Ruth

celiac3270,

Thanks so much. Your lists have been a huge help. I called Risotteria (sp.?) and they were so great...can't wait to go there! Also, Bloom's Delicatessen & Cafe.

We will seek out other delis, health food stores, etc. as you mentioned.

We are doing the whole tourist thing: Statue of Liberty, Central Park, Empire State Bldg., etc.

I've got the "mom thinking her kids won't eat" panic setting in.

I'm sure armed with "the lists" and "emergency snacks" it will be great!

Thanks again.

We are headed to NYC next week. With lots great input from this board, we have our dinner "plan of attack" in place... now my big question ...any ideas for fast lunches? I won't be able to lug around my cooler, I'm planning on putting a few Balance Bars, Rice Cakes, fruit in a back pack. Any other thoughts would be great!

funny how more planning goes into eating than sightseeing!

Personally, I don't take communion anymore. The doctors I consulted said low gluten hosts will damage the intestine overtime. For my daughter's 1st communion last year she (and I) received the low gluten host (from the benadicine sisters, mentioned above). I explained to her that until a completely non-gluten host is acceptable this would be her only time receiving the host. Each time we go to mass we "remember" her first communtion and recieving Christ.

I know this is unorthodox, but it works for us.

The priest also offered the wine instead, but it is a shared chalice and I don't want to risk gluten contamination among other things.

This is an ongoing dillemma for me... I wish there was an easy answer.

Funny, It seems like it should be the other way around... find dietary solutions for diseases that currently require medication...

Although it's not easy, I'd rather change my diet than take a pill any day.

Not as dramatic... but how about being told for months/years that the extreme tiredness, dizziness, weight loss, chest pains, muscle pains etc were because "You're a mom with three young kids so of course your tired all the time" and "you're running around with young kids so you're losing weight" and "fibromyalgia, it'll never go away"

UGH!!!

I was often met with the "if you look good, you can't be sick" mentality. Might be interesting to show society's twisted sense that if your skinny it's all good... doesn't matter how you feel.

Until of course you're really sick... Dr. House to the rescue!

I just had to add my 2 cents about Philly Swirl!

It is a great company... I too received the emails/letter/coupons from Alex.

We love them not just b/c of the gluten-free aspect, but also the facility is nut free... all my kids are allergic to nuts, two are gluten-free.

I give the coupons to friends who wonder what snacks to have on hand for my kids.

This is a small company with a big heart.

I hope they make it!

Thanks!

Your input is very helpful as always!

Thanks for the list. We are heading to NYC in April... any additional information from people with celiac kids would be great!

We are staying at a hotel with a microwave and small fridge which will make life a bit easier, but most dinners/lunch will be eaten out or thru take out.

My gluten-free daughter will eat anything, my gluten-free son however is a chicken nuggets/hot dog man. He won't eat bunless burgers, plain chicken or steak. (Not so convenient to be gluten-free and picky! ) We also have a four year old (not gluten-free) Any ideas?

Thanks!

Hi Brandi,

Kelloggs changed their recipe about a year ago... it's good you read the label!

Right now, here are the cereals my kids eat:

Post Fruity and Cocoa Pebbles

Trader Joes Sweetened Corn Puffs (just like Corn Pops)

Health Valley Rice Crunch 'ems (Just like Rice Chex)

Also, recently in the gluten-free food section of this message board I started a topic called "Mourning Corn Pops?" in the thread, a few people mentioned some Malt-O-Meal cereals available at Wal-Mart that are gluten-free. I haven't tried them yet.

All the best,

Ruth

Oops.... just reaized, he prescribed Pevicid NOT Prilosec (he rambled off a bunch of meds...)

Any info on Previcid children's prescription 30mg tablets that disolve in the mouth would be great.

celiac3270,

You mentioned you took Prilosec, was it the over-the-counter kind or the prescription kind for kids?

My son was just prescribed the "disolve in your mouth" tablet for kids (prescription only).

Haven't heard back from company or pharmacist yet.

Thanks!

Congratulations on the diagnosis! You must be relieved.

Grilled cheese made with gluten-free bread is a big hit... you can't really tell the bread is "different" when it's toasted/grilled.

Also, yogurt, cheese, rice cakes, hunt's snack pack pudding, and regular fruits and veggies are great.

Foods by George makes great frozen baked items (we get them at Whole Foods)

Also, Chicken Nuggets by Welshire Kids and OreIda fries (some varieties... such as shoestring) are good. Keep a frozen batch of gluten-free brownies/cupcakes in the freezer for b-days, etc.

Keep trying the pasta... she will learn to like it. My family can't tell the difference now, but it took a few months! Try hiding it in a sauce she likes.

All the best,

Ruth

Chocolate Balance Bars are my 6 yo son's favorite food.

We only eat the "regular" balance bars, not "cruncy" or "gold"

My daughter prefers the EnviroKids bars.

Also, we keep in the freezer (at home and school) a supply of gluten-free (Danielles gluten-free Pantry) brownies in ziplock bags. They taste good straight from the freezer. And can be eaten whenever there is an impromptu snack or party...

Hi,

Next month I am attending the first meeting of a brand new gluten-free group in my area.

I've never been to a "support group" for anything. Just wondering if anyone has any tips for a successful group -- what sorts of things does the group discuss? Are they formal, with speakers, etc? Or social... just to chat, share experiences and good gluten-free food? I'd like to bring your input with me to the meeting!

I'm sure the group will include people of various ages/in different stages of life (single, parents of gluten-free kids, senior citizens, etc.)

Thanks,

Ruth

Gillian... I did'nt ask about crosscontamination, but we are pretty sensitive and so far so good... I will call though.

Tania... Where is Wegman's? Is it a brand or a store? I haven't seen it in New England.

Thanks for the Malt-O-Meal tip. I'll have to pillage the local Wal-Mart before they add wheat. (Last year we bought 11 boxes of Kellogg's Corn Pops before they added wheat... my kind hearted daughter suggested I leave some for other gluten-free families, I'm sure we will do the same at Wal-Mart)

Thanks,

Ruth

I just got a call from Trader Joe's that their "Sweetened Corn Puffs" are gluten-free. They do not appear on the company's gluten-free web listing... but when I saw them at the store and inquired about them, the manager called "corporate headquarters" and called me at home to tell me they were indeed gluten-free!

So far we've had no problems with them.

Enjoy!

Ask the pediatrician for a full celiac panel blood test. If you can get a referal to a pediatric gastroenterololgist that is even better. The gastros are the only doctors I have come in contact with that know about celiac....I feel like I am educating the pediatrician on it sometimes.

Good luck!

At least it is a step in the right direction. If doctors test for celiac based on other illnesses (osteoporosis, anemia, etc) that's a start.

I bet the pharmaceutical companies with drugs to reverse osteoporosis won't like this... hmmm.

Check this out:

Open Original Shared Link

The most emailed story of the day...

Stoneyfield will not confirm that their flavored yogurt is gluten-free. (they only say plain is..) It made my daughter sick.

Check out their web site www.stoneyfield.com

Horizon is gluten-free and organic.

Hi just looked this up & thought I'd share:

From Cavendish Farms' web site:

Are your products gluten free?  Answer: All of the french fried items we make are gluten and lactose free. Our Patties and Nuggets are also gluten and lactose free, but our battered products and Crowns may not be, depending upon the ingredients used to prepare the individual items. Any product with Wheat Flour on the Ingredient listing contains gluten.

Rolos are gluten-free and they contain caramel... don't know if this helps but maybe it's a good substitute for you.

P.S. If you have a nut allergic and gluten-free kid... PhillySwirl makes some great frozen treats that are made in a nut free facility. Not all products are gluten-free, but they boldly mark those that are.

You know that if this were a peanut allergy, the teacher would completely understand and not make peanut butter cookies!

Sounds like this teacher needs to be educated. Your child should be able to participate in the preparation and eat the prepared snack. There are some great kid-friendly gluten-free recipes on this web site...

Open Original Shared Link

I hope the teacher understands and sees that cooking gluten-free is not scary, or strange. It won't even have to be mentioned to the rest of the class... except of course with the parents of kids with other allergies!

Good Luck!

It's so hard with the little one, not knowing exactly what is causing the issue. I know the listerine pocket packs made me feel sick. I never received an answer either, but avoid them now.

Be sure she is not "sharing" food at school. Or having others share her food. Putting their "gluten-covered" hands into her snacks!

Have you checked vitamins, medicines, creams & lotions, chap stick?

Is she licking stickers at school? Sometimes these have gluten in the glue.

Last year I made the mistake of giving my daughter yogurt that I thought was gluten-free... it wasn't. It took a week to figure it out. But she was back on track once we cut it out.

Good luck. Let us know what you find out.

I think we had a "bad batch" of Fritos this fall. We all had our own personal symptoms of eating gluten, and Fritos was the only common food...

We have always been fine with Tostitos and Green Mountain Gringo tortilla chips.