Ericaagl
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Ericaagl
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Oh wow, thank you so much, that was super helpful! Really appreciate it. -
Hi, My insurance recently approved brand name medications for me, which they don't usually cover, but I was having all kinds of problems with gluten in generics, so they made a medical exception. The thing is, I just picked up my brand-name Ambien. It's made by Sanofi, and that's apparently the only manufacturer of brand-name Ambien. Everywhere online...
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Fabulous news. I figured out the culprit. As I suspected, it was gluten. There was starch in the mouthwash I started using about a month and a half ago. I discovered it the night before last and didn't use it yesterday. For the first time since I bought it, I slept through the night. Woke up and was down four pants sizes. Four sizes in ONE DAY. It was all...
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I know. I wasn’t taking that seriously. I appreciate your input.
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Hmm. Yet every single brand you list contains multiple ingredients. Can you name one that includes just the vitamin? I agree with you. I'll eat eggs.
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Thanks for this. I’m just a little confused, because kitty just told me not to eat eggs but you are saying to eat them. How should I decide what to do?
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Great, I'll try Cream of Wheat! Thank you! Kitty, first you tell me to cut sweet potatoes. Then you tell me to cut chicken. You realize you've left nothing but berries, right? Yet you recommend that I consume vitamins, which can contain gluten? Are you keeping track of your arguments? Do you see that you're not giving me anything to eat? Do you expect...
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My dietician said no vegetable with fiber. She said as look as I take the skin off the sweet potatoes, they're safe. She's considered the foremost expert in my city on Celiac and gastroperesis. I get sick from every oil I've tried. My GI doctor says they probably get contaminated with gluten in the manufacturing/bottling process. So I'm not eating any...
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No, this is the doctor who figured out that I had celiac and had me get the endoscopy. The problem with only going by the ingredients list is that that can't tell you how it's manufactured. It's in the manufacturing process that contamination can occur.
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When it says "gluten-free," could that still mean up to 20ppm like every other manufactured item or is it 100% gluten-free? I'm not sure what you mean when you say "Rice consumption is one of the reasons the Japanese created benfothiamine." Is your point that rice isn't safe? About turkey, the only thing I can find is gluten free organic ground...
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Do you think rice might be a possibility?
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I can’t eat grass fed ground beef or any other red meat. I was eating it before and it made my gastroperesis insanely intolerable. My dietician says I can’t have any veggies because my gastroperesis is so severe. I guess I’ll try turkey, although I can’t stand the taste. Like I said, I can’t consume vitamins that say gluten-free because they can have up t...
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Thanks to both of you for your assistance. Sabaaryra, it’s comforting to know I’m not alone. I was also diagnosed at age 39. Kitty, I also researched vitamins and if they’re labeled gluten-free they can have up to 20 ppm so it’s either that or the rice powder. I’m definitely going to stop taking vitamins. Is there any way for me to get thiamine naturally...
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One possibility instead of a different carb would be an additional source of protein. I just desperately need more than chicken and berries to feel satisfied. If I got rid of sweet potatoes and started eating organic free range brown eggs with my chicken and berries, would that be safe?
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Also, I have gluten reactions to every vitamin I’ve tried. Everything that calls itself gluten-free can still have small amounts or traces of gluten. Every over the counter version has made me sick. I’ve been sick the whole time I’ve been taking the ones from piping rock, though I was sick before then so I don’t know for sure what’s going on with them. I n...
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Ok, but what carbohydrate can I eat instead then? You need to give me some alternative. Rice? Regular potatoes? Without sweet potatoes I’ll be left with only chicken and berries. I would starve. I can’t live like that. Eating only chicken and berries simply is not any option for me. I need carbohydrates. You need to give me things to add if you’re going to re...
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Yes, that's what I thought about sweet potatoes. I might try organic brown, free range eggs, because I really can't stand plain chicken. Thanks for your advice. It's very inspiring and gives me hope.
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Oh, that's great advice about the temperature of the chicken, thank you! Now I want to clarify, I'm talking about SWEET potatoes, not regular potatoes. Do you really mean sweet potatoes could be a problem? They've never been a problem for me before, and all my doctors promise me they're safe. If I eliminate the sweet potatoes I'll hardly get any calories...
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Thanks for the input. I've looked into that, but I'm following a diet for Mast Cell right now. As I said, all I'm eating is plain chicken, sweet potatoes, and berries. It doesn't seem to be working.
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Hey all. I wanted to update you. Things have gone from bad to worse. I’m down to eating only plain fresh chicken, sweet potatoes, and berries … and even so, I’m sick every single day. The symptoms just won’t let up. I haven’t been able to fulfill my teaching duties because I can’t leave the bathroom. And they’re exactly the same as my gluten symptoms, so ...
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Definitely a work in progress. So glad not to be having diarrhea anymore. I'm guessing it was the avocado. I ordered all the vitamins from PipingRock. My doctor seems skeptical about Thiamine; she says she's not convinced that that's a problem. She wants me to ask my GI doctor what he thinks. He's hard to get in touch with, though. Argh! My issue with...
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I am having really bad brain fog, though. Could that be caused by the sweet potatoes? It's worse than when I have gluten.
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I cut out avocados and bananas yesterday, and this was the first night in forever that I didn't have diarrhea. So I'm wondering if the problem was the histamines? On the other hand, I tripled the number of sweet potatoes and Brussels sprouts I ate, since I needed to make up the calories. I ate sweet potatoes, Brussels sprouts, pear, strawberries. I'm going...
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I haven't bought any beef yet, but I've definitely been planning on getting grass-fed only! I'm going to the store today.
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Could it be possible that since I also have gastroperesis, the problem is just that it hasn’t been long enough since I’ve been 100% gluten free and my body is still flushing out gluten from my system? In all my tests my abdomen has been full of food so there’s probably still gluten and other bad stuff stuck in there. Could this be temporary? Also, if I get...
