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mspat3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mspat3

  1. mspat3
    Hi Jenni, I went above and beyond the recommended 2-slices of wheat bread during my gluten challenge. I wanted to be 100% sure that when the endoscopy was done, that I would not doubt my results. So, I ate breakfast sandwiches, doughnuts, and pastries for my breakfasts, lunch sandwiches, pastas for dinner, or breaded chicken with macaroni and cheese on...
  2. mspat3
    Hi Everyone! I wanted to provide an update to this post. I had an endoscopy (and colonoscopy) on Monday, after eating gluten for three weeks prior, and my results came back today saying that I had a "Benign duodenal mucosa with preserved villous architecture and no increase in intraepithelial Lymphocytes". So, it looks like we have ruled out celiac. I...
  3. mspat3
    I understand what you are saying. It is hard to not feel discouraged when the messaging from your doctor seems to conflict with everything else out there. With my new doctor, I have wondered if he had some sort of technique, advanced knowledge, or some other superpower that allowed him to diagnose or rule-out Celiac Disease without a patient eating gluten...
  4. mspat3
    Hi Jenni, It sounds like you and I had the same decision to make. I'm not sure if celiac damage will show by the time of my endoscopy in three weeks, but if I have celiac, I'm also not sure if years of damage could have been repaired in 5 months. I can say that today I had gluten for lunch, and within an hour, I was already seeing symptoms return....
  5. mspat3
    Hi Ravenwoodglass, Yes, originally when I met my gastroenterologist for the first time on July 26th, he only scheduled the Celiac Genetic blood test (performed on August 16) and the colonoscopy (scheduled for October 3rd). When the genetic test results came back, my doctor's nurse said they were negative, but the lab doctor wrote on the test that...
  6. mspat3
    Hi Jenni, Thank you for your response. You're absolutely correct. I can choose to eat gluten despite what I was told, and after talking to my husband tonight, I have decided to do that. My test is in 3 weeks (October 3rd), and I will start eating gluten tomorrow. This gastroenterologist is new to me, and I have only met with him one time. I'm going...
  7. mspat3
    Thank you, Scott. I talked with my husband tonight about all of this, and I have decided I will eat gluten again between now and my test on October 3, 2022. I tried to get a clear answer from my doctor by calling his nurse today, but she passed my message right back to the lady in scheduling who returned my call and was angry that I had not accepted her...
  8. mspat3
    Another update. I called and left a message with my doctor's nurse, letting her know what was told to me by the scheduling lady at the office, and just asking for confirmation from the doctor. I received a call from the scheduling lady a few moments ago. I guess the nurse passed my message back to her to handle. The scheduling lady seemed very...
  9. mspat3
    Posting an update. Here is what has happened since I last updated: 1. Spoke to my doctor's nurse on August 29, 2022, who told me my genetic results were "negative" because the DQ8 was negative. I pointed out that the DQ2 was positive, and the lab doctor said I had one of the two genes for celiac disease and further testing would be needed to confirm...
  10. mspat3
    Hi Knitty Kitty! I still have not heard from my doctor's office. I called and left a message with his nurse, but I have not received a call back to discuss the results. He does tend to overschedule his appointments, so perhaps that's part of it, but I had hoped I would have heard something by now. I have heard that traumatic events can trigger digestive...
  11. mspat3
    Hi Everyone! I first posted a few months ago after finding out that my lifelong IBS symptoms seemed to get better after I cut out gluten. I had visited an allergist who told me I had a wheat allergy, along with nuts and sesame. She had run a celiac blood test, but I was already eating gluten-free so it was inconclusive. At the end of July, I went...
  12. mspat3
    I just found this article today, and I felt like you were writing my story instead of your own. I am in the process of still trying to figure out if I am celiac or gluten sensitive. I know I have an allergy to wheat (confirmed by allergist), but when she ran the celiac blood test, I had already been eating gluten free for a month, so it did not show an...
  13. mspat3
    Thank you, Scott. I spoke with my allergist today, and she said the same. Until I have located a gastroenterologist in my area and established a relationship there, she said she feels certain that I do have a gluten sensitivity, and we also know that I have a wheat allergy, so she recommended going gluten-free again. I definitely felt better on a gluten...
  14. mspat3
    Thank you so much for this information. I will be looking into this today. I have been hearing a lot about the AIP diet also, but I haven't really read into the details yet. I did recently place an order with an online AIP-friendly market as I was trying to figure out what was happening to my digestion and thought maybe it was food additives that were...
  15. mspat3
    Thank you! I will definitely look into that.
  16. mspat3
    My allergist added the celiac panel blood test into the order for allergy tests she was already ordering due to recent food allergies that suddenly popped up recently. She said she was adding it in because I tested positive for wheat during my skin prick test, and I told her during that first appointment that eating a gluten-free diet had resolved many symptoms...
  17. mspat3
    It is the same with me--I'm definitely not a thin person. I'm morbidly obese. I've always had trouble with my weight since starting puberty around age 10, and I think I've tried nearly every diet during my life. My primary doctor keeps testing my thyroid because she looks at my food journals that I keep, and she cannot figure out why my weight won't come...
  18. mspat3
    Thank you for explaining. Under the Celiac panel section of my test, it does not list results for the gliadin test, although it clearly says it in the panel name. The only two results listed are the TTG and the IGA. For the IGE, I am going to guess that it is total and not wheat-specific. I think my allergist added that in because she was also...
  19. mspat3
    My allergist had me go for testing for nut allergies, and she added in a few other tests, including a "Celiac Disease Comp Panel W/Gliadin AB (IGG)" because I already have a known wheat allergy (through skin prick test), and I have seen 20 years of IBS symptoms reverse itself by removing gluten from my diet. When I found out I could not delay the...
  20. mspat3
    Yes, I was surprised about eggs as well. I've eaten them my entire life, but within the last year or so, I became nauseous eating them and sometimes had stomach cramping. I couldn't figure out why. I just kept thinking every new digestive symptom was a part of getting older because I knew my older relatives and grandparents always had things they couldn...
  21. mspat3
    After several messages back and forth, where she was clearly not understanding the problem and was asking me questions like, "Ah, gotcha, so can you avoid gluten until your lab work then?", and me responding that yes, of course I can avoid it, but that would not give me an accurate test result, she finally understood. On the 18th, I will get the lab tests...
  22. mspat3
    I went to the lab website and looked up the celiac panel she requested, and it does say that a false negative could be received if a gluten-free diet is initiated before the test. Now I am sending her that link and again inquiring if, perhaps, we should do the other tests she requested (nut allergy panel, IgE, and Tryptase), and wait on the Celiac Comprehensive...
  23. mspat3
    I sent my allergist a message through their telemedicine application this morning, asking if I should return to consuming gluten again for a period of time before the test, and she responded back just now to say, "No, not at all. Consuming gluten won't affect the results." However, every site I have looked at today while waiting for her response has said...
  24. mspat3
    I stopped eating gluten 2 months ago in an attempt to solve a 20-year battle with diarrhea. I had been given a diagnosis two decades ago of irritable bowel syndrome, but in recent years, the diarrhea had gotten worse, up to 10x a day in the bathroom, and I couldn't nail down a trigger for it to consistently be getting worse and worse. Various doctors over...
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