HCl, reduced my oxalate food consumption, and I started "dumping". And sleep reduced. It may be the a PRODUCT of taking thiamine that is the issue (eg. oxalate dumping) that I am not tolerating, not the thaimine. May I write my...
  24. Gilly M
    Hi- thank you for this information. I have backed off my dose of B1 a little bit- I just take thiamine hydrochloride at the moment. I think I am quite sensitive to it- taking only 200mg right now. I wonder if I just need to plough on though and try to increase the dose.... I'm on quite a low dose compared to the subjects in the study about IBS fatigue...
  25. Gilly M
    These are EXCELLENT resources to have Knitty Kitty. Thank you for digging them out for me! I've read through most of them, some in detail,some in less, but I'll peruse them later too(I'm having a particularly foggy and fatigued period right now so little and often is best when reading!) I definitely think that is what has been happening- You wrote...
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