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DebJ14

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DebJ14 last won the day on April 22 2024

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  1. DebJ14 started following Muscle Twitching , Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you! , Royal Caribbean Only, Please and 2 others
  2. DebJ14
    Good luck to you. I would not get past that first slice of bread. I would be vomiting and have diarrhea within 30 minutes and it would continue for hours and I would feel like I was hit by a truck for days. My functional medicine doctor told me to stop taking Calcium and to significantly up my Vitamin D, add K2, lots of Magnesium, some boron and collagen...
  3. icon Scott Adams reacted to a post in a topic: Royal Caribbean Only, Please
  4. DebJ14
    We are off next week on our 9th RCCL cruise since our diagnoses. I send an email to special_needs@rccl.com before every cruise letting them know that I am both dairy and gluten free and my husband is gluten free. Unfortunately, with the new menus they introduced in 2023, they removed the gluten-free designation from each item on the menu. Instead of having...
  5. icon Scott Adams reacted to a post in a topic: Enegy level extremely low
  6. DebJ14
    My iron was not low, but my B-12 levels were extremely low. I had zero energy. I had micronutrient testing and I was put on a boatload of supplements. Everything recovered pretty quickly except for my D, B12 and antioxidant levels. The doctor ordered genetic testing and found that I have a genetic inability to process all three. Thus, my dosages were...
  7. DebJ14
    They will have to put him back on gluten in order to get accurate tests results, so all the progress may be lost for a while. My grandson was 2 1/2 years old when he, his father, and his mother, were diagnosed. He was not even on the chart for height or weight and had not been on the chart since he was 12 months old. The first month he went gluten...
  8. icon Scott Adams reacted to a comment: Diagnosing Celiac Disease in Children Using Dental & Oral Manifestations
  9. DebJ14 started following Diagnosing Celiac Disease in Children Using Dental & Oral Manifestations
  10. DebJ14
    This would be wonderful. I suffered from those horrible mouth ulcers until I was finally diagnosed at 54. I had one that day, and it was the last one I ever had. The inside of my mouth is covered with scars from those painful ulcers. At my first dental appointment after I went gluten free the dentist remarked that it was the first time in the 25 years...
  11. DebJ14 started following Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology , Confused with test results , Joint swelling when ill even on gluten-free diet and 1 other
  12. DebJ14
    If your son does go completely gluten free, then he will find that occasional consumption of gluten will result in a stronger reaction. The longer you are off of it, the worse the reaction. When I was first diagnosed I would break out in a rash or get a headache if I consumed gluten. As time went on I would get diarrhea and vomit profusely. The time between...
  13. icon DebJ14 reacted to a post in a topic: Ore Ida Tater Tots Gluten
  14. icon DebJ14 reacted to a post in a topic: Different gluten sources causing different symptoms?
  15. DebJ14
    YES! I had the Spectracell test for micronutrients and take targeted supplements in specific doses as recommended by our Board Certified Nutritionist.
  16. icon knitty kitty reacted to a post in a topic: Joint swelling when ill even on gluten-free diet
  17. DebJ14
    Nobody told me about the high dose Thiamine, but when my husband was injured he was put on it, so I started taking it too. I definitely saw improvement. At this point my biggest concern is my right foot/ankle. Tendon tears have taken a toll. My Achilles did not rupture, but had multiple small tears. I underwent laser and ultrasound therapy to help heal...
  18. icon Scott Adams reacted to a post in a topic: Finding out I’m coeliac whilst pregnant
  19. DebJ14
    I too have had horrible joint pain and swelling as well as chronic tendinitis. A good diagnostician reviewed all my medical records and realized that it all started back in 1987 after a course of Cipro for a sinus infection. He also linked subsequent severe flare ups in my ankle, shoulder, and elbow to repeat prescriptions. I was floxxed! My poor...
  20. DebJ14
    This is concerning. Not only do you have a higher risk of miscarriage, but you also have a much higher chance of having a low birth weight baby. If you are not absorbing nutrition because of celiac disease, then neither is your baby. And, if you continue down this path your breast milk may not be as nutritious as it should be either. I had 2 miscarriages...
  21. DebJ14
    When I had my worst outbreaks of dermatitis herpetiformis it was on my upper arms from elbow to shoulder. I never wore sleeveless or short sleeves to school, even in hot weather. I always had to have at least a 3/4 sleeve cotton shirt under my sweaters to keep the weeping blisters from leaking through the sweater. A few years later I had a weird bout...
  22. icon Beverage reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  23. icon knitty kitty reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  24. icon Scott Adams reacted to a post in a topic: Positive Genetics (HLA) DQ2 and DQ8 and histology Marsh 3b but negative serology
  25. icon Scott Adams reacted to a post in a topic: Vitamin supplements
  26. icon Scott Adams reacted to a post in a topic: My parents have friends coming over to our house,risk of gluten could be really high
  27. DebJ14
    Our son who has Celiac had the bloating, distension and pain. The gastro told him to take Prilosec. When he stopped after the 14 day course, it came roaring back. He went to a different gastro and was advised that is problem was not enough stomach acid, which the Prilosec made worse. He takes Betaine HCL at each meal. It took a while to calibrate the...
  28. DebJ14
    I split my Mg dose daily. I take the Mg Glycinate in the morning and Triple Source in the evening. I also found that I slept better following that plan. Also, the Glycinate did nothing to stop leg cramps. Haven't had one since I switched to the Triple Source at night.
  29. DebJ14
    Thankfully, everyone in my family respects my diagnosis and agreed to go gluten free when I was diagnosed. When the doctor told them they needed to be tested too, they complied, even my hubby. My husband and one son have NSGS and our other son, his sons and his wife all have celiac disease. Our households do not permit anyone to bring anything with...
  30. icon DebJ14 reacted to a post in a topic: My parents have friends coming over to our house,risk of gluten could be really high
  31. DebJ14
    I just looked up Vaginitis in the textbook Recognizing Celiac Disease: Signs, Symptoms, Associated Disorders & Complications. On page 231 they discuss Vaginitis. The book says it is frequently associated with celiac disease in females and that it results from nutritional deficiencies that cause a lack of tissue integrity which include Folic Acid, Niacin...
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