Tritty

OK - so I can't figure out how to insert questions from your posts so you can figure out easily which ones I am answering - like I said - I'm new at this....

Being gluten free for me is not as difficult as it sounds. I have my own cereal or I eat a banana for breakfast. I make the kids cereal, etc. I let them eat whatever for lunch - gluten or not. (Now by whatever, I don't mean I don't pay attention - I always have a protein and a fruit and a grain). I eat lunch when they are napping (or at work on the 2 days I work) - so there are no cc issues there. Dinner is always gluten free. I refuse to make seperate dinners

When I spoke to my ped about all of this - I did not have a ton of knowledge (not that I do now either!). I had just been diagnosed that week and was still absorbing it all. He said if there was one I was worried about in particular he would test them just to ease my mind. That's why I he tested my youngest. So my guess is that he will do whatever test I finally deem necessary. He said he went to a roundtable held by our local Children's Hospital about GI issues and they did talk about some of the tests for celiac there. He was very interested in my symptoms and which test my doctor used and wants to keep updated on me - in case of similarities.

My youngest started out around 90% at birth - I have big babies By week 10 he was 50% and is now 25%. He goes back in a week for his 1 yr checkup - so I'm anxious to see where he is. I've always attributed his being small to how active he is (he crawled at 5 months and walked at 9 - he's not 1 yet and he runs!). He doesn't eat a lot - he HATES baby food. He'll only eat what he can feed himself. Very strong willed

My oldest started out 100% and is now 50%. My husband is not a big guy - he's only 5' 11" and I'm 5' 8 1/2". So 50% is about 6 ft. So at 25% he's not SO little, but he's still little compared to my other two (My little girl is 95% still!).

I've been leaning towards the genetic testing, but I didn't know how involved that was or how acurate in little ones. Is that something that can't be wrong? I would think that would be the easy way to go - then I can just test the ones who have the gene every year or so...

Hey and while I'm at it - how do I get my pic to show up on the side under my name?

Just out of curiousity - what did you order? I am so new at this and we used to go there after our girls night out volleyball league and get appetizers and a drink. I've been once since and I only ate the chips - it was all I could figure out that was OK without getting so frustrated. I'm still working on learning everything I need to ask...

Hello! I was recently diagnosed with celiac through bloodwork and then it was confirmed with a biopsy. I have 3 small children: 3,2, and 11months. I had the baby tested via bloodwork because he is so small (he has no other "symptoms"). It came back negative. They also did a nutrition panel of iron, electrolytes, protein, etc. just in case it showed up a false negative and he was suffering nutritionally. They came back excellent - so no worries about him for right now. I know it can show later - my ped said to not rule it out if something else comes up.

However, I can't decide what to do about the other two. My ped says they are young for the test (he'd prefer them to be over 5). They have no symptoms. They are healthy and happy and plenty big. Do I not worry about it until they're 5 or showing some signs of an issue (gastro or otherwise)? Or do I test them for the gene and then every 2 years or so for celiac just to make sure? Or any other suggestions?

I'd prefer not to make our whole house gluten free if I don't have to - I know it's harder on me - but I make all of the food anyway and we are just extremely specific about where they may eat. And I wash my hand 100x a day We just can't afford for all of us to be gluten free if they don't have to be....

I just tried Bob's and they were really good. My kids even ate them. My husband raved about them - which I thought was odd - they were good, but not your typical pancake. He grew up on a farm though, and they have a much heavier kind of corn feel to them. He doesn't have to be gluten free - but is enjoying all of the meat, potatos, veggies and cornmeal type foods I'm leaning towards

THey actually freeze really well too. I put some in the freezer and will pull them out and microwave them for about 45 seconds. Taste the same as they did first time around

Hi and welcome! I am new here too - just diagnosed in mid-Jan. I found out the other day that we get a tax deduction for gluten-free food as a medical expense. Yea!

Thanks so much for the link to the amaretto! That kind has always been my favorite - so that makes me SO HAPPY!

Here's a great recipe to keep in your freezer or for parties:

4 1/2 cups water

1/2 cup sugar

1 or 2 cups ameretto

1 can frozen OJ (12oz)

1 can frozen lemonade (12oz)

Freeze overnight

Serve with sprite.

I've been wondering the same thing. So for example - do you think a strawberry daquiri would be safe? It's usually made with rum - so I guess it would be the mix that would be worrisome ...?

What about ameretto? I've not been able to find anything on whether that is safe or not. That would be easy to order with a little sour mix - basically OJ and sprite....

I just had my 11 month old son tested via blood test - and I was so worried about it that I was sick all night before. We went to a branch of our Children's Hospital and they were excellent! He didn't even cry. He was fascinated with the nurse and just sat and watched her. She says most young ones react that way - they don't have a lot of fear yet. His results came back negative (he is small, but asymptomatic - we were testing him b/c I found out I have Celiac). We will test him again if he shows any symptoms or in 2 years - whichever comes first...

But hopefully your son will have no trouble - try and find someone who is used to dealing with kids for this type of situation - it makes all of the difference!

They actually make Dora Cinnamon Stars too - I eat them in the morning! They are good and a good source of fiber - my 11 month old LOVES them...

Hi Dan-

I'm brand new to this too. I've had D since September every morning for hours. I had plurisy and have had terrible mouth sores (in my throat even!) since August. My wrists ache something terrible. My blood test came back positive for celiac (I need to call the Dr now that I've been on here and find out exactly which ones he did) and the GI is doing an endoscopy on Tuesday. I started the diet 3 weeks ago and noticed a HUGE difference within a week. The D stopped. Finally the next week the weight loss stopped. My wrists and mouth sores still here though...

So some similar symptoms - enough that they should look into it more....

Thanks - you too!

I've only known I have celiac for 3 weeks - so I'm new at this. I ate a hot pretzel for lunch everyday...Oh how I miss them!

Hello! I'm really new here - I have my endoscopy on Tuesday. My GI said not to eat gluten (I've only been gluten free for 3 weeks). I was loosing 3-4 lbs a week - so not worth it She said that celiac is always patchy anyway - and especially b/c I've not had symptoms all of my life (only since Sept or so). They are going to take 4 or 5 samples and hope they find a spot...So I guess not everyone believes in eating the gluten beforehand. Why make yourself so sick just to make their job easier?