Geriatric Newby Caregiver
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I.M.Celiac reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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Well, the diagnosis is complete (At least for now). While my wife has no villi anywhere in her small intestine, she dies not exhibit sufficient genetic markers and antibodies to conclude that she has Celiac disease. She has Enteropathy Associated T-cell Lymphoma, which sometimes follows Refractory Celiac Disease. But in her case, they have determined...
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knitty kitty reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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LCAnacortes reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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Scott Adams reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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Choline was addressed. We have found tge few foods that cause the least trouble. Biopsies of tissues collected throughout the entire length of the small bowel and colon revealed no villi anywhere (celiac disease is usually only responsible for destroying villi in the first third) plus microscopic colitis (which was not present in November when the...
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Scott Adams reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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Blue-Sky reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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Updates since April: My wife has had no remission of symptoms with a gluten free diet alone. But we did switch to a new GI doctor who is a Celiac and Motility specialist at Stanford. She was skeptical of the diagnosis of Celiac Disease because she has not had any Celiac patients on TPN and the only evidence was the EGD showing celiac sprue. So, enzyme...
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You are right about the spelling. No, it duid not help. In fact, it may have increased the inflammation that is in her large intestine. We don't know what has been causing that, but it is in addition to the Celiac disease which is in the small intestine, of course. The only thing that seems to have helped has been steroids, which she gets prior to a...
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Scott Adams reacted to a post in a topic:
Do anti-diarrheal medications help during recovery?
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A good idea to learn would be to contact the kitchen staff at a hospital near you. They might even give you a brief educational tour. My understanding is that they have a dedicated part of their kitchen fir the gluten-free foods. Dedicated pans. Dedicated utensils. Dedicated fryers (if you use them) In our homes many of us simply went 100% gluten free...
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She has been tested for c.diff at least three times. They just did another culture to see whether any other kind of infection is going on. In addition to the Celiac disease (in the small intestine) there is something going on to cause inflammation in the colon as well, which has shown up in both a recent PET scan and CT scan. Just in case is might...
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I forgot to mention that we had tried this drug once before, but that was prior to the diagnosis when she was still consuming gluten regularly. No wonder it had no effect then.
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One of my wife's doctors just prescribed a "squestering" medication called Cholesystyramine, to help reduce the severity of her diarrhea. The idea is that it binds excess bile acid (which appears to be a major factor with her). We will let you know how it works.
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I feel great. But I am only tge caregiver. She still has severe diarrhea (10-15 time a day. Sometimes as much as 25) which is causing dehydration and electrolyte imbalance problems. We are now on her sixth hospitalization to restore fluids and potassium. Just today they started her on a new medication, Cholestyramine, which can be used to bind excess...
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Thanks for the info about lentils. It makes sense. And for the tip about the Gluten Free RN. This will be very helpful!
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We are 100% sure. Except when the Melatonin she was using had wheat and the rice noodles that said gluten free 7 times were found to have been processed on shared equipment. We have read the article. Very helpful, thank you. And much along the same lines as the hospital nutrtionist advised us. We clot rid of everything on out kitchen that wasn't glass...
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Just wondering. My wife has been gluten free now for just about two months. We know that that is not very long at all in the realm of recovery. But what we are wondering is whether or not it may help with her constant, totally watery diarrhea if she were to try anti-diarrheal medications like Immodium or Lomotil. Prior to her diagnosis, when the doctors...
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Thank you, Fran, We see a nutritionist every time we come into the hospital (for treatment of the potassium defficiency), and we have an appointment to start with a new TEAM of doctors that include a Celiac Specialist who is also a Motility Specialist, and a Nutritionist. May 10 is the first appointment we could get.
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At present, she does not tolerate ANYTHING in her GI tract, much less an adult nutrition supplement of any sort. That is why she has to be on TPN. It is frustrating, because even a sip of water will trigger a dumping syndrome. And 1 or 2 oz of water (even to take a medication) triggers a volume of 2-4 oz. of diarrhea. So drinking water, or a nutritional...
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Does anyone have any reliable information as to whether any generic versions of Benadryl are gluten-free? Where do you look to find out if an over-the counter (or even prescription, for that matter) medication is truly gluten free. We were surprised to learn that some of the Melatonin we were using was gluten free, and another brand said "contains wheat...