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mspat3

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  1. icon Scott Adams reacted to a post in a topic: Genetic Test Results
  2. mspat3
    Hi Jenni, I went above and beyond the recommended 2-slices of wheat bread during my gluten challenge. I wanted to be 100% sure that when the endoscopy was done, that I would not doubt my results. So, I ate breakfast sandwiches, doughnuts, and pastries for my breakfasts, lunch sandwiches, pastas for dinner, or breaded chicken with macaroni and cheese on...
  3. mspat3
    Hi Everyone! I wanted to provide an update to this post. I had an endoscopy (and colonoscopy) on Monday, after eating gluten for three weeks prior, and my results came back today saying that I had a "Benign duodenal mucosa with preserved villous architecture and no increase in intraepithelial Lymphocytes". So, it looks like we have ruled out celiac. I...
  4. icon mspat3 reacted to a post in a topic: Lab interpretation
  5. icon mspat3 reacted to a post in a topic: Negative Gene test, villious atrophy, negative biopsy
  6. icon mspat3 reacted to a post in a topic: Negative Gene test, villious atrophy, negative biopsy
  7. mspat3
    I understand what you are saying. It is hard to not feel discouraged when the messaging from your doctor seems to conflict with everything else out there. With my new doctor, I have wondered if he had some sort of technique, advanced knowledge, or some other superpower that allowed him to diagnose or rule-out Celiac Disease without a patient eating gluten...
  8. icon Scott Adams reacted to a post in a topic: Genetic Test Results
  9. mspat3
    Hi Jenni, It sounds like you and I had the same decision to make. I'm not sure if celiac damage will show by the time of my endoscopy in three weeks, but if I have celiac, I'm also not sure if years of damage could have been repaired in 5 months. I can say that today I had gluten for lunch, and within an hour, I was already seeing symptoms return....
  10. mspat3
    Hi Ravenwoodglass, Yes, originally when I met my gastroenterologist for the first time on July 26th, he only scheduled the Celiac Genetic blood test (performed on August 16) and the colonoscopy (scheduled for October 3rd). When the genetic test results came back, my doctor's nurse said they were negative, but the lab doctor wrote on the test that...
  11. mspat3
    Hi Jenni, Thank you for your response. You're absolutely correct. I can choose to eat gluten despite what I was told, and after talking to my husband tonight, I have decided to do that. My test is in 3 weeks (October 3rd), and I will start eating gluten tomorrow. This gastroenterologist is new to me, and I have only met with him one time. I'm going...
  12. mspat3
    Thank you, Scott. I talked with my husband tonight about all of this, and I have decided I will eat gluten again between now and my test on October 3, 2022. I tried to get a clear answer from my doctor by calling his nurse today, but she passed my message right back to the lady in scheduling who returned my call and was angry that I had not accepted her...
  13. mspat3
    Another update. I called and left a message with my doctor's nurse, letting her know what was told to me by the scheduling lady at the office, and just asking for confirmation from the doctor. I received a call from the scheduling lady a few moments ago. I guess the nurse passed my message back to her to handle. The scheduling lady seemed very...
  14. mspat3
    Posting an update. Here is what has happened since I last updated: 1. Spoke to my doctor's nurse on August 29, 2022, who told me my genetic results were "negative" because the DQ8 was negative. I pointed out that the DQ2 was positive, and the lab doctor said I had one of the two genes for celiac disease and further testing would be needed to confirm...
  15. mspat3
    Hi Knitty Kitty! I still have not heard from my doctor's office. I called and left a message with his nurse, but I have not received a call back to discuss the results. He does tend to overschedule his appointments, so perhaps that's part of it, but I had hoped I would have heard something by now. I have heard that traumatic events can trigger digestive...
  16. mspat3 started following Genetic Test Results
  17. mspat3
    Hi Everyone! I first posted a few months ago after finding out that my lifelong IBS symptoms seemed to get better after I cut out gluten. I had visited an allergist who told me I had a wheat allergy, along with nuts and sesame. She had run a celiac blood test, but I was already eating gluten-free so it was inconclusive. At the end of July, I went...
  18. mspat3 started following Putting the Pieces Back Together
  19. mspat3
    I just found this article today, and I felt like you were writing my story instead of your own. I am in the process of still trying to figure out if I am celiac or gluten sensitive. I know I have an allergy to wheat (confirmed by allergist), but when she ran the celiac blood test, I had already been eating gluten free for a month, so it did not show an...
  20. icon mspat3 reacted to an article: Putting the Pieces Back Together
  21. icon LCAnacortes reacted to a post in a topic: Question about celiac testing
  22. icon mspat3 reacted to a post in a topic: Blood Test results--one low, but the other high?
  23. icon mspat3 reacted to a post in a topic: Blood Test results--one low, but the other high?
  24. icon mspat3 reacted to a post in a topic: Blood Test results--one low, but the other high?
  25. mspat3
    Thank you, Scott. I spoke with my allergist today, and she said the same. Until I have located a gastroenterologist in my area and established a relationship there, she said she feels certain that I do have a gluten sensitivity, and we also know that I have a wheat allergy, so she recommended going gluten-free again. I definitely felt better on a gluten...
  26. icon knitty kitty reacted to a post in a topic: Question about celiac testing
  27. mspat3
    Thank you so much for this information. I will be looking into this today. I have been hearing a lot about the AIP diet also, but I haven't really read into the details yet. I did recently place an order with an online AIP-friendly market as I was trying to figure out what was happening to my digestion and thought maybe it was food additives that were...
  28. icon mspat3 reacted to a post in a topic: Question about celiac testing
  29. icon mspat3 reacted to a post in a topic: Question about celiac testing
  30. mspat3
    Thank you! I will definitely look into that.
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