Ava B
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I have celiac disease diagnosed via endoscopy 5 years ago. My son was diagnosed via endoscopy at 6 years old after he began experiencing abdominal pain, vomiting and loose stools (At diagnosis his tTg was near 200). When his younger sister, who has selective IGA defeiciency which was diagnosed when she was 2yo, which prompted doctors to initially suspect...
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I used to bake with gluten-free oat flour (BRM) almost exclusively and everything I made was delicious, but when my son's antibodies continued to be elevated despite an extremely strict diet, I was advised to try eliminating oats. It helped a lot, (although his Ttg is still not back to normal). I have not found a flour or blend that works as well as oat...
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I was just discussing this very thing last evening! I actually regret eliminating oats and dairy at the same time, because now we don't know which one was the offender. Looking back, I wish I had first emimnated oats only, because cutting all dairy products out was such a huge decrease in calories and fat for him. I sort of panicked because his doctor had...
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Thank you so much for sharing your experience Darren. I was diagnosed through biopsy a few years ago, and like you, I was asymptomatic aside from being diagnosed with iron deficiency anemia years before. The only reason I was tested at all was because my son was diagnosed so I asked my physician if I could have the antibody test done as well. I really don...
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Thank you so much for sharing your experience. I'm really sorry to hear that your daughter is still having nausea and bloating, that must be so frustrating for her and for you. It sounds like you've done everything in your power to get to the bottom of this and to help her. I admire your dedication and perseverance, trying all of the special diets you've...
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I have heard this as well and in fact, I consulted a pediatric GI in NZ who seemed to have a different way of looking at things when it comes to the tTg and the time it takes to heal. It was really eye opening. My son hovers around the 38th percentile for height and the 29th percentile for weight. He does experience bouts of acid reflux, which his doctor...
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Thank you so much for sharing all of this info with me. I have heard of this diet, but I will pick up a copy of the book you mentioned. I agree that a lot of doctors don't consider the possibile benefits of supplements. Thanks for sharing about your experience with EOE!
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Thank you so much for your reply. I will certainly look into the allergy tests you have mentioned and maybe it will shed some light on things. The grain free diet might also be an option. My son has just turned 10. He was diagnosed 3.5 years ago after biopsy (this was also when EOE was diagnosed as the doc noticed slight inflammation in the esophagus at the...
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My son was diagnosed with celiac disease and EOE 3.5 years ago, and I was diagnosed just one month after him. His tTg was 189 and mine was 211. We both began to follow the same strict gluten-free diet immediately, and within 6 months, my tTg had returned to normal while his remained significantly elevated. I make all of our food myself, he is also allergic...