Maimoudaki

Hello trents and thank you again, Yes I begged them to do genetic testing on my son when they bled him for TTG but they said it was not part of the protocol. As if it is a joy to them to keep bleeding tiny toddlers on regular intervals...what can I say?! So frustrating.... I have booked an appointment with my GP next week and I will ask for a...

Thank you. We live in the UK. When I told the nursery manager about gluten free diet because I am concerned, they said that they will accommodate for now but they are waiting for some formal correspondence from NHS healthcare professionals. This has put extra worry/pressure on me as it sounds like until they have that, they won't be very strict. Which is...

Thank you for your reply. Yes I will definitely keep him gluten free! He has gained 250 grams within a two week period! I worry that without a formal diagnosis childcare settings will not be very strict/careful about it if that makes sense. Also as a teenager, a doctor will convince him better than just his parents I believe. I have also started a...

Hello and thank you for your detailed reply. This forum is very helpful and much needed during what it seems to be “a pandemic of defensive medicine” …especially for coeliacs as it feels like an ignored group of patients to me. Regarding your first comment, I appreciate your viewpoint of having waited for the appointment before getting gluten out o...

My 18-month-old has always been a fussy eater with poor appetite. Since starting nursery he’s been having increased bread consumption as frequent toast with butter snack at nursery. We noticed that his belly was bloated significantly and his thighs were wasting. His weight dropped a centile going below 0.4th centile. I suspected coeliac and started h...