Jamminonthe1

Yeup

Not sure if I can, but I’ll try. This is anecdotal mostly. The reactions in the gut, or skin are complex. Eosinophil migration and things like this are autoimmune in nature, which is generally an enigma, even to health professionals. There are many variables, and similarly, outbreaks vary in intensity and duration. I don’t believe a measured amount of ...

Matt, Two of my four children have celiac, as do I. Similarly, I avoid gluten at all costs. We cook a lot at home and carefully eat out infrequently. I am gluten free essentially. I never consume it on purpose. It seems clear through the years that occasional outbreaks will occur despite my best efforts at dietary compliance. I oftentimes don’...

Celiac reaction doesn’t necessarily have a linear reaction. . .in other words, strict diet -could still result in DH exacerbation sadly.

Also, If DH is your Dx, dapsone is the Rx. Cream, vitamins, and antihistamines just won’t get you where you want to go. I swear it started noticeably working within hours of my first dose, and I had been suffering for months- scratching in public like some kind of. . . Good luck.

Drobs, What was the verdict? Seems like DH. The incessant and relentless pruritis you described is a key indicator. It took me months to get an answer. I was 18, and similarly, this is how my Celiac Dx was initially found.

Mathew, I have celiac sprue and DH. Dapsone saved me from my symptoms. I had a lot of gi symptoms in childhood, but after 18, DH was my chief symptom. Dapsone worked 100 times faster and better than anything else, and it’s generally safe if you don’t have g6pd deficiency, which I believe your doctor has checked. The itching from the DH is so sev...