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Maryspoon

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  1. icon 1desperateladysaved reacted to a post in a topic: Drs won't take me seriously
  2. icon GB2018 reacted to a post in a topic: Drs won't take me seriously
  3. icon Maryspoon reacted to a post in a topic: Drs won't take me seriously
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  5. Maryspoon
    Woah that's a lot of information! Thank you for your in depth reply! I agree I need a better Dr, I think with being autistic and a young woman with chronic problems they just don't listen properly and my explaining isn't always the greatest I will have to give those a read today! Thank you:)
  6. Maryspoon
    My husband eats gluten and could be giving me traces, I ask him a lot to be careful but he has ADHD And yeah I've noticed soy makes me ill but I think I'll have to be more thorough with figuring it out and try that diary like you said
  7. icon Maryspoon reacted to a post in a topic: Drs won't take me seriously
  8. Maryspoon
    Can chrons imitate celiac? I think they did say it could be an IBD too at one point, can you have both?
  9. Maryspoon
    Due to my autism I really struggle with the diet before hand, the bowel prep and having the support during, that was what the drs referred me for but I'm still waiting on social services to give me a chaperone and would probably have a meltdown without due to over stimulation They must not seem to think I have celiac then if they referred me for that...
  10. Maryspoon started following Drs won't take me seriously
  11. Maryspoon
    So I can't get a DX because I can't eat enough gluten and my autism prevents me being able to go to the colonoscopy since there's just not enough support in place, I've been getting extreme fatigue and shortness of breath for years, drs checked everything says I'm fine, had x-rays, ecgs, blood tests ect I definitely notice it's worse when I get glutened,...
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